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Disabilities Among Children Aged less than or equal to 17 Years -- United
States, 1991-1992
Disabilities among children result in substantial reductions in quality of
life and are associated with increased dependence on the health-care and
social-service systems. To assess the prevalence of disabilities and their
associated health conditions among children, CDC reviewed data from the Survey
of Income and Program Participation (SIPP) for 1991-1992, which collected
information about chronic conditions, including the functional limitations
related to those conditions (1,2). This report summarizes SIPP data for children
aged less than or equal to 17 years.
From October 1991 through January 1992, SIPP collected information about
disabilities during personal household interviews of a sample (n=97,133 persons
in 34,100 households) of the U.S. civilian, noninstitutionalized population.
Measures of disability were based on definitions from the International
Classification of Impairments, Disabilities, and Handicaps (ICIDH) * (3). The
ICIDH extends the International Classification of Diseases (ICD) to include the
personal and social consequences of diseases. Parents or legal guardians were
asked about disabilities among their children aged less than or equal to 14
years. Children aged 15-17 years were asked directly about disabilities when
they were available; however, for most children in this age group, information
was obtained from their parents or guardians. For children reported to have a
disability, parents were asked about the condition(s) that caused the functional
limitation. Data were weighted to calculate national estimates representative of
the U.S. population.
To ensure that the disability data were comprehensive and accounted for all
developmental stages of children, the SIPP definitions of disability were varied
by age group. For children aged 0-5 years, disability was defined as 1)
limitation in the usual kind of activities done by most children the same age,
or 2) receipt of therapy or diagnostic services by the child for developmental
needs. For children aged greater than or equal to 6 years, disability was any
limitation in the ability to do regular school work. Additional indicators of
disability included, for children aged 3-14 years, a long-lasting condition that
limited the ability to walk, run, or use stairs, and for children aged 15-17
years, measures of problems in personal care, personal management (activities of
daily living ** ), and the use of assistive aids (e.g., wheelchair).
During 1991-1992, an estimated 48.9
million persons (19.4% of the total U.S. population of 251.8 million) had a
disability; of these, 3.8 million (7.9%) were aged less than or equal to 17
years (1). For children aged less than 3 years, the overall estimated
prevalence of disabilities was 2.2%; for those aged 3-5 years, 5.2%; for those
aged 6-14 years, 6.3%; and for those aged 15-17 years, 9.3%
Table_1. In all age groups, the prevalence of
disabilities was higher among boys than girls; this sex-specific difference was
greatest in the 6-14-year age group.
The condition most frequently reported as a cause of functional limitation
among children aged less than or equal to 17 years was learning disability
(29.5%), followed by speech problems (13.1%), mental retardation (6.8%), asthma
(6.4%), and mental or emotional problems or disorders (6.3%)
Table_2. Reported by: JM McNeil, Bur of the Census,
Economics and Statistics Administration, US Dept of Commerce. Disabilities
Prevention Program; Developmental Disabilities Br, Div of Birth Defects and
Developmental Disabilities, National Center for Environmental Health; Behavioral
Risk Factor Surveillance Br, Office of Surveillance and Analysis, National
Center for Chronic Disease Prevention and Health Promotion, CDC.
Editorial Note
Editorial Note: In the United States, the impact of disabilities is
disproportionately higher among children because disabilities with onset during
childhood account for approximately one third of the years of disability *** in
the U.S. population (4). Improved characterization of the magnitude and
distribution of disabilities among children is important to identify needed
services and to target appropriate interventions. The findings in this report
further document age and sex variations in the prevalence of disabilities among
children. The increase in the prevalence of disabilities with advancing age
probably reflects the ability to identify more readily academic or behavioral
limitations among older children and variations in the way educational systems
identify children limited in the ability to do regular school work (5). Reasons
for sex-specific differences are unclear and require further study.
The approach used in this report to estimate the prevalence of disabilities
was based on limitations in function resulting from chronic conditions rather
than on the diagnosis of such conditions. Previous studies may have
underestimated the prevalence of disabilities among children because the
definitions were restricted to certain conditions (6). To improve the precision
of estimates of disability, the SIPP definitions were broadened to include the
functional consequences of chronic conditions. The inclusion of these functional
limitations enables more accurate estimates of the prevalence of disabilities.
However, the SIPP data are subject to at least two limitations. First, because
children living in institutions or group homes were excluded from the study, the
prevalence of disabilities among children probably is underestimated. Second,
age-group-specific variations in the definitions of disability limit the basis
for comparison across age groups.
In SIPP, health conditions associated with disabilities comprise a
combination of diseases (e.g., asthma or diabetes), impairments (e.g., missing
extremities or paralysis), and primary conditions considered to be disabilities
(e.g., mental retardation or cerebral palsy). Efforts to improve the precision
of national estimates of disabilities among children should distinguish between
those impairments, disabilities, and handicaps that are consequences of the
disabling process. One such effort is the 1999 revision of the ICIDH, which will
emphasize measures of disability and handicap among children (7) and assist in
standardizing collection of information about disabilities among children.
Improved estimates of the prevalence of disabilities and their associated
health consequences among children are needed to develop and evaluate prevention
strategies. Estimates based on analysis of data from SIPP can assist public
health planners in identifying primary services for children with disabilities
and in projecting long-range needs of these children. In addition, the linking
of data about primary disabling conditions among children with the functional
consequences of these conditions enables more precise estimation of costs
required to meet the continuing needs of these children.
References
McNeil JM. Americans with disabilities, 1991-1992. Washington, DC: US
Department of Commerce, Economics and Statistics Administration, Bureau of the
Census, 1993. (Current population reports; series p70, no. 33).
CDC. Prevalence of disabilities and associated health conditions. MMWR
1994;43:730-1,737-9.
World Health Organization. International classification of impairments,
disabilities, and handicaps. Geneva: World Health Organization, 1980.
Houk VN, Thacker SB. Program to prevent primary and secondary disabilities
in the United States. Public Health Rep 1989;104:226-31.
US Department of Education. 11th Annual report to Congress on the
implementation of the Individuals with Disability Education Act. Washington,
DC: US Department of Education, Office of Special Education and Rehabilitative
Services, Office of Special Education Programs, 1989.
Verbrugge LM. The disability supplement to the 1994-95 National Health
Interview Survey (NHIS-Disability). Hyattsville, Maryland: US Department of
Health and Human Services, Public Health Service, CDC, NCHS, 1993.
Badley EM. An introduction to the concepts and classifications of the
International Classification of Impairments, Disabilities, and Handicaps.
Disabil Rehabil 1993;15:161-78.
Based on the ICIDH, an impairment is an abnormality of an organ system,
a disability is a person's limitation in function resulting from an
impairment, and a handicap is the social consequence(s) or disadvantage(s)
resulting from impairment and disability that a person experiences while
interacting in the physical and social environment. ** Ability to 1) "get
around inside the home"; 2) "get in and out of bed or a chair"; 3) "take a
bath or shower, dress, and eat;" and 4) "get to and use the toilet." ***
Years of disability are calculated by multiplying the number of persons with
new cases of disabilities by the expected lifespan of each person with a
disability per year. Because years of disability reflect both prevalence and
duration of disability, it is useful in assessing the impact of preventive
interventions.
Table_1
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settings to landscape and use a small font size.
TABLE 1. Number * and percentage of children aged <=17 years with disabilities, by sex, age group, and criteria of the definition Survey of Income and Program Participation, United States, 1991-1992 +="==========================================================================================" Male Female Total (n="33,879)" (n="32,256)" (n="66,135)" Age group/ Criteria of definition & No. (%) No. (%) No. (%) <3 yrs (n="6,000)" (n="5791)" (n="11,791)" Limited in usual kind of activities 72 ( 1.2) 76 (1.3) 149 (1.3) Received services for developmental needs 106 ( 1.8) 77 (1.3) 183 (1.6) With autism/cerebral palsy/ mental retardation 32 ( 0.5) 8 (0.1) 41 (0.4) Total with a disability 133 ( 2.2) 121 (2.1) 254 (2.2) 3-5 yrs (n="5,946)" (n="5,565)" (n="11,511)" Limited in usual kind of activities 184 ( 3.1) 110 (2.0) 294 (2.6) Received services for developmental needs 323 ( 5.4) 176 (3.2) 498 (4.3) Limited in ability to walk, run, or use stairs 76 ( 1.3) 71 (1.3) 147 (1.3) With autism/cerebral palsy/ mental retardation 54 ( 0.9) 21 (0.4) 75 (0.7) Total with a disability 370 ( 6.2) 228 (4.1) 597 (5.2) 6-14 yrs (n="16,761)" (n="16,005)" (n="32,766)" Limited in ability to do regular school work 1,197 ( 7.1) 567 (3.5) 1,764 (5.4) Limited in ability to walk, run, or use stairs 301 ( 1.8) 223 (1.4) 524 (1.6) With autism/cerebral palsy/ mental retardation 250 ( 1.5) 163 (1.0) 412 (1.3) Total with a disability 1,373 ( 8.2) 689 (4.3) 2,062 (6.3) 15-17 yrs (n="5,172)" (n="4,895)" (n="10,067)" Limited in ability to do regular school work 321 ( 6.2) 116 (2.4) 438 (4.4) With autism/cerebral palsy/ mental retardation @ 159 ( 3.1) 150 (3.1) 309 (3.1) Total with a disability 558 (10.8) 374 (7.7) 933 (9.3) * In thousands. + Unweighted sample size="66,135." & Categories are not mutually exclusive. @ For these older children, this category includes additional measures of limitations in functional activity.="=========================================================================================="
Table_2
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TABLE 2. Conditions reported as the cause of disability among
children aged <=17 years Survey of Income and Program Participation, United States, 1991-1992="==============================================================" Condition No. * (%) Learning disability 1435 ( 29.5) Speech problems 634 ( 13.1) Mental retardation 331 ( 6.8) Asthma 311 ( 6.4) Mental or emotional problem or disorder 305 ( 6.3) Blindness or vision problems 144 ( 3.0) Cerebral palsy 129 ( 2.7) Epilepsy or seizure disorder 128 ( 2.6) Impairment deformity of back, side, foot, or leg 121 ( 2.5) Deafness or serious trouble hearing 116 ( 2.4) Tonsilitis or repeated ear infections 80 ( 1.6) Hay fever or other respiratory allergies 76 ( 1.6) Paralysis of any kind 73 ( 1.5) Missing legs, feet, toes, arms, hands, or fingers 70 ( 1.4) Autism 48 ( 1.0) Drug or alcohol problem or disorder 48 ( 1.0) Head or spinal cord injury 45 ( 0.9) Heart trouble 44 ( 0.9) Impairment deformity of finger, hand, or arm 27 ( 0.6) Cancer 26 ( 0.5) Diabetes 14 ( 0.3) Other 653 ( 13.4) Total 4858 (100.0) * In thousands.="=============================================================="
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