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E-NEWS FROM THE NATIONAL VACCINE INFORMATION CENTER
Vienna, Virginia http://www.909shot.com
"Protecting the health and informed consent rights of children since 1982."
=============================================
From Michael Belkin:

"For whatever reason, they seem to think that safety is not as
important,"

http://my.webmd.com/content/article/1728.70552

Drug Trials Underreport Side Effects, Emphasize Benefits

 By Ori Twersky
 WebMD Washington Correspondent

 Reviewed by Dr. Dominique S. Walton

 Jan. 23, 2001 (Washington) -- How effective is a drug if it's not completely safe? While all drugs come with the risk of side effects, doctors can't treat patients effectively unless they have all the information they need to pick the best drug. Yet, a report in the Jan. 24 issue of the Journal of the American Medical Association shows clinical investigators
 and medical journals often neglect to publish the severity and frequency of side effects discovered during the testing of drugs.

According to the analysis, the clinical investigators published the frequency and severity of side effects less than 40% of the time.  Moreover, of those that did publish side-effect information, less than one-third also outlined the side effects documented during earlier
laboratory tests, the researchers found.

The analysis focused on the published accounts of 192 randomized trials for seven different drug classes, ranging from antibiotics to HIV treatments. In total, the trials involved more than 130,000 patients.

The primary reason for this oversight, speculates co-author Joseph Lau, MD, is because medical journals generally place more emphasis on publishing the clinical benefits rather than side effects.

"For whatever reason, they seem to think that safety is not as important," he tells WebMD.

But side-effect data is both necessary and significant, argues the professor of medicine at the New England Medical Center in Boston.

Consider the fate of several popular drugs that were pulled in recent years -- all because of severe side effects:

The irritable bowel syndrome drug Lotronex was pulled Nov. 28, 2000, because of links to several cases of a potentially life-threatening intestinal condition and five deaths. On March 21, 2000, the diabetes drug Rezulin was taken off the market because the drug was reported to cause liver failure. Propulsid, approved for heartburn, was found to cause
heart-rhythm disorders and completely removed from the market last July. Links to heart valve damage led to the removal of the antiobesity drug Redux in September 1997.

"We clinicians now have several alternatives available to treat different conditions, and we need the safety information to make sound choices," Lau says.

Safety data usually is reported to government regulators and is published following the clinical trials conducted to support the approval of a new treatment. However, Lau says, the lack of emphasis on also reporting the side effects in subsequent journal articles may have dire consequences.

For instance, initial trials of a drug may not establish the true safety profile of the drug, Lau explains. And physicians also may neglect or be unable to reference the historical safety data when evaluating the latest article on a specific drug's clinical benefits, Lau notes.

To address this oversight, Lau recommends that journals require an addendum to each article summarizing the side effects. In essence, he tells WebMD, these supplements will then "let the readers be the judge" of the drug's true costs vs. benefits.

These article supplements could report the number of patients who withdrew from the trial and the reasons why, Lau points out. The supplements also could outline the type and frequency of the side effects seen in each study arm, as well as offer a detailed description of each unusual side effect, he says.

But in some cases, those clinical investigators may not have had any unusual or pertinent information to report, suggests another study released in JAMA.

That study, led by Salim Yusuf, MBBS, Dphil, FRCPC of Ontario's McMaster University, found a wide disparity between the side effects found during phase 2 clinical trials vs. phase 3 trials.

The investigators found that phase 2 trials often missed side effects documented during the larger phase 3 studies.

The most reasonable explanation is that phase 2 studies frequently enroll a narrow spectrum of patients, who may be at a lower risk of suffering side effects, the authors said. Also, phase 2 trials frequently employ a variety of dosing regimens, some of which may have less propensity to cause side effects, the authors said.

Still, although the pooled analysis of the 192 trials included a number of phase 2 studies, this is not a good reason for journals to avoid publishing even that limited safety data, Lau tells WebMD.

Overall, the amount of space presently reserved for the reporting of side effects in journal articles is similar to the amount of space devoted to listing the contributor’s names and affiliations, he points out. The percentage of space reserved for reporting side effects also is frequently less than one-tenth of the amount of space reserved for reporting the clinical benefits, he observes.

The journals may have a limited amount of space, and people in general do prefer to read good vs. bad news, Lau says, but even these facts do not excuse the glaring lack of safety information, especially since it could be outlined in about one-third of a page, he tells WebMD.

"The issue here is that journal editors are not doing their jobs," Lau says.  "What is reported and what isn't reported is just not consistent."

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Breaking News Archives - each day's breaking news from December 1, 2003 (check here for breaking news you might have missed and breaking news that didn't ever hit the "front page")

More News - all the news most recently posted on this website

All the News - a running tab of everything posted on this website since October 29, 2003

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Daily News Archives - all the news posted on this website each day (from April 2001)

Hot Topics - selected stories, by category

Return to Vaccination News Home Page (for best results, right click to "open in new window")

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