Hot Topics - Diseases and vaccines - Autism therapies/education/medicine (including the cost of care)

Hot Topics - Diseases and vaccines - Autism therapies/education/medicine (including the cost of care)/support

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The Topics: *Alternatives *Big pharma *Big trouble *Conferences *Conflict of interest *Diseases and their vaccines *Legal/political *Miscellaneous *Research  *Vaccine-related issues

Diseases and vaccines - Autism therapies/education/medicine (including the cost of care)/support

March 1-7, 2004

►March 4, 2004 - Autism victims to get Capital support centre - Evening News via The Scotsman

►March 3, 2004 - New therapy for Autism - www.wfsb.com - "You can't get a sense of how incredible sensory learning is until you see a before and after example of it."

Success in Autism: Filling in the Gaps - This conference is designed to educate both parents and professionals in breaking through plateaus and helping individuals with autism reach their optimal potential by "filling in the gaps." Consistency is promoted between the school and the home environments. Valuable information is for individuals at all levels, and information given is functional. - Autism Resources - conference alert - March 20-21, 2004 in Rutgers University, New Brunswick NJ 

►March 3, 2004 - Human Rights Tribunal of Ontario 121 autism related complaints - Medical News Today - "The Human Rights Tribunal of Ontario, Canada, is receiving a record 121 autism-related complaints by Ontario’s Human Rights Commission...The average number of complaints the commission refers to the Human Rights Tribunal of Ontario is around 90, and that includes all types of complaints, not just one type...The complaints say the province is cutting funding for the treatment of autism for children over six years of age. People say this is discriminatory."

►March 3, 2004 - Boost for autism sufferers - http://icscotland.icnetwork.co.uk - "Autism sufferers in Glasgow and Lothian are to benefit following a £2m funding boost for improving services...The cash will be spread over three years to develop "one-stop shops" for adults with autism, and for families struggling to cope with the disorder...The Greater Glasgow and Lothian health boards will receive £750,000 each in funding, the Scottish Executive said."

►2004 - Work with autism gets £750,000 boost - Evening Times, UK

►February 27, 2004 - Parents gather at State Capitol to protest autism-treatment cuts - Green Bay Press-Gazette

►March 1, 2004 - Parents: Autism curable - San Mateo Daily Journal

February 23-29, 2004

►February 23, 2004 - University Program Helps Autistic Students - AP via www.pressrepublican.com 

February 23, 2004 - Therapy for autistic kids in jeopardy - The Journal Times Online

►March 1, 2004 - School Choice Offers Flexibility for an Autistic Child - School Reform News via The Heartland Institute - "Three years ago, Carson was like most two-year-olds: He liked to put things into his mouth. And like most moms, his mother Cheryl was always alarmed at what he was putting into his mouth. When Carson bit and broke a mercury thermometer, she was terrified. She rushed him to the hospital in Sandy, Utah, where doctors showed her x-ray images of the mercury Carson had swallowed. Unfortunately, there was nothing they could do. The mercury would pass. All Cheryl could do was wait...Two weeks into the waiting, the shoe dropped. Carson went from babbling to mute. He couldn’t make noise. He couldn’t talk. His social skills disappeared. He wouldn’t sit still. He threw uncontrollable temper tantrums. He wouldn’t even acknowledge when his mom or dad called him, no matter how stern--or loving--they were. The doctors diagnosed him with pervasive developmental disorder, a mild form of autism."

►February 27, 2004 - Autism education case in court - The Record-Courier - "Saying there are 'kids that need serious help and never get it,' a Genoa couple is asking the Douglas County School District to implement a program that treats the needs of autistic children...Ranée and Sheldon Gaines expect a response March 8 from an independent hearing officer with the Nevada Department of Education. They will find out if they will be reimbursed $8,500 for autism treatment they paid for their 3-year-old twin sons, Jeremiah and Nehemiah."

►February 23, 2004 - Fund-raisers hope to help Whitman girl - The Enterprise via www.southofboston.com - "Andie suffers from a severe seizure disorder that her doctors attribute to a reaction to the measles, mumps and rubella vaccine she received when she was a year old. Despite years of treatment at Boston hospitals, doctors have been unable to control the seizures...A severe seizure in the spring left Andie with autism-like problems. She has since lost the ability to speak and now has other developmental delays."

February 16-22, 2004

►February 20, 2004 - Home cooked food is the best answer to autism - Indo-Asian News Service via Hindustan Times

►February 17, 2004 - Parents reroute efforts to get their son's test - A Lecanto teacher says she and her husband dropped their FCAT lawsuit but will work to reform state law. - St. Petersburg Times - "In October, Castillo and her husband, Joseph, who live in Brooksville, filed a legal action seeking the release of her son's results on the Florida Comprehensive Assessment Test. Since her son Jordan is autistic and children with autism have trouble with language, Castillo argued that in order to help her son improve his score, she needed to know what he was asked and how he answered...A month after the lawsuit was filed, Department of Education officials told the Castillos that the department would not release the test and that, if the Castillos didn't drop their lawsuit by this week, they could be ordered to pay the state's legal fees."

►February 10, 2004 - Some autistic kids getting harmful treatments - Researchers find many families are turning to alternative medicine (requires registration) - The Medical Posting

Comment:  When I registered, I was given the option of receiving emails from Pfizer, noted to be a supporter of the site.

February 9-15, 2004

Alternative therapies for autism - WebMD

What Medications are Available (for autism) - NIMH

January 26 - February 8, 2004 (2 weeks combined due to illness)

January 30, 2004 - As Autism Cases Rise, Parents Run Frenzied Race to Get Help (requires subscription) - The New York Times

►November 19, 2003 - Autism Is Treatable! - Congressional Testimony (pdf) - Bernard Rimland, Ph.D. - ARI

►February 7, 2004 - Autism cases — and costs — on the rise - San Mateo Daily Journal - "The number of autism cases is rising at a rapid rate around the world, and San Mateo County school officials are preparing to deal with the devastating impact it could have in coming years...'These are literally million dollar kids,' said Jim Cox, director of special education in the San Mateo-Foster City School District."

Comment:  If vaccines play any role in creating the epidemic of autism, might it not be prudent to question whether the benefits of vaccines outweigh their risks?

►February 7, 2004 - New Treatment For Autism: An I-Team Report - www.wnem.com

February 1, 2004 - Family suing to aid autistic son - www.2theadvocate.com - "Over the years, Richard and Lisa Wells have worked three jobs between them, mortgaged their Bramble Drive home twice and sold possessions to help their son...Now they're trying another approach: taking the nation's largest pharmaceutical companies to court."

February 3, 2004 - Cause for concern - Parents of autistic children search for answers - Daily Camera via www.rockymountainnews.com - "Federal and private sources have begun to respond to the alarming numbers with funding, which has helped to build impressive research centers in Denver and Boulder. But desperate parents, well aware that early intervention is key to keeping an autistic child connected with the world, don't have time to wait...They're reading journals, searching the Internet and networking with professionals and other parents about therapies. They're placing their children on special diets and giving them nutritional supplements while spending tens of thousands of dollars on an array of behavioral and occupational therapies, most of which aren't covered by insurance."

►January 30, 2004 - When demand exceeds supply - Parents do anything to get autistic children right treatment - The New York Times via The Houston Chronicle

►January 21, 2004 - Rights group joins fight to extend autism treatment - Hearing set in case of 8-year-old Toronto boy - The Toronto Star

January 19-25, 2004

►January 25, 2004 - Difficult choices - Variety of treatments face parents of autistic children - The Boston Globe - "Anke Kriske's 14-year-old son, Derek, has been on medications such as Ritalin, Adderall, and Prozac. He is on a special diet that limits yeast, wheat, and milk. And recently, he has been trying neurofeedback, where sensors on his head monitor and stimulate brain waves...The approaches may be diverse, but the intention has been uniform: helping Derek overcome his autism."

►January 22, 2004 - Future looks bright for Mariposa School - The Cary News - "The Mariposa School, for children with autism, was in danger of closing its doors in 2002. But the school is still open, making a difference and planning to expand...The school has 15 students enrolled in the building and its staff consults with six other children. Cindy Peters, executive director, said that Mariposa has been fortunate to have the support of many people. When the school was running low on funds in 2002, doing everything possible to publicize it helped pull Mariposa out of trouble."

►January 21, 2004 - Ontario mother calls on government to keep promise to fund autism treatment - Canadian Press via  www.medbroadcast.com - "An Ontario mother is asking the province to keep its promise to fund treatment for autistic children beyond the age of six, pointing to submissions by the Ontario Human Rights Commission that say the policy is 'discriminatory.'...Refusing to pay for therapy for older children 'is discriminatory to children with autism over the age of six,' said the commission's pleadings in the case that it has referred to the Human Rights Tribunal of Ontario.

Comment:  If it turns out to be true that vaccines are a cause of autism, the life-time cost of caring for the one out of 250 or so (maybe even more) autistic children needs to be factored into any costs associated with vaccination (particularly when compared to the costs associated with the disease(s) the vaccines are designed to "prevent").

January 18, 2004 - More than just a job: Real-world work program puts autistic student on path to independence - King County Journal

January 18, 2004 - Proper therapy can do so much for children with autism - Milwaukee Journal Sentinel via http://mentalhelp.net - "One unique thing about children with autism is that with early intensive intervention, they can make astonishing strides to the point where they are far less affected by the disorder.  This is not typical for most developmental disorders, and it saves taxpayers tens of millions of dollars per child over the child's life span.  These types of gains are never seen in autistic children who do not receive early intensive behavioral intervention."

►January 17, 2004 - Autistic children left hanging - Wind Lake mom, others scramble to replace therapy service after state switch - Milwaukee Journal Sentinel - "Hundreds of families across the state, many in southeastern Wisconsin, are scrambling to maintain treatment for their autistic children after a providersuddenly dropped out of the Medicaid-funded program in December...It is the latest setback for parents of these often severely impaired children, at a time when some are exploring a class-action lawsuit to restore treatment levels cut as part of a state budget compromise reached last year."

►January 18, 2004 - Camp lets kids with autism be themselves - Program designed to help youths with the disorder feel accepted and safe, founder says. - www.indystar.com

►January 18, 2004 - Evolving empathy: Through a workshop, South Butler students gain a better understanding of a life with disabilities - Pittsburgh Post-Gazette

►January 14, 2004 - Coping With Autism Many Moms Left Straining For Services - Daily News via YellowBrix - "For parents, there is little relief in sight...'The increase in autism is causing an increase in demand in services,' said Steve Graff, director of the Tri-County Regional Center in Simi Valley, which offers referrals to parents. 'And there are only so many people out there that can do that kind of service.'"

January 12-18, 2004

►January 15, 2004 - Love of horses, children in woman’s blood - Sun Current - "Though Jodi Townsend may receive a state award this year, she feels rewarded almost daily watching young children ride horses on her ranch...Townsend, 33, operates Majestic Hills Ranch in southern Lakeville. The ranch functions as a place where children with special needs can ride horses as a form of therapy. Townsend and her team of volunteers have operated the ranch since 1997."

►January 15, 2004 - Room is ray of hope for brain-damaged kids - Adopting a therapy that originated in the Netherlands, Jackson Memorial Hospital unveils a new multisensory room to treat children with brain injuries. - The Miami Herald

►January 13, 2004 - Kids left hanging as program to treat autism shuts down - Operator blames switch of funding to counties - Milwaukee Journal Sentinel

►January 9, 2004 - Data show states return millions to feds instead of spending it on schools - www.signonsandiego.com

January 5-11, 2004

►January 10, 2004 - County considers tax raise - The News-Gazette - "The Champaign County Board is expected to decide later this month whether to put a proposal on the November ballot to enact a countywide tax of up to 10 cents per $100 of assessed valuation to provide services for the county's 1,700 developmentally disabled residents."

Comment:  This sort of thing can be expected to become commonplace given the burgeoning disabled population.

►January 9, 2004 - Special ed a major part of a school’s work - Press of Atlantic City - "More than one out of every four students in the Pinelands Regional School District requires some form of special-education services, forcing the district to devote 40 percent of its instructional budget to the program...Beside the added cost per student - it can cost twice as much to educate a special-education student - the district employs about 100 special education personnel, about a quarter of its entire staff."

►January 8, 2004 - Parents of Children with Autism Turn to Medical Alternatives - Newswise/Life News via Healthy News - "One in three children recently diagnosed with autism received complementary or alternative medicine treatments and 9 percent used a potentially harmful type, according to a new study of patients in Philadelphia...Latino children were more likely to use complementary and alternative medicine compared to other groupings, according to Susan E. Levy, M.D., and colleagues, while those with additional, non-autistic disorders or deficits in thinking, learning and memory were less likely to do so...'The goal of many of these treatments is most likely not to treat autism per se, but rather to address some of the associated problems faced by these children,' she says."

►January 8, 2004 - Parents facing a difficult choice; Say they will fight to keep gov’t aid for their disabled children - Citizen Online - "Without the Katie Beckett waiver giving the family eligibility for Medicaid, DiMartino said she said her family would essentially be broke..."We want our son to be with us forever," she said as tears welled up in her eyes. 'I want to take care of my son. It would be very hard to do without the safety net of the Katie Beckett waiver.'...However, budget cuts at the state Department of Health and Human Services may jeopardize the current eligibility requirements, leaving many families without access to Medicaid."

►January 6, 2004 - Young And Mentally Ill ; State Services Dwindling For A Disease Few Understand - Rocky Mountain News via http://mentalhelp.net - "Diagnosed with bipolar disorder and Asperger's syndrome, Chelsy bounces back and forth between two emotions - euphoria and rage. When she's happy, she literally believes the animals can sing. When she's angry, she becomes convinced that the sky will fall, and she lashes out at anyone, anything, nearby...Several months ago, it was her mother. Chelsy tried to stab her with a carving knife."

January 6, 2004 - Trials End Parents' Hopes for Autism Drug (requires registration or subscription) - The New York Times - "For several years, an experimental drug, secretin, has offered an unlikely ray of hope for some desperate parents of children with autism...Discovered accidentally by the mother of an autistic boy and licensed to a small biotechnology company led by the father of two autistic girls, secretin has advanced through clinical trials even as study after study showed it had little or no effect...Now, the largest and most definitive clinical trial of secretin has been completed, and it, too, showed that the drug was no better than a placebo in improving the social interaction of young children with autism."

►January 2, 2004 - Districts put to the test - The Sacramento Bee via The Modesto Bee - "Experts say these intensive treatments are the only technique proven effective in giving autistic children the skills they need to live independent lives...Yet, with the state's autistic population doubling in four years, the success of these lessons and their high costs -- as much as $60,000 a year per child -- threaten to overwhelm school districts already struggling to balance budgets."

►January 4, 2004 - 'Epidemic' of autism: Parents turn to alternative cures as number of cases skyrockets - Oakland Tribune - "THE day care center workers first noticed the problem with Kaleb...At the Jewish Community Center in Palo Alto, a child's piercing scream filled the air. The other children rushed over, concerned and alarmed. Their classmate sobbed indignantly: Someone had stepped on her hand...Only Kaleb, nearly 3, was unfazed. He continued to sit by himself, as usual, preoccupied with carefully lining up toy cars in a pin-straight row."

►January 5, 2004 - Update 2 - Repligen autism treatment not effective in trial - Reuters

►January 5, 2004 - Phase 3 Study of Secretin for Autism Fails to Meet Dual Primary Endpoints - Development of Secretin for Schizophrenia to Continue - Repligen Press Release via PRNewswire-FirstCall via Yahoo!

December 29, 2003 - January 4, 2004

December 21, 2003 - Serious mind games - Parents of autistic children face years of intensive exercises and structured play with their kids in an effort to unlock abilities that seem trapped inside. New research suggests that diagnosis and treatment has to come early in life to be fully effective. - The Times-Picayune via www.nola.com

December 30, 2003 - 'Unlimited Potential' program offers hope - New therapy surfaces in the treatment of autism, multiple sclerosis, Parkinson's disease and brain injuries. - Northwest Indian Times

December 30, 2003 - Bill would help autistic kids - Proposal would tack surcharge on fines for drunken driving - Rocky Mountain News

December 30, 2003 - In-Home Autism Program Eliminated - www.wbay.com - "Three hundred-fifty families across Wisconsin are looking for backup since a Fond du Lac clinic they relied on for their children is no longer an option. After the first of the year, the State is cutting back funding for an in-home therapy program for autistic children."

 

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