Posted Sept. 15, 2002
Autism
rates soaring
Incidence of disability rises across region
By Kathy Walsh Nufer
Gannett Wisconsin Newspapers
APPLETON Twelve-year-old Michael Raith cooks every Thursday in
summer school. He cannot speak, but gladly takes his turn stirring,
preheating the oven, flipping pancakes and setting the table for a
feast.
This reinforcement of life skills is one of the things his
mother, Terri, likes best about the Appleton Area School Districts
programming for children with autism.
When the Raith family relocated to the Fox Valley in 1994, she
and her husband, Greg, chose to live in Appleton largely because of
what they had heard about the school districts autism program,
which enrolled about 30 children at the time.
As Appletons reputation spread, more families moved in. The
rapid rise in what was once a low-incidence disability also caused
enrollment to grow.
Today Appleton serves 70 pupils with autism, evidence of an
epidemic in identification across Wisconsin and the United States.
Berttram Chiang, a University of Wisconsin-Oshkosh
special-education professor, who heads a research team studying
special-education identification, said that while other disabilities
have remained fairly level in recent years, autism has risen
consistently.
Autism is a complex neurological disorder that affects
individuals in the areas of social interaction and communication. It
is a spectrum disorder, meaning symptoms can occur in any
combination and in varying degrees of severity.
Terri Raith knew something was not right with her third child
when Michael was an infant.
He just didnt give me eye contact when I interacted with him,
she recalled.
At age 4, after early-intervention and early-childhood program
placement, Michael got a label. But the Raiths, like many other
parents, received no prognosis of what he would be able to learn.
Nonverbal with cognitive delays, Michael communicates with
pictures to express his choices to eat, drink or use the bathroom.
He likes playing computer games, loves the TV Weather Channel and
bobs his head to just about any kind of music.
Despite difficulties epilepsy and grand mal seizures that
started in first grade, aspiration pneumonia, and years of
regulating medication Michael continues to progress and the Raiths
have learned to be grateful for every small gain.
While autism remains something of a mystery, the explosion in
identification has become a public health issue, said Paul Shattuck,
Autism Society of Wisconsin board member.
In 1993, fewer than 400 children were identified statewide. By
1996, Shattuck said, there were 669 children in state public schools
with an autism diagnosis. By last December the number had grown by
286 percent to 2,581.
Shattuck hopes to convince state legislators to conduct an
inquiry into autisms growing prevalence, and determine how state
and local agencies can become better prepared to deal with it.
Sara Spoerl, a parent of two children with autism and executive
director for ASW based in Appleton, said that when her oldest child
was diagnosed eight years ago, the U.S. autism rate was one in
10,000 people.
Today, the Centers for Disease Control has put the rate at one in
250, Spoerl said.
And thats a conservative estimate for the United States. This
is not over-identification. This is real, and other countries are
seeing similar increases.
Whether the cause is genetic or biomedical is the subject of a
heated debate, Spoerl said, with childhood immunization reactions
some believe too many vaccines are given too quickly among the
suspects.
Regardless of the cause, children like Michael Raith need
services, and services for children with autism are among the most
expensive.
Many require an aide, plus speech, occupational and physical
therapy and behavioral interventions. A number also have medical
needs.
Concern over growing special-education costs and enrollments led
the state Legislatures Senate and Assembly Education committees to
ask for the UWO study.
Chiang and his team will look at whether new state
special-education eligibility rules, updated in July 2001 after no
change in nearly three decades, have had an impact on the number of
children identified with a disability and the number determined to
need special-education services.
It also will look at parent complaints and litigation.
Chiang said baseline data gathered for the past seven years shows
Wisconsins special-education enrollment for ages 3-5 has grown a
cumulative 11 percent, while ages 6-21 has grown 23 percent.
Cognitive, emotional and low-incidence disabilities have remained
relatively flat, Chiang said, but autism and another category OHI
(other health impaired, including attention deficit/hyperactivity
disorder) are on a steep incline.
Learning-disabilities totals, which rose at an alarming rate for
years, have leveled off somewhat in Wisconsin but are still high, he
said.
Chiang hopes to see their number drop with meaningful education
reform.
A large percentage of LD children may be better dealt with by
more effective early-intervention programs, particularly in
reading, Chiang said.
Chiang and fellow professor Craig Fiedler, principal investigator
in the study, noted that their data analysis shows districts with
the highest socio-economic status have the lowest percentage of
children qualifying for special-education services and vice versa.
Yet some districts special-education populations grow because
they are viewed as specialists in certain disabilities, like
Appleton with autism.
Spoerl said she moved to Appleton last summer hoping to gain
easier access to more services for her children and battle less with
school personnel. She said Appleton staff members are often ahead
of me with ideas to implement. My kids are flourishing.
Terri Raith, a part-time educational assistant in Appletons
autism program for two years, agreed.
The Raiths collaborate with school staff and a private therapist
who comes into their home to work with Michael on such functional
skills as unloading the dishwasher and making snacks.
I tell them what we are doing here at home and they incorporate
it at summer school, Raith said.
Michael, who just completed sixth grade at Berry Elementary
School, has benefited greatly from being around other children, his
mom said.
He likes being around lots of activity and all the kids, even
though he cant talk back, and I think he does try to model himself
after them. Those interactions help him stay more in touch with the
world than just living in his own.
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