For those of you who are interested in follow-up on reports of vaccine-associated fibromyalgia  (see http://www.vaccinationnews.com/DailyNews/September2001/RoleVaxArthLup&Fibro.htm) to the VAERS database (reports received from mid 1990 to the end of 2000), here is what I have found so far (numbers may be low because I left out some that I thought were repeats, but may not have been and because it only includes reports using the word “fibromyalgia”):

60 females reported fibromyalgia, meaning between 600 and 6,000 probably actually experienced it. *   Females constituted approximately 80% of those reporting fibromyalgia.  16/60 females, or 27%, reported the onset of the adverse vaccine associated reaction as being 0-1 days post vaccination.

7/60 females, or 12%, reported the onset of the adverse vaccine associated reaction as being 2-3 days post vaccination.

Another 4/60, reported onset as occurring between 4 and 7 days post vaccination.

A total of 27/60 females (45%) had their symptoms start within a week of vaccination.

16/60 (27%) had no information on when onset occurred.

12 males reported fibromyalgia, meaning between 120 and 1,200 probably actually experienced it.

3/12 (25%)occurred by the 3^rd day post vaccination.

5/12 had no onset date.

A total of around 72 (720 to 7,200) people probably experienced fibromyalgia as at least one of their symptoms post vaccination.

23 (230 to 2,300) said they were “disabled”.  Another 21 (210 to 2,100) said they had not “recovered”.  (Many others were not followed up on, so it was unknown whether or not they had recovered.)  This brings the total of people with vaccine-associated fibromyalgia known not to have recovered to 44 (440 to 4,400).

Hepatitis B vaccine, received alone, was by far the most frequent vaccine associated with fibromyalgia at 33.  FLU vaccine, MMR, TD and Rubella, also usually received alone, accounted for most of the others. – Sandy Mintz

*Ranges are based on under-reporting estimates of 90-99%.

 

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