How
one mother fought to find a cure for her son
by ROSALIND RYAN, femail.co.uk
ong car journeys with young
children - full of endless questions, chatter and games of I Spy - leave
many parents with a headache.
But until recently mum Helen Bennett positively longed for her little
boy to behave just like that.
Instead Tom, five, would spend all his car journeys - and most of his
days - in total silence.
He was locked in his own world, unable to engage properly with life
around him due to a form of autism called Asperger Syndrome.
The devastating symptoms affected almost every area of his life. At
nursery as other children played he would sit alone, engrossed in his
own thoughts and obsessively lining up his toys.
But in the past six months all this has changed. Despite being
told by doctors that her son's condition was incurable, Helen has found
a treatment has improved Tom's condition beyond recognition.
Here we present the story of how a new treatment has improved
Tom's Asperger Syndrome. ______________________________________
When their little boy was born, Helen and Paul Bennett were
overjoyed.
But he was immediately put on antibiotics to protect him from a virus
he had picked up in the womb and as he grew his ill health continued.
'As a baby, he was always vomiting and seemed to pick up every virus
that was going,' says Helen, 38.
His sleeping patterns were also erratic. For the first two years of
his life, he would only sleep for two or three minutes at a time before
waking. When he reached the age of three, this pattern reversed and he
began sleeping excessively in the afternoons. As he grew older, Helen
and Paul began to notice other oddities in Tom's behaviour. He did not
seem quite like other children.
'The most distinctive sign was that when he got excited or was
concentrating on something, he would flap his arms quickly,' says Helen.
World of his own
Tom also became vacant at times, disappearing into a world of his
own. He also began shaking involuntarily and had terrible temper
tantrums over things that 'normal' children would not react to.
Helen's friends, family and even her health visitor told her she
should not be worried about Tom's behaviour. It was often dismissed as a
mannerism that he would grow out of, but Helen was convinced that
something was not right with her son.
The first person who agreed with her was Tom's nursery school
teacher. She had worked with autistic children before and suggested that
Helen take Tom to her GP to be tested for the condition.
Frustratingly for Helen and Paul, their doctor also said they should
not worry about his behaviour, but at their insistence, he referred them
to a specialist. After assessing Tom, the specialist made the diagnosis
that Tom was suffering from Asperger Syndrome.
The condition is a form of autism, a spectrum of developmental
disabilities that affects the way a person communicates and relates to
the people around them.
Asperger Syndrome is on the lesser end of the spectrum. This means
that sufferers have some of the symptoms of autism - such as difficulty
forming relationships, problems with communication and a love of
routines or set patterns - but they are not as severe as those forms on
the other end of the spectrum who can also have learning disabilities.
It is not known what causes Asperger Syndrome, but there are a number
of theories that it could be triggered by a physical factor - such as an
illness - that affects brain development.
No cure
Although many sufferers can eventually be taught how to communicate
with others Helen was told there was no known cure for the condition.
'It was absolutely devastating,' says Helen. 'Nobody wants an
autistic child - the word autism conjures up images of an emotionally
detached child banging their head against a wall. Who wants that for
their child? I felt terrible.
'We always thought that Tom would be like us; sociable and outgoing
with lots of friends, but when we were told he had Asperger Syndrome, we
realised that we had a son who wouldn't want to do that and who would
never really be like us.
'There was no history of autism in my family so I had no idea of what
to expect. Doctors and specialists kept telling me it was mental illness
with no cure. We just had to learn to live with it.'
Helen had to come to terms with the idea that her son would never go
on to form the close relationships she herself had enjoyed as a child.
She also had to accept that he might never tell her he loved her and
would appear to be completely indifferent to her feelings.
Helen began doing her own research into Asperger Syndrome. The more
she learnt, the angrier and more frustrated she became.
'The child development specialist told me that Tom might get bullied
when he went to school and would find it difficult to make friends,' she
says. 'I began thinking that I didn't want this for my son and was
determined to find something that could help him.'
Diet
By chance, one of Helen's friends happened to attend a seminar on
treating Asperger Syndrome and autism through diet. The doctor giving
the seminar, Dr Jean Munro, ran a clinic for treating children with
behavioural disorders in the town where they lived, Hemel Hempstead.
After just one visit to see Dr Munro at the nearby Breakespear
Hospital Helen felt she had found the answer to Tom's illness.
Dr Munro believes that autism and Asperger Syndrome are caused by
damage to the bowel. Her theory is that giving children antibiotics in
the first year of their lives - or during pregnancy - damages the lining
of the bowel, making it more porous.
This damage affects the way people with autism digest their food.
Ordinarily, the body breaks down certain proteins in our food into
components called peptides. These peptides are then broken down into
smaller particles that can easily pass through the wall of the
intestines.
But because it is thought antibiotics can cause bowels to become more
porous, their intestines absorb the peptides before they have been
broken down properly.
These peptides then pass through into the bloodstream, damaging the
brain and causing the symptoms
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Even Santa couldn't keep him
awake - Tom's condition
caused him to fall asleep
at inappropriate times!
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of autism.
Some of these peptides mimic the drug morphine, so a child suffering
from autism would be expected to have high levels of this morphine-like
chemical in their bloodstream.
'Tom had been given antibiotics almost continuously for the first six
months of his life so it all started to make sense to me,' says Helen.
'A urine test then confirmed that he had high levels of this morphine in
his blood. This accounted for his high pain threshold, unusual sleep
patterns and other symptoms - it felt like we had found a 'cure' for
Tom's condition.'
Sensitivity
The majority of these peptides have been identified as coming from
gluten, sugar and dairy, so Dr Munro recommends her patients eliminate
these foods from their diet. A further sensitivity test may then be
required to identify any other possible food triggers.
Helen started Tom on the gluten, dairy and sugar free diet in July
this year, one month after his first visit to the clinic. In just four
months, Helen has been astounded by the change in his behaviour.
She says he is becoming generally more aware of what is around him
and has started taking an interest in other people - such as by asking
them questions. He has also started remembering more information and can
recall it more easily than before.
Another symptom of autism is dark circles under the eyes, thought to
be caused by the child's inability to absorb the proper amount of
nutrients from their diet. Tom also suffered from these circles but
since starting the diet, they have virtually disappeared.
The biggest change in Tom's behaviour has been his interaction with
other children. Helen says, 'Before starting the diet I noticed that
other children would be having conversations but Tom wouldn't be joining
in. He was always too involved in his own activities, such as
obsessively lining up all his toys in neat rows.
'He never used to have one special friend but now he has got a big
group of friends that go round to each other's houses for tea. He has
even got a little girlfriend!'
Tom will have to follow the diet for the rest of his life to control
the symptoms of his Asperger Syndrome, but this is no different to
somebody with a dairy or gluten allergy who has to cut these foods out
of their diet. He may also need additional sensitivity tests to identify
any other foods that trigger his condition.
Change
Since the change in Tom's behaviour, Helen and Paul now feel they
have the chance to get to know their 'real' son, but they are not yet
making any big plans for his future life or career.
Tom's condition has already improved by 80 per cent and Helen and
Paul hold out hope that he may one day completely recover. If his
behaviour continues to improve as dramatically as it has done so far,
this could be a real possibility.
'I noticed a difference after just two days on the diet and it was
really dramatic,' says Helen. 'Normally on long car journeys Tom and I
would sit in silence as he was absorbed in his own world.
'But this time we were driving and he said 'Look Mummy, there's a
tree' and I almost crashed the car! It was the first time he has ever
taken an interest in his surroundings like that and it has given me real
hope for the future.'
To find out more about Asperger Syndrome and the diet that Tom is
following, click on the link below.
Autism and elimination diets
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