PRESS RELEASE
For Immediate Release
Wednesday, November 20, 2002
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Citizens' Council on Health Care
1954 University Ave. W., Suite 8
St. Paul, MN 55104
http://www.cchconline.org ======================================CONTACT:Twila Brase, R.N., President
PHONE: 651-646-8935
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CCHC REPORT PROFILES THE PUBLIC'S RESPONSE TO MINNESOTA'S
PLAN TO COLLECT PRIVATE MEDICAL RECORD INFORMATION
(St. Paul, Minnesota) - Members of the public are greatly opposed to
state data collection of private medical record information,
according to a report released today by Citizens' Council on Health
Care (CCHC).
The report, "State Collection of Private Medical Information: Public
Response to Minnesota's Proposed Rule" finds nearly 94 percent of the
1,086 public comments on the rule opposed to the state health
department's proposal to collect individually-identifiable medical
record data without patient consent.
"The public understands that state collection of private information
violates their rights as citizens and as patients. They were not
swayed by the state's arguments of 'public good' benefits," says
Twila Brase, president of CCHC, who authored the report.
The 28-page report provides background on the rule, as well as many
pages of direct quotes from supporters and opponents of the rule.
"We're profiling the public's response, so everyone knows where the
public really stands on this issue. The public had something to say
to the judge and we didn't want the public's voice to be lost. We
wanted to let them speak in their own words, and we wanted a chance
for them to be heard--both the supporters and the opposition."
Members of the public, including individuals, elected officials,
health insurers, health care practitioners, organizations,
corporations, and various public health officials provided email,
testimony and letters to the Minnesota Department of Health (MDH)
and Judge Allan W. Klein, the administrative law judge who held a
hearing on the rule October 4, 2002.
The hearing was held after CCHC's email alert brought in hundreds of
letters requesting a hearing on the rule. By law, only 25 requests
are necessary to require the department to hold a hearing on the
proposed rule.
"Everyone has a stake in the judge's decision. A report on the
public's response brings more definition to the discussion. We also
thought it was important that the public have a chance to read the
stated rationale of the health department, and their response to the
concerns of the public," explained Brase.
Judge Klein took public comments through October 24, 2002, and
letters of rebuttal through October 31, 2002. By law, he must render
a decision by December 2, 2002. If approved by the judge, the
Governor has the authority to veto the rule. The legislature can also
address the enabling law in the 2003 session whether or not the rule
is approved.
"How private medical information will be treated in Minnesota is a
key decision for the public. Judge Klein's ruling could determine how
the public will view the health care system and state government far
into the future," says Brase.
The CCHC report can be found at their web site:
http://www.cchconline.org/pdf/data_rules.pdf
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organization located in St. Paul, Minnesota
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1954 University Ave.W., Suite 8
St. Paul, MN 55104
651-646-8935 phone
651-646-0100 fax
http://www.cchconline.org**************************
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