|
|
|
|
|
|
|
|
|
AUTISM FIRST STEPS
AUTISM DAILY NEWSLETTER
Thursday, November 22, 2001
Happy Thanksgiving!
INDEX:
* Iowa Has A New Co-Ambassador
* The Los Angeles NBC affiliate (Channel 4) will be
featuring pieces on
Cure Autism Now this Thursday and Friday.
* New Jersey Parents
* Autism Conference
* Dr. Eric Fombonne says, "prevalence of
autism is 68 per 10,000 or 1-147. "
* Carbone Workshop - Portland, OR Nov 26-28, 2001
Seats Filling Fast
* Single
Doses of Vaccines
************************************
Iowa Has A New Co-Ambassador
News Release:
Appointed November 2001 Joyce Minor upon completing courses and paperwork was
appointed as the new Iowa Autism Co-Ambassador. She was appointed for many
years of ongoing dedication to the autism community in Iowa and worldwide.
Joyce Minor has made a difference in many children's lives as she advocates for
better treatment, therapy, diagnostic, and educational options, as wells
legislation, support, resources, and new programs. Joyce has worked along side
the Autism Ambassador in the state of Iowa in Board of Education meetings,
Autism Tours of Iowa meetings, and guest speaks at various events and more.
Iowa Welcomes Joyce Minor as the new Iowa Autism Co-Ambassador.
************************************
The Los Angeles NBC affiliate
(Channel 4) will be featuring pieces on
Cure Autism Now this Thursday and Friday.
On the Thanksgiving 11:00 p.m. news cast (following ER) they will
show a piece on Tito Mukhopadhyay, a 13-year-old boy from India who
struggles daily with the challenges of severe autism. Although nearly
non-verbal, not only can Tito communicate independently, he is a
prolific, talented and published writer.
On Friday, November 23, on the 5:00 p.m. news an interview with CAN
founders Jon Shestack and Portia Iversen will air.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Elizabeth Kilpatrick
Director of Development
CURE AUTISM NOW
ekilpatrick@cureautismnow.org
5455 Wilshire Boulevard, Suite 715
Los Angeles, CA 90036
tel:(323) 549-0500
fax:(323) 549-0547
www.cureautismnow.org
************************************
Dear New Jersey Parents:
I am asking you to make a few phone calls today to help the Autism legislation
to provide $5.7 million over the next five years for autism research in the
State of New Jersey, which is in great danger of being lost.
During the past year New Jersey Cure Autism Now and a number of other groups
have been working to pass legislation embodied in New Jersey State Senate
Bill S1133 which is titled "The Governor's Council for Medical
Research and
Treatment of Infantile Autism shall be funded annually at $1.5 million."
This legislation has passed four committees and now is in the office of the
Senate President and Majority Leader, John O. Bennett. He has been
called many times but still refuses to post this legislation for a vote in
the Senate on November 26, that will continue the $1.5 million funding over a
period of five years.
Please call Senator Bennett at 732-842-4900 to ask him to post the Legislation
# S 1133 Infantile Autism research on Monday November 26.
SUGGESTED TELEPHONE SCRIPT
Please ask to speak to Karen (his legislative aide): Say to her something like:
"I have an autistic child who is __ years old and it is a major problem
for me and my family. Please ask Senator Bennett to allow a vote on Senate Bill
S1133 to give annual funding of $1.5 million for medical research on autism
over the next five years."
If she gives you a lot of argument about it costs too much, simply say
something like "There are about 15 thousand autistic people in New Jersey
and about 5,000 of them cannot even speak... This affects more than 100,000
close relatives ... parents, grandparents, brothers and sisters... and costs
the state about $500 million each year in social services I strongly think that
.. the State of New Jersey should provide serious funding to help conquer this
terrible disability."
If Karen is not available leave a message and call again to speak to her
personally. Tell her that you want Senator Bennett to post the autism
Legislation S 1133 for a vote in the Senate on November 26 2001.
P.S. Senator Bennett's email address is: SenBennett@njleg.state.nj.us and his
fax number is 732-842-5326..
*********************
Sincerely yours
Robert Lightbourne
41 Essex Avenue
Metuchen, NJ 08840
Tel: 732-548-1612
Fax: 732-494-2469
************************************
Autism Conference
The Center for Autism and Related Disorders (CARD)is pleased to conduct a
day-long conference, entitled "Effective Treatments for Autism", from
9:30am-5:00pm on November 30th, 2001 in San Diego. Topics will include
Autism and Diagnosis by Doreen Granpeesheh, Ph. D., as well as presentations
discussing ABA, DTT, Visual Alternatives, Socialization, and Advanced
Programs.
The cost is $20.00 per person. If you are interested in attending, please
contact
the CARD San Diego office at(858) 278-6603.
************************************
Dr. Eric Fombonne says,
"prevalence of autism is 68 per 10,000 or 1-147. "
At
the recent IMFAR (International Meeting For Autism Research) Conference, noted
autism epidemiologist Dr. Eric Fombonne stated in his presentation that based
on 50 previously published epi studies of autism, the prevalence rate of autism
had been established, by his work and others, at between 2 to 10 per 10,000...which
is to say as low as 1-5000 or as high as 1-1000 (Fombonne's own past studies
reported the lower end of the prevalence spectrum). In a monumental statement
at IMFAR, Fombonne now claims, as a result of his most recent work, that the
prevalence of autism is 68 per 10,000 or 1-147.
Fombonne's latest work shows that the prevalence of autism has
increased between 600% and 3400% (1-1000 down to 1-147 = 600% increase) and
(1-5000 down to 1-147 = 3400% increase). Using the middle ground of 5 per 10,000
or otherwise stated as 1-2000, the most recent epi study by this most
conservative autism epidemiologist would now suggest a 1300% increase in the
prevalence of autism over a 25 year period, or on average, a doubling of the
prevalence of autism every two years between 1976 and 2001
************************************
Carbone Workshop - Portland, OR
Nov 26-28, 2001 Seats Filling Fast
Seats are
filling but there are still many spots available for the workshop,
"Teaching Communication Skills to Children with Autism and Other
Developmental Delays" with Dr. Vince Carbone!
A spot cannot be guaranteed if you show at the door so you may want call
503-282-3328 or email feator@agora.rdrop.com to reserve a spot.
For $150 Non-Oregon, $100 Oregon Resident you get a 141 page manual and 3 days
of intensive but enlightening instruction filled with tons of great
video examples.
For more information see: http://feator.org/carbone
Questions? Email feator@agora.rdrop.com or call 503-282-3328 (message
system)
Kathy Harris, Parent and co-President FEAT of Oregon
http://feator.org http://kathyandcalvin.com
************************************
Single Doses of Vaccines
Parents and Professionals if you are interested in Single
dose vaccines you should have the doctor should call the manufacturers and ask
for:
Measles: # NDC00064709-00,
single dose
Mumps: #NDC00064753-single dose
Rubella (called Meruvac II):
#NDC00064747-00, single dose
************************************
Autism Awakening, Autism FIrst Steps Newsletter,
or any staff do not endorse any individuals, groups or programs.
References regarding programs, meetings, resources, research, opinions,
treatment, etc., should not be interpreted as an indication of
endorsement. They are provided for informational purposes only. This is
an attempt to keep the nation advised to all diagnostic, treatment, therapy,
educational,
options available as well as legislative autism updates and more.
To View
Newsletter Policies they are located at the Newsletter
Website:
Direct Link:: Autism
First Steps Newsletter
http://autismawakeninginia.bizland.com/autismfirststepsnewsletter/
To have
friends, Family, or professionals join:
1. they can go to the above link
2. They can go to the Newsletter Group page located at:
Direct Link::
Yahoo!
Groups : AutismFirstStepsAutismNewsletter
http://groups.yahoo.com/group/AutismFirstStepsAutismNewsletter
3 Send a e-mail to AutismAwakening@aol.com and ask to be subscribed to
the free online daily newsletter
Visit one of the largest websites Commited to bringing you the latest in news,
options, and techniques, and more on Autism located at:
Direct Link:: Autism Awakening 4 Kids
www.AutismAwakening.com
To Submit a
story, alert, readers post, or advertisement please e-mail AutismAwakening@aol.com
To be removed reply to this e-mail and requested to be removed from the list.
To
unsubscribe from this group, send an email to:
AutismFirstStepsAutismNewsletter-unsubscribe@yahoogroups.com
Your use of
Yahoo! Groups is subject to the Yahoo!
Terms of Service.
ALL
INFORMATION, DATA, AND MATERIAL CONTAINED, PRESENTED, OR PROVIDED HERE IS FOR
GENERAL INFORMATION PURPOSES ONLY AND IS NOT TO BE CONSTRUED AS REFLECTING THE
KNOWLEDGE OR OPINIONS OF THE PUBLISHER, AND IS NOT TO BE CONSTRUED OR INTENDED
AS PROVIDING MEDICAL OR LEGAL ADVICE. THE DECISION WHETHER OR NOT TO
VACCINATE IS AN IMPORTANT AND COMPLEX ISSUE AND SHOULD BE MADE BY YOU, AND YOU
ALONE, IN CONSULTATION WITH YOUR HEALTH CARE PROVIDER.