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June 14, 2001, doctors at a hospital in Greenville, N.C., undertook what for
transplant experts was a routine operation, removing a healthy kidney from
one person and placing it another.
The procedure, performed nearly 5,300 times last year in the United
States, is widely considered the safest transplant operation. Complications
in kidney transplants are considered extremely rare, with only 3 of 10,000
donors dying. Recipients, aided by powerful anti-rejection drugs, enjoy
lives free from waiting lists and dialysis machines. Donors, frequently
family members, express awe at the knowledge that their gifts mean so much.
It is what my mother, no doubt, prayed for as she underwent surgery on
June 14 in Pitt County Memorial Hospital in North Carolina. She would give a
kidney to her mentally retarded son, who had lost one organ as a sickly
toddler and seen the other start to fail in middle age.
Those who heard about the case marveled at its emotional weight, and at
the science that made it possible.
A mother one at age 69, no less would give her most fragile child
life a second time.
Yet the outcome of the operation quickly doused such optimism. It left
those involved wondering about the decisions, medical and personal, that had
led up to the surgery.
Today, my brother Joe has the pink cheeks of a successful kidney
recipient. This summer, he will take that Caribbean vacation that he had
talked about so often before the surgery.
Today, my mother, Barbara, lives in a nursing home, paralyzed on the left
side as a result of an extensive stroke that she suffered a day after the
surgery. Her brain, so damaged by an errant clot that nearly killed her, has
mended enough to allow her a few bursts of words. Most mean nothing. She
endlessly repeats, "Bar-Bill," a combination of her name and my father's.
Yet she can sing snatches of favorite Rodgers and Hammerstein songs.
Hours after the surgery, Mom had talked of going home early even to
resume her active retired life in New Bern, N.C.
The urologist who evaluated her as a donor candidate described her in
medical records as a "very pleasant, healthy- appearing older white female
in no apparent distress." At that point, he told her of the risks of
surgery, which included stroke.
When we, her five other children, questioned her decision "Wasn't she
too old?" she reassured us. And we trusted her, of course. For she was not
only Mom, she was Barbara Tarrant, registered nurse, who began her career
tending to polio patients alongside Jonas Salk in Pittsburgh and in
retirement helped set up a mission hospital in Haiti.
We, her five other children, were busy leading lives across the country
when Joe's kidney started to fail. Four of us shared his blood type, meaning
we could take the next step in a complicated series of testing to determine
a match.
Yet my mother would not hear of it. "It's my duty," she told me.
We trusted her, and we trusted the medical profession that she had served
her entire life.
And what was the transplant team thinking in approving an elective
surgery on a 69-year-old?
This question fueled my anger after Mom's stroke, and the anger displaced
the guilt I felt for not stepping forward first.
I began to dig. Telephone calls, records requests, Internet searches. I
exhausted whatever sources of information I could in search of a definitive
rule that said donors should be knocked out of contention at, say, 65.
In the end, I found no universal standard that governs all 245 medical
centers in the United States that perform kidney transplants.
At U.C.L.A., it is 65, at New York University, 70, and at
Fairview-University Medical Center in Minneapolis, 80.
"I don't think there's a straight-up answer," says Dr. Carl Haisch, the
North Carolina surgeon who performed Joe's transplant at Pitt County
Memorial. He remains perplexed at the outcome with Mom because post-stroke
tests show no carotid blockages.
Was her age a factor? Dr. Haisch says he isn't sure, and he hasn't ruled
out accepting future older donors.
Today, Joe has moved in with his adored older brother, the teacher and
basketball coach. He goes to every game, talks nonstop about the latest ESPN
headlines and carefully counts the pills that he must take to maintain a
healthy kidney.
He grows quiet when we talk about Mom.