Parents fight hospital over care of preemie
Officials contact county after folks refuse vaccinations, federal handouts
Posted: June 28, 2002
1:00 a.m. Eastern
By Ron Strom
© 2002 WorldNetDaily.com
A couple took their 4-month-old baby boy home from
the hospital this month after battling both hospital officials, who urged
them to "unplug" their son's life-support system, and social workers, who
considered taking custody of the child because the parents refused to take
government handouts to pay their medical bills.
Last January, Joshua and Noelle Goforth were on a ski vacation in
Colorado when their son, William, arrived more than three months premature.
Weighing in at just 1 pound, 4 ounces, William Reid Goforth immediately was
put on life-support systems. Doctors at Memorial Hospital in Colorado
Springs then recommended pulling the plug on little William.
"They were of the strong opinion that we discontinue life support," said
Joshua Goforth, 22. "The doctors said things like, 'He's trying to die' and
'It's not fair to him'" as they argued for ending the baby's life.
The Goforths, however, decided to keep their first-born son alive, a
decision, Goforth says, that "stressed out" the medical staff at
Memorial Hospital.
At 7 days old, William had an EEG test to measure brain activity. The
doctors used the results of the test indicating the baby had little brain
activity to further argue for removing him from the machinery keeping him
alive. The Goforths remained resolute while researching the issue of "brain
death." Later, they found that, in Goforth's words, "the usefulness of EEG
readings of preemies is practically nil."
After his decision to continue his son's life, says Goforth, the staff at
the hospital indicated they would no longer care for the baby.
"They sort of said, 'We can't in good conscience take care of him,'"
Goforth told WorldNetDaily.
One of the hospital's reasons was that the Goforths refused to take
advantage of the "dozens of government programs" that were offered to them.
Since the Goforths had no health insurance coverage, they were considered
"self-pay" customers, and Goforth figures the hospital didn't want to take
on that kind of liability.
Besides the hospital staff, some of the Goforths' friends also questioned
their decision not to accept government help with the cost of keeping the
baby alive. But Goforth doesn't believe it's the government's role to pay
people's hospital bills.
"The liability lies with me," explained Goforth. "It's not the
government's role to provide for these needs. There are consequences to the
government stepping into that role."
Despite the hospital's skepticism, and thanks to effective fund-raising
efforts, Goforth is $10,000 away from paying off his bill to the facility.
Though the total debt is approximately $124,000, the hospital agreed to
accept just $50,000 $40,000 of which has now been paid.
At 10 days old, William was transferred to
Methodist Hospital in San
Antonio, Texas, the Goforth's hometown. Before the trip, another EEG was
done, this time indicating definite brain activity.
Goforth reports that the first few days in San Antonio, where William had
heart surgery to close a valve, went surprisingly well. Before the surgery,
however, Goforth heard a replay of comments he had received at the Colorado
hospital.
"It's not right to keep this baby on life support," Goforth quotes Dr.
Melvin Baden as saying. Baden is the head of the neonatology unit at
Methodist Hospital. In a meeting with Baden and another doctor, Goforth was
told he was "playing God" and "making a big mistake" by continuing to keep
the baby alive. The "heroic measures" being used simply were not justified,
the doctors advised.
The heart surgery, however, went well, and the Goforths stuck with their
decision to leave little William on life-support.
The healthcare professionals continued their campaign to end the baby's
life, discussing the option of scheduling a hearing before the hospital's
ethics committee.
"I'd never heard of an ethics committee," Goforth said. "That scared me."
The committee was to consist of hospital staff, a chaplain, the baby's
parents, social workers and a pastor. While such a committee's decisions are
not binding, if the Goforths were to go against it, that fact could be used
later during any court proceedings.
Said Goforth, "I perceived the committee as a threat. Dr. Baden had a
'Dr. God complex.'"
An ethics committee was never organized because shortly after Baden
brought up the possibility, William's case was transferred to another
doctor, Amil Ortiz, M.D., whom Goforth described as "pleasant to work with"
and "very kind."
About a month later, however, Ortiz rotated out of the hospital and Baden
again became the doctor supervising William's care.
When William turned 2 months old, hospital staff asked that his parents
sign the approval for him to get routine vaccinations. The Goforths decided
that they would wait until their son was discharged to get the vaccinations,
when he would be larger and stronger.
"It was not necessary to put additional strain on his system," Goforth
commented.
Hospital staff was more than persistent in wanting to get the OK to
vaccinate the baby. Although Goforth told nurses several times that he would
not give approval, the father's wishes were not noted on William's chart.
Goforth says Baden told Noelle, 25, "Your baby must be vaccinated,
whether you consent to it or not. It's a state requirement."
Baden, according to Goforth, became so upset about not receiving approval
to vaccinate the baby that he nearly lost his composure and told Goforth he
would turn him into Child Protective Services.
Goforth's response: "You will be hearing from my lawyers."
The other issue the hospital pursued as in Colorado was the matter of
payment for services.
Goforth made it clear to hospital workers that he would be making
payments against his debt and that he would, eventually, pay off whatever
bill he accrued. The hospital, Goforth says, set up a meeting to discuss
finances. Present were two social workers, a case manager and two other
hospital staff members. Goforth brought along his attorney, which proved to
be a wise choice.
According to Goforth, "the social workers assumed that I would not be
able to provide financially for William in the future, because of the debt
burden I would be shouldering." They told him, therefore, that they were
going to have to contact CPS.
One of the social workers, Jan Woodridge, became extremely upset with
Doug Phillips, Goforth's legal counsel, and left the meeting "with a
strained smile," according to William's dad. Gorforth says Woodridge
promised to contact Phillips before filing a complaint with CPS a promise
she did not keep.
Neither Woodridge nor Baden returned multiple calls from WorldNetDaily
requesting comment.
Goforth claims there were several "false allegations" in the CPS report
and that issues other than the vaccination matter were included.
At the meeting with Kira Schumm of the Bexar County CPS, Goforth again
brought along legal help, this time attorney Jeff Gately. Schumm read from
the report but was not allowed to give Goforth a copy.
According to Goforth, the report claimed William was blind, unable to
bottle feed and "severely brain damaged," none of which is true, Goforth
contends. What was worse, he says, was the "character assassination" portion
of the complaint.
"They claimed we were part of a 'cult-like' patriarchal organization,"
said Goforth, "and that we believed women should not have opinions regarding
[William's] care."
Goforth also said the report claims he and Noelle refused to divulge the
location of their church another lie, he maintains.
The county officials found no reason to pursue the case, and it was later
closed.
William eventually was vaccinated but not until just before he was
discharged from the hospital on June 3, just as his parents had requested.
Despite the hurdles and burdens the Goforths have endured along with
the stress of having a son with serious medical needs they remain
optimistic about William's future.
"He's doing much better than anticipated," Goforth told WND. "Hospital
staff say he's a miracle."
At this point in William's short life, Goforth commented, the medical
experts no longer bring up "quality of life" issues.
William recently returned home from Houston after traveling there for two
eye surgeries. His father says the operations meant to create an
environment in which a detached retina can reattach itself were
successful, but that it's unclear as yet how good the baby's vision will be.
The financial challenge facing the Goforths is enormous. While $120,000
has been raised toward hospital bills much of it through the efforts of
Vision Forum, Joshua's former employer he expects a total bill of
around $1 million for expenses incurred since moving William to San Antonio.
"I'll probably be paying off the bill for the next 30 years," speculated
Goforth, who owns his own graphic and Web design business.
Those wishing to help with the Goforths' obligation can go to
a
page on the Vision Forum website set up to take donations.
Ron Strom is a news editor
for WorldNetDaily.com.
E-mail to a
Friend |
Printer-friendly version |
|