Mental health problems of children in the community: 18 month follow up
Robert Goodman, professora, Tamsin Ford,
clinical research fellowa, Howard Meltzer,
principal social researcherb.
a Department of Child and Adolescent Psychiatry, Institute of
Psychiatry, King's College London, London SE5 8AF, b Office for
National Statistics, London SW1V 2QQ
In a recent national survey, the prevalence of psychiatric disorder in
children and adolescents in Great Britain was morethan 9%.1
Parents and doctors commonly think that these disordersare
transient, but longitudinal studies show otherwise.2
Wefollowed up children from the national survey to examine
persistencein a large sample of children in Britain.1
The original survey studied a sample of 10 438 British children aged
5-15 years.1 We sent the parents of all children
witha psychiatric disorder (936) and a third of those without a
psychiatricdisorder (3029) a questionnaire. It included the
strengths anddifficulties questionnaire, a well validated measure of
childhoodpsychopathology and its impact on the child. 34
A total of 73% of parents responded; most losses were non-contacts, not
refusals. The response rate was lower among thosewith a child with a
disorder than those without (66% v 76%). Non-respondersat
follow up had had significantly more symptoms initially (analysisof
variance adjusting for initial diagnosis, F=39.9, 1 df, P<0.001:the
mean symptom score for non-responders was greater, by 1.2,than for
responders, matched by diagnosis). Responders' and non-responders'
initial impact scores did not differ significantly. Overall, differentialnon-response will not have led us to overestimate the persistenceofpsychopathology.
The figure shows symptom and impact scores in children initially diagnosed
with hyperkinetic, conduct, emotional, or no disorder.We used paired
t tests to test whether the changes in symptomand impact
scores in children with hyperkinetic, conduct, emotional,or no
disorder were significant. For conduct disorder, neithersymptoms nor
impact changed significantly. Symptoms (P<0.05) butnot impact fell
significantly in children with hyperkinesis. Foremotional disorder,
there were significant falls in both symptomsand impact (P<0.001 for
both), though the follow up scores werestill substantially greater
than in the group with no initialdisorder (P<0.001, independent
samples t test).
Mean symptom and impact scores initially
and at 18 month follow up from the strengths and difficulties
questionnaire, completed by parents, for children with and without
initial psychiatric disorder
We defined "caseness" from the combination of raised symptom (14)
and impact scores (2).3
Caseness at follow up was consideredinformative for only the 86%
(2487/2901) of participants in whomcaseness was congruent with the
initial psychiatric diagnosis.For example, when a child was
initially diagnosed as having conductdisorder solely on the basis of
symptoms reported by a teacher,and when the initial questionnaire,
completed by the parents,described their child as normal, then the
diagnosis (disorderpresent) and the caseness (negative) were not
congruent. So, casenesswas not considered informative at follow up,
since the parent'sanswers to the questionnaire would probably not
change whetheror not the conduct disorder persisted or was resolved.
Similarly,if the initial diagnosis of depression in a teenager was
basedon self reported symptoms (not reported by a parent), the
followup parent questionnaire is unlikely to be
informative.
Caseness criteria at the 18 month follow up were met by 3% (67/2249) of
children who did not initially have a psychiatricdisorder, compared
with 62% (147/238) of children who did (relativerisk 20.7; 95%
confidence interval 16.0 to 26.7). Persistenceat 18 months varied
with initial diagnosis: 36% (25/70) for childrenwho had an emotional
disorder initially, compared with 73% (122/168)for children with
other disorders initially (mostly conduct andhyperkinetic disorders,
sometimes with coexistent emotional disorders)(P<0.001,
2 test).
Childhood psychopathology is often persistent, particularly among children
with conduct disorder and hyperkinesis. Althoughemotional disorders
have a better prognosis than conduct or hyperkineticdisorders, they
are not always benign: their resolution over 18months is far from
complete, and recent work suggests an increasedrisk of similar
disorders recurring in adulthood.2
Everyone in contact with children should take the symptoms of emotional
distress, behavioural difficulty, and hyperactivityseriously, as
they may impair the child's function and developmentand are unlikely
to be transient. This is particularly importantas evidence based
interventions can alleviate distress and minimisethe secondary
handicap that results from disrupted education andimpaired social
development.5
Acknowledgments
Contributors: HM directed the initial survey and the follow up and
discussed the analyses, findings, and draft versions of the paper. RG and TF
were on the steering committee for both surveys. RG performed the analyses while
TF took the lead in drafting the paper. RG is guarantor.
Footnotes
Funding. TF is funded by a Wellcome clinical training fellowship and the
original surveys were funded by the Department ofHealth.
Goodman R. The extended version of the strengths and
difficulties questionnaire as a guide to child psychiatric caseness and
consequent burden. J Child Psychol Psychiatry 1999; 40: 791-801[Medline].
Goodman R. Psychometric properties of the strengths and
difficulties questionnaire (SDQ). J Am Acad Child Adolesc Psychiatry
2001; 40: 1337-1345[Medline].
Graham P. Treatment interventions and findings from
research: bridging the chasm in child psychiatry. Br J Psychiatry
2000; 176: 414-419[Abstract/Full
Text].
ALL INFORMATION, DATA, AND
MATERIAL CONTAINED, PRESENTED, OR PROVIDED HERE IS FOR GENERAL INFORMATION
PURPOSES ONLY AND IS NOT TO BE CONSTRUED AS REFLECTING THE KNOWLEDGE OR OPINIONS
OF THE PUBLISHER, AND IS NOT TO BE CONSTRUED OR INTENDED AS PROVIDING MEDICAL OR
LEGAL ADVICE. THE DECISION WHETHER OR NOT TO VACCINATE IS AN IMPORTANT AND
COMPLEX ISSUE AND SHOULD BE MADE BY YOU, AND YOU ALONE, IN CONSULTATION WITH
YOUR HEALTH CARE PROVIDER.
"A foolish faith in authority is the worst enemy of truth."
-- Albert Einstein, letter to a friend, 1901
"I know of no safe depository of the ultimate powers of the society but the people themselves, and if we think them not enlightened enough to exercise control with a wholesome discretion, the remedy is not to take it from them, but to inform their discretion by education."
-- Thomas Jefferson, letter to William C. Jarvis, September 28, 1820
"What's the point of vaccination if it doesn't protect you from the unvaccinated?"
-- Sandy Gottstein
"Who gets to decide what the greater good is and how many will be sacrificed to it?"