Try calling
any of the major hospitals about autism and and chances are they will
ask, What children? Probe deeper, and more often than not you will
be directed to the Childrens Orthopaedic Hospital, Haji Ali, supposedly
the only centre in Mumbai for autistic children.
However, this hospital only deals with children afflicted with
cerebral palsy. As Dr G S Ranavat points out, We dont treat autism
here as it does not fall under the hospital situation. This is the
reason no medical institution really looks into it.
Autism is an information-processing disorder also known as Pervasive
Development Disorder. It is primarily a brain disorder which causes
people to have difficulty following the same rules of communication and
socialisation that come naturally to others.
Though causes are yet to be identified, research suggests that there
is no single cause. It could be partially genetic and in some cases,
there is speculation on the link between toxins and pollutants in the
environment.
Lack of awareness about the disease often leads to delayed diagnosis,
which hampers the possible progress of the child. Lack of research and
awareness of the disorder manifests itself in the dearth of
infrastructure. There are only a handful of institutions capable of
meeting the requirements of an autistic child.
Reflects Dr Brajesh Udani of Hinduja Hospital, one of the more
well-known doctors working in this field: Awareness has only increased
in the last 10-12 years. The percolation of information from the medical
community to lay persons to the government is bound will take long.
But often the main problem is that hospitals dont seem to have any
specialised infrastructure for autism. Says Dr Santosh Kumar Shetty of
Breach Candy Hospital, What we need is a dedicated centre providing
vocational therapy, speech therapy and other facilities. But sadly, the
priorities of most hospitals lie in areas that generate revenue such as
orthopedics, cardiology, etc.
However, the situation is not as dismal as it appears. Social
organisations are coming together to offer help and support to parents
of autistic children. One such organisation is Forum for Autism, which
in collaboration with Parents Forum for Appropriate Education of the
Child (PACE), organises workshops to spread awareness and guide parents
in dealing with their autistic child.
The Sairam Autism Centre at Sewri, started in 1998, offers facilities
for autistic children which include a special school, a vocational
centre and a national open school, where these children can give their
Std 10 exams. It offers special care, treatment and training along with
assessment facilities and the required therapists. The centre is among
the few in Mumbai offering Caryotype Testing, which tests the possible
presence of the fragile X chromosome that is linked to autism.
Similar schools such as Ashiana Institute for Autism in Andheri, set
up in 1999, offers a great teacher-student ratio, keeping in mind the
one-on-one ratio required by autistic children, says a trustee. There
are also two schools run by PACE, which cater to the lower income
groups.
For more information contact PACE at 6414171 and 2041908.