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India: Johns Hopkins' cancer drug trial under fire

By Subhadra Menon, PhD and Keith Mulvihill

NEW DELHI, Jul 30 (Reuters Health) - A physician in Trivandrum, a city in southern India, is questioning the safety of an experimental drug trial conducted in part by a researcher from Johns Hopkins University in Baltimore, Maryland.

At the heart of the complaint, Dr. V. N. Bhattathiri, associate professor and the head of the clinical radiobiology division at the Regional Cancer Centre (RCC) in the state of Kerala, alleges that clinical trials of an experimental anti-cancer drug, called M4N, have not followed standard procedures of approval for use in humans, and that cancer patients injected with the drug may have suffered harm.

"At least 25 patients with tumors have been injected with M4N...since 1999, and I thought something was wrong when I read a few biopsy reports that said drug injected area(s) show (signs of) carcinoma," Bhattathiri told Reuters Health.

"These patients are poor people, and they or their relatives simply sign papers that say they are prepared to accept any treatment that will make their condition better," Bhattathiri added.

In recent weeks, Johns Hopkins Medical School has been under investigation in the US due to the June death of a 24-year-old American woman who had enrolled in a separate Hopkins asthma trial as a healthy volunteer. Because of the incident, the federal government's Office for Human Research Protections temporarily halted almost all the university's federally funded medical studies involving human subjects. After the short suspension, the university was granted permission to resume the studies on July 23.

As for the study conducted in India, all such trials are routed through the Drugs Controller of India. While the Drugs Controller has kept silent on this issue, Bhattathiri said he has reason to believe that the application for permission to conduct the trials was forwarded only in February of 2001. The trials actually took place in 1999 and 2000, according to Bhattathiri.

A. K. Antony, chief minister in Kerala, has gone on record saying that the matter will be seriously investigated, especially since the reputation of a premier institute is at stake.

In India, Dr. M. Krishnan Nair, director of the RCC, joins Dr. Ru Chih Huang, professor of biology at Johns Hopkins University's Krieger School of Arts and Sciences, as co-principal investigator of the project.

Johns Hopkins University released a statement on Monday saying that they became aware of the allegations regarding a study conducted in 1999-2000 when they appeared in news reports in the India media on July 16th.

"Among these, reportedly, were allegations regarding whether proper informed consent had been secured from patients, whether surgery or other conventional treatment had been delayed because of the administration of the experimental drug, and whether the drug had been properly screened for toxicity before it was administered," according to the statement.

The university notes that a preliminary inquiry revealed that "the study in question had not been authorized by any department of the (Johns Hopkins) University, and confirmed that it had not been reviewed or approved by any of the university's institutional review boards concerned with the protection of human subjects."

"It was determined that because of the level of involvement of the Johns Hopkins researcher in this [clinical drug] trial that it should have been submitted to the institutional review board at Johns Hopkins," said Dennis O'Shea, a spokesperson for Johns Hopkins University, in an interview with Reuters Health.

An institutional review board (IRB) is a panel of experts that examines and advises researchers about prospective drug trials that use human subjects and either approves or denies the protocol, explained O'Shea.

Currently, Johns Hopkins has asked the researcher to "cease all activities related to the study" and "has now appointed a panel of experts who will conduct a formal investigation to more fully develop the facts."

O'Shea would neither confirm nor deny Huang as the principal investigator working on the anti-cancer drug trial. However, a Johns Hopkins Web site lists a pending proposal under Huang's name dated May 2001, for use of a derivative of a chemical called NDGA in a single blind, placebo-controlled study. The goal of the trial is to examine the effect of M4N on advanced oral malignancies.

M4N is a derivative of NDGA, an active principal of "chaparral tea," which is made from leaves of the creosote bush (Larrea tridentata), a common American desert plant. Although chaparral tea has been used over the years as an herbal remedy for cancer, it is also well known for the toxic impact it can have on the liver.

O'Shea told Reuters Health that Johns Hopkins does not have enough information about the incident to either confirm or deny the allegations, specifically whether or not the study has been ongoing since 1999 as is alleged by Bhattathiri.

The university said that in March 2001, they became aware of a trial conducted in India in 1999-2000, and that their faculty member "reported that the trial had been approved by the appropriate reviewing authorities in India, and that proper informed consent had been obtained from patients enrolled in the study."

The university told the faculty member that a planned follow-up study needed to be submitted to the university's IRB, and while the "protocol has been submitted and has been under review," it has not yet been approved.

The extent to which Huang and Nair followed guidelines established at the RCC to protect patients' rights remain unclear. However, a statement released late Monday evening in New Delhi by the government's Ministry of Health and Welfare states that researchers at the RCC were granted permission on February 2, 2001 to import M4N from Johns Hopkins.

The study is evaluating the efficacy of M4N "in advanced oral and cervical malignancies," according to the statement, which goes on to say, "the permission was granted on the basis of preclinical and other relevant data."

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