FEAT DAILY NEWSLETTER
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February 18, 2002
News Archive Search www.feat.org/search/news.asp
(MMR – Vax News from the UK, Over the Weekend)
·
‘Major U-turn’ by Gov’t as 100s of Parents Pay Up To
Avoid Triple Vax
·
Firm Offers Single Jabs At £80 A Time On Milburn’s
Doorstep
·
Autism Research Is Vital
·
UK Health Dept. Finally Asks for Wakefield’s Autism
Research
·
Expert Who Never Attended A Meeting Quits MMR Safety
Panel: Scotland
·
Doctor Challenged Over MMR Claim
·
Doctors Cash In On MMR Fear With £280 ($400) Charge For
Single Jabs
·
Vaccine Drug Tycoon in £50,000 Labour Link
·
MMR and Autism Sunday Letters to the Guardian
·
Reader’s Posts
Major U-turn by Gov.t as 100s of Parents Pay Up To Avoid
Triple Vax
Health chiefs ask doctor behind MMR warning to help them
[By Rachel Ellis, Mail On Sunday. Not available online.]
The Government has finally caved in to pressure over MMR
and agreed to begin talks with the doctor who first raised concerns about the
triple vaccine.
The Mail on Sunday can reveal the CMO has written to Dr
Andrew Wakefield asking him to share his research findings with the Government.
The move is a significant u-turn by the DoH which has
tried to ignore Dr Wakefield’s and his research, which suggests a link between
the MMR vaccine and autism and bowel conditions.
It reveals the Government’s panic over the plummeting
vaccination rates in some parts of Britain - and Dr Wakefield’s supporters say
the Government may be ready to rethink its policy on making single vaccines available
on the NHS.
The doctor, now in the US, has welcomed the chance to
begin talks with the DoH.
He said yesterday:”we have been trying for many years to
enter an appropriate dialogue with the Government in which our findings can be
truly independently reviewed, but it has failed to provide us with this forum.
We’ve already made provision for samples to be analysed
independently and
invited the Centre for Disease Control to come to work in
one of our
laboratories to conduct the analysis, but it failed to take
us up on the
offer. Let’s hope the latest move is the beginning of a new
attitude towards
this serious dilemma”
The Government u-turn was prompted by a letter sent by Dr
Wakefield to CMO Prof. Sir Liam Donaldson and Downing Street last week.
It followed reports of measles outbreaks in some parts of
the country where the uptake of MMR has fallen as low as 65%.
Shortages and the high cost of paying privately for the
single vaccines - about £200 for a complete course of single jabs - mean that
some parents are not having children immunised at all.
In the letter, Dr Wakefield said concerns about the MMR
vaccine will not go away because at least nine new pieces of work which show a
link will be published during the year.
“You cannot fail to be aware of the unexplained and
dramatic increase in autism in countries which administer the MMR vaccine” he
adds. “No one is suggesting that the entire increase in this condition is down
to the MMR vaccine but even if the vaccine is contributing only a small proportion,
that would inevitably render it unsafe.”
A spokesman for the DoH said Prof. Donaldson had replied
to the letter, setting out a list of questions about his research for him to answer.
He added:”We also asked Dr Wakefield if he would turn over his data and samples
for independent scientific analysis.”
A spokesman for Visceral, the charity which funds research
into the link between MMR and autism, said:”We are delighted that a dialogue is
to finally begin.”
* * *
[From the Mail On Sunday. Not available online.]
A private health company is offering separate vaccines for
measles mumps and rubella at a clinic in Health Secretary Alan Milburn’s constituency.
Two hundred children were immunised yesterday at the start
of the two-day ‘outreach clinic’ at the Woodlands hospital in Darlington, Co. Durham.
They had waited patiently with their parents, who were
happy to pay £240 for the three single jabs costing £80 each.
The clinic has been set up by doctors from the
London-based Direct Health 2000 after they received hundreds of calls from
parents in the North-East worried about the triple MMR vaccine, which some fear
may have links to autism.
Direct Health 2000 spokeswoman Kathryn Durnford said some
parents of youngsters aged between 2 and 4 had told them they would not
vaccinate their children with the MMR jab.
She said:”This suggests there are lots of unprotected
children of pre-school age who are at a high risk from catching measles or
mumps. Parents’ concerns are still very
high, despite a £3million advertising campaign to convince them that the
triplevaccine is safe.”
A statement released by the Woodlands hospital said:”The
hospital is not promoting separate injections but believes that any
immunisation is better than no immunisation.”
Shane Gray and his wife Jane, from Yarm, took 2 of their 3
children for the single vaccines.
They wanted their daughters aged 3 and 2 to receive single
jabs after the furore over the MMR vaccine. Chemical site team leader Mr Gray
said:”We have paid out a total of £500 for the two children to have this done.
But you can’t put a price on your children’s health”.
* * *
[By Suzanne Moore from the Mail On Sunday. Not
available online.]
It is not before time that extra money - £2.5million - is
being put into researching the causes of autism. This should be happening
regardless of the MMR controversy.
More than 20 years ago I worked with autistic children and
had to explain to most people what that meant. Now nearly everyone knows a
child with it. The increase in autism is staggering. One study in America shows
that in the early nineties autism levels in schoolchildren were around 15,500.
By 1999/2000 the number had increased to 67,000.
We need to explain the rise. I accept MMR may not be the
cause but until we know what is, parents will be suspicious of all
vaccinations, not just this one.
* * *
“Let’s hope the latest move is the
beginning of a new attitude towards this
serious dilemma” - Dr Andrew Wakefield
[Different spins on the same report on UK’s request to
see Wakefield’s
research.]
http://www.itv.com/news/Front6296702.html
The chief medical officer has contacted the doctor who
first raised concerns about the MMR vaccine, asking him to turn his research
over for independent analysis.
Professor Sir Liam Donaldson e-mailed Dr Andrew Wakefield
- whose work indicated a possible link between the combined jab and autism - to
make the request, the Department of Health said.
The exchange follows a decline in MMR uptake rates in
parts of the country, as parents either refuse to have their children
vaccinated or opt for single jabs.
There have also been reports of measles outbreaks in
some areas.
A Department of Health spokeswoman stressed that
Professor Donaldson
was responding to an e-mail sent by Dr Wakefield.
“He e-mailed us on February 11, giving us 48 hours to reply.
We wrote back setting out a list of questions about his research which we
wanted answers to.
“Given the degree of interest in the subject, we asked him
if he would agree for us to publish his letter on our website.
“We also asked if he would agree to turn over his data and
samples for independent scientific analysis.”
The spokeswoman said officials had chased the matter up on
February 13, 14 and 15. Dr Wakefield had written back on the February 15
requesting another copy of the first e-mail.
However, Dr Wakefield told a Sunday newspaper that he
welcomed the chance to “begin talks” with the Department of Health.
He said he had already asked the Centre for Disease
Control to analyse his samples independently - but that it had failed to take
up the offer.
“Let’s hope the latest move is the beginning of a new
attitude towards this serious dilemma,” he said.
* * *
[By Camillo Fracassini.]
http://news.scotsman.com/index.cfm?id=186562002&rware=HZXDHNZFMBKV&CQ_CUR_DO
CUMENT=2 <- - address ends here.
A member of the Scottish government’s expert group on the controversial
MMR vaccine has quit to make the “most economical use of his time”.
Jonathan Best, chief executive of Yorkhill NHS Trust, was
chosen from hundreds of health experts, campaigners and scientists to join the
panel but has never attended any of the meetings.
The group was set up to assess the safety of the highly
contentious triple measles, mumps and rubella vaccine, and last night autism
campaigners said Best’s place on the group could have been taken by someone
more committed to the inquiry.
Bill Welsh, of Action Against Autism, said: “Parents of
young children will be dismayed to learn that a senior health executive has
failed to attend a single meeting of the expert group on the MMR vaccine.
“This brings into question the decision to appoint
Jonathan Best ahead of respected experts such as Dr Ken Aitken and Dr Gordon
Bell who were only asked as an afterthought. Dr John March, a leading research
scientist involved in vaccination, has been ignored. The Scottish Executive
must review its procedures regarding appointments to future ‘expert’
committees.”
Earlier this month Scotland on Sunday revealed the group’s
long-awaited report into the safety of the MMR jab had been delayed because of
a split among the experts. The report, which had been due to be published in
January, will not be published until next month at the earliest.
Health chiefs and politicians reacted angrily to the
delay. They said it was crucial that parents of young children were given clear
advice by the government as soon as possible in the wake of declining
vaccination rates north of the Border.
Yesterday, Yorkhill NHS Trust insisted Best had decided
not to take part in the group from its inception. However, his departure has
only now been formally announced and the Scottish Executive health department
said he had only left last month.
A spokeswoman for Yorkhill said Best had agreed with
Lawrence Weaver, professor of child health at the trust, to allow him to
represent Yorkhill on the group. She said: “Mr Best has not attended the
meetings but Professor Weaver has been feeding back information to him. Mr Best
is involved in a lot of other projects and felt it was the best and most
economical use of his time.
“He has made a personal decision to leave because he could
not combine his other commitments with the work that was expected as part of
the group.”
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* * *
[By Cahal Milmo.]
http://news.independent.co.uk/uk/health/story.jsp?story=120507
The doctor who first claimed that the MMR vaccine could be
linked to autism and bowel disease in children has been asked by the Government
to hand over his research for independent analysis.
The Department of Health insisted yesterday that the
request to Dr Andrew Wakefield from Professor Sir Liam Donaldson, the chief
medical officer, did not represent a U-turn over the controversial injections.
Sir Liam made the suggestion in response to an e-mail sent
by Dr Wakefield last week, which claimed further research would soon be
published questioning the measles, mumps and rubella jabs.
Concern over the vaccinations has led to a decline in
uptake rates and measles outbreaks in parts of the country despite repeated
assertions from health officials and ministers that MMR is safe.
At the weekend, a commercial health company started
offering single vaccinations costing £80 each at a clinic in Darlington, Co
Durham, in the constituency of Alan Milburn, the Health Secretary.
The Department of Health said it had replied to Dr
Wakefield’s e-mail by sending him a list of questions on his research and
requesting that his data and samples be scrutinised by independent scientists.
Officials said they were not asking for Dr Wakefield’s
assistance or to share his research – a move that would represent a change in
direction after claiming that his findings were unproved.
A Department of Health spokeswoman said: “This is not a
U-turn. Professor Donaldson has asked a
wide range of questions about the methods used in Dr Wakefield’s research which
experts have concerns about.”
The department added that Dr Wakefield had not yet
responded to its request for access to his research and denied suggestions that
the national health service was considering offering single-dose jabs.
Sir Liam has asked the doctor to clarify a statement that
some of the children featured in his study had received a single-dose measles
vaccine.
* * *
Doctors Cash In On MMR Fear With £280 ($400) Charge For
Single Jabs But What Price to Avoid Autism?
[By Sue Leonard and Rosie Waterhouse.]
http://www.sunday-times.co.uk/article/0,,177-210437,00.html
Doctors are cashing in on public worries over the MMR
vaccine by charging fees of up to £280 for a set of three single jabs that can
be bought for as little as £32.
Peter Copp, a GP running a private clinic in Edinburgh,
has treated 2,000 children over the past 18 months. Their families have paid a
maximum of £280 for the three jabs, creating an income of about £450,000.
Private clinics are opening around the country to exploit
the MMR scare and the subsequent demand for single vaccines that it has caused.
Many are recruiting NHS staff to meet the demand.
This weekend one company, Direct Health 2000, set up a
clinic in Darlington, the constituency of Alan Milburn, the health secretary.
The 400 patients booked will pay a total of £96,000 for courses of single jabs.
There is a huge variation in prices around the country,
from £120 for the first course of three jabs to £280. Children are meant to
receive their first set of three inoculations as one MMR jab between 13 and 15
months. A second MMR vaccination is given as a pre-school booster at the age of
four. So the cost of having all six
jabs separately is £240-£560.
Clinics say the mark-up is necessary to pay for the high
cost of overheads such as rent, private staff and advice to parents. Some also
claim that they pay as much as £80 for the set of three vaccines.
Demand is unprecedented. Last week one private clinic in
Lincolnshire received 10,000 telephone calls a day. The pressure group Jabs,
which campaigns for single vaccines, is receiving more than 3,000 inquiries a
day.
Some NHS GPs are also prepared to give three separate
injections, despite advice from the chief medical officer that the MMR is the
safest way of protecting children.
Doctors can provide jabs singly for NHS patients who pay
the pharmacist for the vaccine on a “named patient basis”, meaning they accept liability.
GPs can charge private patients typically about £60 per jab.
A prominent supporter of the government’s policy on MMR
has made a £50,000 donation to Labour, it emerged last night. Paul Drayson,
chief executive of PowderJect Pharmaceuticals, made a personal gift to the
party two months after his company had won a £17m contract to produce
tuberculosis jabs for the NHS, it was reported. PowderJect does not produce the
MMR vaccine.
* * *
[By Brian Brady.]
http://www.scotlandonsunday.co.uk/index.cfm?id=185742002
The boss of Britain’s biggest vaccines company made a
£50,000 donation to Labour two months after winning a £17m NHS contract,
Scotland on Sunday can reveal.
Dr Paul Drayson, chief executive of bio-science business
Powderject, handed over his donation after winning a deal to provide all the
UK’s anti-TB jabs at a price four times that of the previous contract.
The cash - from a family fortune estimated at over £100m -
was donated shortly after Blair’s election victory last June.
Drayson, 41, has made a string of statements in recent
months praising the Prime Minister and his government, including a defence of
Blair’s refusal to reveal whether his baby son Leo had had the controversial
MMR vaccination.
Details of the financial backing from a Labour
‘cheerleader’ whose firm competes for lucrative government contracts last night
intensified the row over the party’s links with big business.
Downing Street is already trying to limit the damage from
last weekend ’s revelation that Blair endorsed a Caribbean-based company’s bid
to take over the Romanian steel industry after its owner donated £125,000 to
party funds.
A spokesman for Powderject last night confirmed that
Drayson was a Labour party member who had given the money as an individual
donor. The spokesman insisted it was “completely unrelated” to Powderject’s
dealings with the government.
The spokesman said Drayson met politicians, including
ministers, “all the time” in his capacity as boss of both Powderject and his
trade organisation, the BioIndustry Association.
But shadow health secretary Liam Fox, who complained about
the cost of the BCG deal when it was announced, challenged the government to
lay bare full details of its contacts with Drayson.
He said: “Any suggestion that the NHS is being overcharged
for vaccines would naturally be a cause for concern at any time.
·
Article Continues at:
http://www.scotlandonsunday.co.uk/index.cfm?id=185742002
* * *
http://www.guardian.co.uk/Archive/Article/0,4273,4357840,00.html
Last week Nick Hornby wrote that we ‘know from experts that
only specialist education can make a difference’ to our 76,000 autistic
children (Comment, last week). In fact, many autistic children are educated successfully
in mainstream schools. This won’t be achieved all at once for all autistic
children, but where ordinary schools take measures to recognise and meet their
specialist needs, this is surely preferable to the artificial environment of
segregated schools.
Cath Ryde
Bolton
* * *
I wanted to congratulate you on the balanced coverage of
the MMR issue. As a neurologist, I have seen the devastating effects of
subacute sclerosing panencephalitis (SSPE) in a girl who was not vaccinated for
measles (a progressive neurodegenerative disorder not dissimilar to CJD, but arguably
worse as the patient takes longer to die). As a father, I none the less had
feelings of confusion and uncertainty recently when my own daughter went for
her MMR, even though I know there is no credible scientific evidence to support
a link between MMR and autism. I feel anger towards the UK tabloid press, which
is solely responsible for creating this air of panic and fear for the parents
of Britain (myself included).
Dr David Nicholl
Department of Neurology
Queen Elizabeth Hospital
Birmingham
* * *
It is astonishing that the government insists that MMR
vaccine does not cause autism yet funds litigation that has been brought by
many autistic children who claim that their condition was caused by MMR. This unsubstantiated
health scare and the litigation are mutually sustaining; they endanger
children, enrich lawyers and impoverish the health service. Who advises that this case should be
publicly funded and who stands to benefit from such funding?
Dr Penelope Elphinstone
General practitioner
London NW1
* * *
Our pediatric neurologist at Kennedy Krieger told us that
our 3 year, 11
month old son who is autistic has an arachnoid cyst over his
cerebellum. He
plans to consult his collegues at Kennedy Krieger on the
matter, but we are
anxious to begin to understand any relationship know between
these cysts and
developmental delays / autism. Does anyone have experience
with this
situation? debbie-john@comcast.net
Anyone have an autistic child that was also born cleft
lip/cleft palate? It
is Super hard to get a good speech therapist that can
consider both language
“opportunities”. He
is very high functioning and it is hard to tell what
the cleft palate is masking in his language
development. Rhonda Cooper,
Monteagle, TN Coopertown@blomand.net
I am considering starting my son
on the GFCG diet, and would appreciate any helpful info regarding the best
gluten free bread, good substitutes for butter, and chocolate, etc. mharrell@lwol.com.
Ebay is opening a Special Needs category: Medical
subcategory Special Needs. It will take
a few day would benefit-parents, teachers, therapists, school purchasing depts,
hospitals, etc.
Forward this to anyone you know that would use this. Jacki
French
Have written before about my son and the MMR, he is 7 next
month he has
autism and severe bowel problems,the story is we had a dog
for 15years who
died 8 months ago, we swore that never again as it tore us
up losing him, he
was my sons best friend, and has asked for him to come back
every day, well
the other night he said to my husband, I need my friend I am
lonely and sad,
I need a dog! Problem we have is finding a puppy that doesn’t
cost £500, we
dont have a lot of money. We live in basingstoke and would
be willing to
travel. Sandra Russell tylor65@hotmail.com
My name is Greg and I work for a company called Exceptional
Resources. My
boss Karen Sicoli, author of “Little RainMan”, has developed
a live
teleclass taking place March 25 from 4 - 5 pst. Please contact me If this
is any interest in you or if you have any questions. Greg
Moscaluk, Autism
Our 3 ½ yr old son has PDD and we’re looking for doctors in
the
Philadelphia/Southern N.J. area that specialize in treating
children with
autistic spectrum disorders. Our main concerns are behavioral and possible
bowel dissease. rctcqc@att.net
Any information about behavioural vision therapy? what is it
and is it
helpful for children with autism? Does is cause more damage
if the therapy
is discontinued in the middle? Kindly let me know if you
have any experience
or information about this therapy and also where in India
this is
available.ASHA autism@bgl.vsnl.net.in
Looking for ABA Therapists in
the Virginia area (Stafford) for recently started home-based ABA program for my
five-year old son. Several shifts available. Require one-year commitment, 2 days a week,
2 hours per day. Training will be
provided. Laura at laurwood416@aol.com.
I tried to respond to the reader
posting regarding vision therapy, but received an error message. To the reader
who asked, check out www.pave-eye.com. You can get info on VT there and may find
a referral.
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