'We've got our son back'
04.12.2002 - BOP Times
By RUTH WOODWARD
Two years ago, Cheryle and Mike Everard could never have imagined the
day their little boy Daniel would run up and hug them, let alone say the
words ``mummy'' or ``daddy''.
The best the Tauranga couple could expect from their two-year-old _
who has autism _ was a screaming tantrum or stuff hurled at them.
Like a terrified animal, their child would scurry behind the
furniture to hide. He would sit, banging his head incessantly against
the wall, eyes rolling and neck swivelling.
Most hurtful was the way Daniel turned away from his parents,
rejecting their love and never making eye contact.
Today, Daniel is a new boy after undergoing an amazing transformation
_ speaking, playing, recognising shapes and sounds, learning to sit
still _ all thanks to a revolutionary programme and the therapists who
run it.
Known as the Lovaas Method, Daniel's programme is based on early
intervention behavioural psychology _ and it's new to New Zealand.
Daniel's father is proud: ``Last year it felt I didn't have my son
any more. Now he has come back. He still has autism, but he has come
back.''
At the age of 20 months, Daniel was diagnosed with the brain disorder
of autism.
He had no communication skills, he couldn't play, didn't know what
toys were for and couldn't concentrate for much longer than a second.
His parents found it hard to love him.
The Everards are convinced Daniel's autism was triggered by the MRR
vaccination for measles, mumps and rubella.
Daniel's case is one of hundreds that have researchers worldwide
examining the autism-vaccine link.
The verdict was shattering to his parents who had given birth to a
perfectly normal child but who, in his second year, slipped into a
completely different world. But the family was given hope when they
found out about the Lovaas Method, discovered by Professor Ivar Lovaas
in the United States in the 1970s.
The professor achieved a 47 percent success rate in changing the
behaviour of 19 newly-diagnosed autistic children with 4000 hours of
one-on-one intensive therapy which focused on teaching the children
communication skills to replace their bad and mad behaviour.
The programme is now used around the world but last year Australia
was the closest country to New Zealand which had it.
The Everards were desperate and decided to try it, doing what others
told them was ``absurd'' by flying a therapist from Sydney once every
nine weeks to give Daniel therapy.
Their hopes were boosted further in March this year when the Centre
for Autism and Related Disorders (CARD) set up a clinic in Auckland.
Erika Brown, the clinical supervisor at the centre, has played a
crucial role in Daniel's turnaround, managing to turn the key in his
brain.
Erika is one of a small team of therapists and experts in autism who
have worked up to 25 hours a week with the Daniel for the past 18
months, using the Lovaas method to change his life and that of his
family.
Now Erika comes every two months to work with Daniel and two other
autistic children in Tauranga. Backing up her programme are another two
therapists who come virtually every day of the week to continue Daniel's
intensive therapy.
Daniel's success has motivated the Everards to set up the Western Bay
of Plenty and Matamata-Piako Autistic Children's Trust which raises
funds to help pay for local children to access the CARD programme.
Daniel's therapy has cost the Everards tens of thousands of dollars.
Almost every cent has been from their pocket. Therapy costs $250 a week
and Erika's two monthly seven-hour workshops clock up $120 an hour.
The huge financial and emotional strain hasn't been their's alone.
Five-and-a-half year-old son, Jason, has had to cope with the intense
distraction and focus that Daniel demands from his parents. Autism has
stretched this family beyond any reasonable limits.
Simple things such as going to the supermarket, the doctor and the
hairdresser _ all are spelt out in words and pictures in little books of
pasted pictures made by Mrs Everard, so that Daniel can be prepared for
each task.
But the problems fade every time they watch their little boy respond
in leaps and bounds to therapy that is teaching him the basic skills of
life.
Mrs Everard: ``I love the real Daniel and I am proud of him. He's
worked so hard and come such a long way.''