WASHINGTON -- The monster turned by the time Adam Reed was 2.
He stopped talking. He would not eat. He simply rocked and stared. In time,
doctors diagnosed the Manteca boy as autistic.
Now, though Adam shows improvement, his parents are in court.
They are among at least 40 Californians suing makers of the vaccines that the
plaintiffs consider responsible for their children's autism. It is a tough legal
case, which just got more difficult.
In a vivid flexing of pharmaceutical industry muscle, the homeland security
bill newly signed by President Bush squelches -- or, at the least, bumps off
course -- the vaccination lawsuits. This means the end of approximately 100
lawsuits, and a half-dozen or so class-action lawsuits, filed nationwide.
"It makes me very angry," Adam's mother, Genett Reed, said.
She is not alone in her convictions, or her frustrations.
Mary Wyrick's 6-year-old daughter, Annie, does not talk. A Clovis resident,
Wyrick is convinced that Annie was particularly susceptible to harm from
mercury-laden vaccines. Annie showed a severe reaction to her first set of shots
and showed as well high levels of mercury inside her body.
Wyrick said last week that she had been preparing for a lawsuit against the
drug manufacturers that she holds responsible for Annie's autism.
Advised that such a lawsuit could not proceed under the bill signed by Bush,
Wyrick gasped.
"I'm really disappointed that he would take that right away from us," Wyrick
said.
One-third of California parents of autistic children diagnosed in the
mid-1990s blame vaccines, a University of California at Davis survey issued last
month found. The study, completed by the university's Medical Investigation of
Neurodevelopmental Disorders Institute, did not pinpoint a cause for the state's
stunning rise in autism cases.
Skepticism can't stop questions
But parental questions about vaccines persist, despite official skepticism
about any link to autism.
California's 273 percent increase in reported autism between 1987 and 1998 is
forcing parents and lawmakers alike to dig into root causes.
"We're angry that nobody was willing to listen to us," Reed said, adding that
her lawsuit was designed "primarily to let people know that this can happen to
their child."
Drug companies, in turn, complain that constant litigation threatens their
ability to supply the public. Slipped at the last minute into the bill
establishing the Department of Homeland Security, the provision protects drug
companies not just against future lawsuits, but also against those already
filed.
"A number of lawsuits that are without merit have been filed," Ed Sagebiel,
spokesman for drug manufacturer Eli Lilly, told the San Francisco Chronicle.
"That's why this legislation is a good idea. It prevents groundless lawsuits."
A handful of moderate Republicans joined with Democratic lawmakers in vowing
an uphill fight next year to restore the vaccination lawsuit option. Republican
leaders consented to consider revising the lawsuit provision next year but did
not commit themselves to eliminating it.
The companies now can cite the law in asking judges to dismiss the lawsuits
in state and federal courts. Texas attorney Andy Waters, who represents Reed and
half a dozen other Central Valley parents, said he hopes he can maneuver to keep
at least part of the lawsuits alive.
Parents, however, still can go to the U.S. Court of Federal Claims. This is
the same court already used by parents who claim that their children suffered
other vaccine injuries.
Conceivably, parents can win hundreds of thousands of dollars to help pay for
their children's treatment.
Dollar awards in the claims court come from the government and widespread
industry fees rather than from individual companies.
And this is where politics might enter the picture: The pharmaceutical
industry gave at least $14.5 million to federal candidates since last year,
according to an analysis by the Center for Responsive Politics. And Eli Lilly's
former senior vice president, Mitch Daniels, is now Bush's budget chief.
In San Joaquin Valley homes, though, these legislative and litigation details
seem a bit removed from the day-to-day challenge of raising autistic children.
Vaccinations caused withdrawal
Reed is the 30-year-old owner of a dog grooming business.
Her husband, Nathan, installs alarms. Adam is their only child. He was
thoroughly happy and developing well, Genett Reed said, until he started getting
shots designed to protect him from diseases such as measles, mumps and rubella.
"After every vaccination, he would withdraw more and more," she said. Until,
"after his last set of shots, he just withdrew completely."
Research through the Internet and library convinced Reed that her son might
have been harmed by Thimerosal, a preservative containing mercury, formerly used
in childhood vaccines. Tests of Adam's urine showed mercury present at nearly
five times expected levels.
Adam's original doctor was doubtful about linking the vaccines and autism. So
are the federal Institute of Medicine scientists who have completed their own
review.
"Preliminary data from a few studies have suggested that
Thimerosal-containing vaccines could possibly -- very minimally -- affect some
measures of normal child development," said Dr. Marie McCormick, chairwoman of
the Institute of Medicine's study panel. "But the data are inconclusive."
McCormick added in her report that the evidence was "inadequate to either
accept or reject a causal relationship between exposure to Thimerosal from
vaccines" and autism.
This ambiguity will complicate any case filed in claims court.
The court has an established no-fault system for handling vaccine injuries,
though it does not always work quickly. But autism, unlike shock or
encephalitis, is not listed among the conditions presumed to be caused by
vaccines. That means parents still must prove the vaccine caused the condition.
Adam, meanwhile, has been showing improvement after undergoing some
controversial therapy designed to rid his body of toxins. Reed said her son is
making eye contact, showing affection and once more using the words more
precious than gold: Mommy and Daddy.
Bee Washington Bureau reporter Michael Doyle can be reached at (202) 383-0006
or mdoyle@mcclatchydc.com.
ALL INFORMATION, DATA, AND
MATERIAL CONTAINED, PRESENTED, OR PROVIDED HERE IS FOR GENERAL INFORMATION
PURPOSES ONLY AND IS NOT TO BE CONSTRUED AS REFLECTING THE KNOWLEDGE OR OPINIONS
OF THE PUBLISHER, AND IS NOT TO BE CONSTRUED OR INTENDED AS PROVIDING MEDICAL OR
LEGAL ADVICE. THE DECISION WHETHER OR NOT TO VACCINATE IS AN IMPORTANT AND
COMPLEX ISSUE AND SHOULD BE MADE BY YOU, AND YOU ALONE, IN CONSULTATION WITH
YOUR HEALTH CARE PROVIDER.
"A foolish faith in authority is the worst enemy of truth."
-- Albert Einstein, letter to a friend, 1901
"I know of no safe depository of the ultimate powers of the society but the people themselves, and if we think them not enlightened enough to exercise control with a wholesome discretion, the remedy is not to take it from them, but to inform their discretion by education."
-- Thomas Jefferson, letter to William C. Jarvis, September 28, 1820
"What's the point of vaccination if it doesn't protect you from the unvaccinated?"
-- Sandy Gottstein
"Who gets to decide what the greater good is and how many will be sacrificed to it?"