FEAT DAILY NEWSLETTER
Sacramento, California http://www.feat.org
December 2, 2001
News Morgue Search www.feat.org/search/news.asp
·
Living Without Vaccinations
·
Give the Gift of Possibilities
·
Olympic Torch / 2002 carried In Honor Of Those With
Autism
[By Dorsey Griffith, front page of the Sunday
Sacramento Bee.]
http://www.sacbee.com/content/news/story/1257991p-1326537c.html
They are as lively and rosy-cheeked as any 5- and
6-year-old girls, their long, blond hair gleaming in the sun as they swing
upside down from the monkey bars at the playground.
But Skyla and Iris Foxfoot are not like most 5- and
6-year-olds in America. The Nevada County children have not been immunized
against childhood diseases such as measles, chicken pox and haemophilus
meningitis.
“I think they are healthier for it,” said their mother,
Cindy Foxfoot, a licensed midwife. “I think their immune systems are stronger
for it.”
Foxfoot and her husband are among a relatively large
number of parents in rural Nevada County who, based on personal beliefs, have
chosen to exempt their children from vaccinations otherwise required by state
law. In California, people can exercise that option simply by signing the back
of a school immunization record.
Last year, California had its highest rate of “personal
beliefs exemptions” in 20 years, at just more than three-quarters of a percent
of all entering kindergartners, or about 4,000 children.
Even so, Nevada County stands out. Last year, the Sierra
foothills county had the highest rate of exempted kindergartners and the second-highest
rate of exempted seventh-graders in California. More than 6 percent, or 54 out
of 848 kindergartners, were exempted, and more than 11 percent, or 126 out of
1,130 seventh-graders. Statewide, just over 1 percent of seventh-graders were
exempt last year.
Nevada County’s exemption rates are unusual even among the
state’s rural counties. Tehama County, which has nearly the same number of
entering kindergartners, had a 1.3 percent exemption rate last year; Yuba, with
just over 1,000 entering kindergartners, had a 1 percent rate.
According to many in Nevada County, the difference has a
lot to do with the character of the place and its people. Many residents have
adopted “holistic” lifestyles, educating their children at home, eating organic
foods and preferring natural remedies to pharmaceuticals for what ails them.
“To me, (worrying about these diseases) is not what life
is about,” said the mother of a 2-year-old boy who has not had his shots, “because
I have the knowledge of using herbs, I live in a community where alternative health
is supported, and I have a close group of other parents who don’t vaccinate.”
Since the beginning of the last century, vaccinating
children against potentially deadly or disabling diseases has been a widely
accepted medical practice. The eradication of smallpox through worldwide
vaccination campaigns is hailed as one of the greatest public health triumphs
of the last century. The polio vaccine, introduced in 1962, has eliminated the disease
from the Western Hemisphere.
But in recent years, vaccinations once considered routine
have come under attack, mainly from parent groups. The trend stems, in part,
from a growing interest in holistic medicine. But with so many diseases under control,
some parents also feel freer to weigh the potentially dangerous side effects
vaccines can pose.
“Because of our success in immunizations, we have lost our
memory of how bad these diseases really are,” said Dr. Natalie Smith, chief of
the immunization branch of the state Department of Health Services.
Californians have been able to opt out of childhood
vaccination programs since the early 1970s. California is among 22 states that
offer personal-belief or religious exemptions in addition to medical
exemptions.
Efforts to establish exemption programs in New Jersey and
Texas were defeated in recent years. In Iowa, on the other hand, the state
Legislature recently killed an attempt by health officials to end religious
exemptions.
Perhaps the most high-profile debate involving vaccines
stems from suspicions linking measles, mumps and rubella vaccine to autism.
Many parents of autistic children say their children seemed normal until soon after
the first inoculation, typically given between 12 and 18 months of age.
Last year, Congress’ Committee on Government Reform held
lengthy hearings to explore the possible link. The committee chairman,
Congressman Dan Burton, R-Ind., told the story of his own grandson who was
diagnosed with autism soon after getting immunized, and called for more
research.
Because of increasing concerns, the federal government has
asked the national Institute of Medicine to set up a committee to analyze
theories about immunization safety concerns.
Meanwhile, the 20-year-old National Vaccine Information
Center, a parent-led safety organization, has called for a congressional investigation
into the nation’s mass vaccination program. They argue that not enough is known
about the potential harm vaccines may cause to justify routine immunization of
every child.
“We believe the one-size-fits-all approach does not
acknowledge biodiversity,” said Barbara Loe Fisher, co-founder and president of
the center. The center played a role in the Food and Drug Administration decision
in 1996 to develop a safer vaccine against pertussis, or whooping cough.
Over time, concerns have been raised about possible links
between inoculations and a range of conditions, including juvenile diabetes,
asthma, attention deficit disorder and sudden infant death syndrome.
Medical experts say there is no firm evidence to support
such claims. They say all vaccines
carry some risks, but only for a fraction of the population. According to the
federal Centers for Disease Control and Prevention, for example, serious
allergic reactions that can result in brain damage occur in fewer than one in 1
million children who get the diphtheria, tetanus and pertussis vaccine and the
measles, mumps and rubella vaccine.
Dr. Bruce Gellin, executive director of the National
Network for Immunization Information, an organization that promotes vaccination
education, said vaccines today are safer than ever.
“We have the best system in the world to assure they are
as safe as they can absolutely be,” he said. “But no medical product is 100
percent safe.”
Gellin points out that the dangers posed by
vaccine-preventable diseases are much higher than the risks posed by the
vaccines. Measles, for example, kills one in 500 children. One in 1,000 will
get encephalitis from measles.
Beyond concerns about safety, many parents believe the
relatively new immunizations against diseases such as chicken pox and hepatitis
B are unnecessary for young children: They survived chicken pox, they figure,
so why wouldn’t their children? And they argue that small children are hardly at
risk for hepatitis B, which is spread through sexual contact and injection drug
use.
“Parents want to have choices,” Fisher said.
What troubles disease-prevention experts about the
trend is the
potential erosion of what is known as herd immunity, in which
immunized kids serve as a protective barrier for kids who aren’t.
Smith calls it the “free-rider effect,” and says herd
immunity only works to prevent outbreaks when enough children are fully
immunized. Children who haven’t had
their shots are more likely to get sick themselves, and spread infectious
diseases to infants and other children who haven’t been immunized. They also
pose a threat to adults and children who have been immunized, but for whom the
vaccines were not 100 percent effective.
In 1998, Foxfoot said, her daughters contracted pertussis,
a potentially dangerous disease preventable with the DTap (diphtheria, tetanus,
pertussis) vaccine typically given at 15 months.
The bacterial disease, which in about 9 percent of cases
leads to pneumonia and, more rarely, seizures and brain disorders, is
particularly dangerous to infants. Worldwide, 30,000 people die each year from
pertussis, according to the CDC.
The Foxfoot girls became sick along with several other
unimmunized children who live or attend alternative schools in the scenic hills
along the North San Juan Ridge in the far northwestern corner of the county.
Foxfoot said that when her daughters became ill, they
developed the telltale cough with a whoop as they tried to catch their breath.
She kept the girls at home for nearly six weeks while they recuperated, as
required by law for unimmunized children with vaccine-preventable diseases. She
also isolated them from older adults—including her own parents—and anyone who
hadn’t been immunized against the disease.
Foxfoot put her children on a diet without dairy and wheat
products, and made sure they consumed plenty of clear broth to reduce the
mucous that she said exacerbated the coughing. They recovered fully.
“I was never worried for their lives,” she said. “They
were strong and healthy.”
Her children, whom she educates at home, remain healthy;
neither has had an ear infection and neither has ever seen a primary-care
physician, she said.
Feeding the immunization debate on both sides are numerous
Internet sites devised to support one or the other side.
The Web site for Thinktwice Global Vaccine Institute, for
example, provides personal stories about adverse reactions to vaccines and
allows readers to post questions about immunizations, which are answered by the
people who run the site.
The Immunization Action Coalition site does the opposite,
providing horror stories from parents whose children contracted
vaccine-preventable diseases.
Kris Jessen-Mather is a pediatric nurse practitioner in
the Nevada County town of Grass Valley. Many of her patients are the children
of parents who are opposed to vaccination. It is her practice to listen to their
concerns, then try to convince them of the importance of immunization.
“I just try and educate them,” she said. “But I can’t make
a parent immunize.”
Not all parents want to talk about immunization with medical
practitioners.
Foxfoot, for example, said she based her decision on her
own research, which included articles in Mothering magazine, a periodical
dedicated to “natural parenting” and books such as “The Immunization Decision,
What Every Parent Should Know,” by a practitioner of homeopathic medicine.
Like others who do not immunize their children, Foxfoot
has come to believe that the immune systems of infants are not ready to process
the increasing number of vaccines now recommended.
Foxfoot cannot explain why that would be true, but she is
satisfied with her understanding of the process. Most important, she said, is
that she takes her decision not to immunize seriously, and feels prepared to
deal with the medical consequences.
“If you’re not going to educate yourself, and know the
diseases and symptoms and how to treat them,” she said, “maybe you should
vaccinate.”
Nevada County health officials are aware of their high
exemption rates and have made it a goal to increase immunization rates by 20
percent by the end of 2004. School officials say they plan to operate a van to
bring shots and vaccination education to rural communities where the
immunization rates are especially low.
Even with additional support, Christina Garner, the county
immunization coordinator, knows it could be an uphill battle with the parents
who refuse to immunize. “They are very educated on what they believe,” she
said. “You cannot for the life of you get them to change their mind.
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* * *
Give the Gift of Possibilities
From Veronica Palmer, Managing Editor of Autism Asperger’s
Digest Magazine
As you decide what to give some of the people on your
Holiday list, why not consider giving a subscription to the Autism Asperger’s
Digest magazine? Each issue contains expertly written articles on a variety of topics
affecting the lives of children and adults with autism, and the people who care
for them. As the ONLY magazine in the country devoted to autism spectrum
disorders, you can trust that the information contained within each 36-page
issue is highly targeted to your needs.
The recently released November-December 2001 edition
offers helpful advice on inclusion, classroom modifications, and advice for
grandparents of children with autism. Noted special education attorney Reed
Martin answers the question, “How can I get my school to respond to my
complaint?” in his informative, instructional article. Temple Grandin talks
about the Autism Culture and a psychologist discusses the differences a
diagnosis of Asperger ’s has on a family, rather than autism. Readers get a
first hand look at two of the newest books released in the field, along with
enjoying the splendid artwork produced by a teen-aged girl with autism, Heather
Park.
Need an added incentive to subscribe yourself or give the
magazine as a gift? Starting with the
March-April 2002 issue, the magazine will grow to 52 pages! That’s 16 more
pages of helpful advice, useful information and relevant topics of interest.
But along with the growth in page size is a price increase. So, if you’ve been
thinking of subscribing, now is the time to do so!
Just one idea from one issue could change a child’s life forever.
What more meaningful gift could you possibly hope to give?
For complete information, visit the magazine’s
website:
* * *
FEAT of Louisville announces that on December 16th,
2001 at 14:24pm in Elizabeth Town, KY, one of their mothers will have the proud
honor of caring the Olympic Torch for the 2002 Salt Lake City Winter Olympics.
She accepted the nomination in honor of her 5 year old son
and all individuals suffering with Autism.
FEAT of Louisville wants to let all parents know to not only bring their
child to join in on the event, but to have signs, pictures of their child, etc
to boost Autism awareness for the run.
If you are in this area or know those who are: This will
take place on 31W from Enterprise Rent a Car sign to Fire Star
Chrysler/Plymouth/Dodge sign again in E-town at 14:24 on December 16th.
Please encourage others to
support this great nomination in light of all that has happened in the US this
year and the chance to boost Autism awareness.
Autism Needs A Loud Voice For
• Advocacy,
• Awareness,
• Research,
• Education,
• Treatment and
Care
• . . . and Hope
The FEAT Newsletter Threads the Autism
Community Together into a Strong,
Undeniable Voice for Change
Day After Day.
Support one of Our Most Effective
Assets in This Compelling Cause
By Your Donation through United Way
BECOME AN AUTISM ANGEL Send your United Way
Contributions to FEAT: Put 16106 on your workplace donor form for FEAT. Or send
a check to:
FEAT PO Box 255722
Sacramento CA 95865
501 ©(3) tax exempt number: 68-0287252
Lenny Schafer, Editor@feat.org • CALENDAR EVENTS@feat.org
Michelle Guppy
Catherine Johnson PhD
• Ron Sleith •
Kay Stammers • Edward Decelie
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INFORMATION, DATA, AND MATERIAL CONTAINED, PRESENTED, OR PROVIDED HERE IS FOR
GENERAL INFORMATION PURPOSES ONLY AND IS NOT TO BE CONSTRUED AS REFLECTING THE
KNOWLEDGE OR OPINIONS OF THE PUBLISHER, AND IS NOT TO BE CONSTRUED OR INTENDED
AS PROVIDING MEDICAL OR LEGAL ADVICE. THE DECISION WHETHER OR NOT TO
VACCINATE IS AN IMPORTANT AND COMPLEX ISSUE AND SHOULD BE MADE BY YOU, AND YOU
ALONE, IN CONSULTATION WITH YOUR HEALTH CARE PROVIDER.