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AUTISM FIRST STEPS
AUTISM DAILY NEWSLETTER     
Thursday December 13, 2001  


INDEX:
*   Autism State Ambassadors Still Needed For Many States
*   Exceptional Rodeo delights kids
*  
 Potent anti-bacterial enzyme isolated
*  
 Rights for those with special school needs
*   
Negotiators OK education bill requiring reading, math tests for millions of
     students

*   Judge alters Deptford special-ed settlement
*   
Recognizing Psychosis in Nonverbal Patients With Developmental
     Disabilities


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Autism State Ambassadors Still Needed For Many States


Would you like to make a direct difference in your state for individuals with autism? Do you work with, love, or are a professional working with autism individuals? Would you enjoy working with media, legislators, and autism professionals? Then this may be just what you are looking for! Apply today and make a difference in lives of individuals with autism! We have added many new State Ambassadors who are eager to get started, they need your help! Each state needs to be represented!
Contact: AutismAwakening@aol.com
For More Information: State Autism Ambassador Project
*
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Exceptional Rodeo delights kids

Disabled children enjoy cowboy life for day
By GLENN PUIT
REVIEW-JOURNAL
Faced with riding a bucking bronco Monday at the Thomas & Mack Center, 9-year-old Taylor Adams proved to be a natural. With his left hand in the air and his black cowboy hat tilted slightly forward like a veteran cowboy's would be, Taylor held on as the horse bucked him to and fro. "He's in seventh heaven," Taylor's smiling father, Rod, said as he videotaped his son's ride. The bronco, of course, was not real. But what was real Monday was how much fun this was for Taylor, who has Down syndrome. "He loves to play with the horses, and he loves to play in the dirt," Rod Adams said. "This is the greatest service you could ever give these kids." Taylor was one of 50 children who had a ball at the Las Vegas arena as part of the Exceptional Rodeo. For nearly two decades, the mock rodeo has given disabled Southern Nevada children a chance to see what it feels like to be a real-life cowboy. The Exceptional Rodeo calls for professional cowboys and staffers of the PRCA to be paired up with each of the 50 children, who have disabilities such as autism, cerebral palsy and other visual and hearing challenges. Each child then is guided through a series of events including rides on Wimpy the bull and Payday the bareback horse. There is also steer wrestling, steer roping, barrel racing and a ride on a real pony. In the end, each child is given a trophy and their pictures are put up on the arena's video screens. Exceptional Rodeo founder Ruth Dismuke-Blakely said the event is an annual opportunity for the Professional Rodeo Cowboys Association to give back to Southern Nevada, which has been home to the National Finals Rodeo for 17 years. "It's a chance for the world to be reminded that kids are just kids, regardless of whether they have special challenges or not," Dismuke-Blakely said. One of those kids was 14-year-old Brandon Little, a student at John F. Miller School in Clark County. Brandon, who has multiple disabilities and uses a wheelchair, was ecstatic when given a chance Monday to pet the nose of a real pony. "See that smile?" said Little's teacher, Woodie Mackie, as he referred to the grin on the teen's face. "I don't need to interpret anything. That says it all." For autistic 6-year-old Aedon Abbott, the steer roping was a thrill that couldn't be matched. Once he had his rope around the neck of the creature, he pulled until the steer was nearly on its side. "He's loving it," said Teresa Woods, who is Aedon's teacher at Mesquite's Virgin Valley Elementary School. "It means a lot to him just to interact with the other children." The Exceptional Rodeo also means a lot to the rodeo contestants and staffers who help make it possible. Barrel racer Kappy Allen said it warmed her heart to help Charlie Sutton, 6, rope six horses and ride Wimpy. "It is the least I can do," Allen said. With Allen's help, Charlie showed his proficiency as a cowboy when, during the middle of the ride on Wimpy, he tipped his hat to a crowd of a hundred or so watching the competition. "This puts everything else in life in the proper perspective," Allen said. "We all get so caught up in our own little worlds. After an hour of doing this, I thank God for what I have." Dismuke-Blakely is convinced that, through the Exceptional Rodeo, the PRCA is making a real difference in the youths' lives. "Cowboys are real American heroes, and these kids look up to them like any other kid does," she said.

http://www.lvrj.com/lvrj_home/2001/Dec-11-Tue-2001/news/17640629.html
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The World's No.1 Science & Technology News Service

Potent anti-bacterial enzyme isolated


12:05   07  December  01
Greg Miller

An enzyme that kills the potentially dangerous bacterium Streptococcus pneumoniae has been isolated by a US team. A nasal spray containing the enzyme could be an effective alternative to conventional antibiotics, and could help wipe out human reservoirs of the bug, the team says.Vincent Fischetti and colleagues at Rockefeller University in New York isolated the enzyme, called Pal, from a bacteriophage (a type of virus that infects bacteria) that targets S. pneumoniae. Earlier this year, Fischetti's team isolated another bacteriophage enzyme that kills streptococci, the bacteria responsible for strep throat. The same method could also be used to find enzymes that kill other bacteria. "Every bacteria has a bacteriophage system," Fischetti says.S. pneumoniae lurks in the nose and throat of half the human population and is a significant source of illness and death worldwide. It can cause problems ranging from ear infections to potentially deadly diseases like pneumonia and meningitis.
"Exciting opportunity"
In test tube experiments, Pal killed 15 strains of S. pneumoniae within seconds of contact, but did not interfere with other, harmless, bacteria that grow in the nose and throat, or with human cells. The enzyme also proved effective against S. pneumoniae when applied to the noses of infected mice.Fischetti is now planning clinical trials to test a nasal spray containing Pal. He says the spray could be used periodically, say once a week, to keep bacteria under control."I think it's an exciting opportunity for both prevention and treatment," says Cynthia Whitney, an epidemiologist at the Centers for Disease Control in Atlanta. She says the spray might be especially useful in day care centres and nursing homes, where infections can spread quickly from person to person.Fischetti says Pal would be more effective than existing vaccines, which only protect against individual strains of S. pneumoniae. And because the enzyme is so deadly, the bacteria do not seem to be able to acquire resistance, as they have to antibiotic drugs, he says. Journal reference: Science (vol 294, p 2170

http://www.newscientist.com/news/news.jsp?id=ns99991662

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Rights for those with special school needs

 

By Sean Flynn, Education Editor


A bill which gives improved legal rights to those with special educational needs was agreed by the Cabinet yesterday. In light of the Supreme Court judgment in the Sinnott case, the Bill gives new educational rights to those aged 18 and over. But it is clear the Government remains opposed to a constitutional referendum on educational special needs along the lines favoured by Ms Kathryn Sinnott and other campaigners. Government sources say experience in other countries shows that legislation of the type agreed yesterday gives "cast-iron" guarantees. The Sinnott case caused a furore because it said that only people up to the age of 18 had an automatic right to a full primary education. The new Education (Disabilities) Bill provides a statutory guarantee of education services for people with a disability. It is seen as part of the Government response to the recent Task Force on Autism which demanded stronger legal guarantees. In practice, the Department of Education will, under the Bill, be obliged to make appropriate special needs education available for all adults with disabilities, if this is viewed as beneficial. There will also be an explicit statutory obligation on health boards to ensure the best care and personal development of these adults. There will be a new statutory duty to provide for the continuing education of adults who are not capable of joining the world of work. And, crucially, the development of the potential of such adults will not be limited by age, according to the Bill. Last night, the Minister for Education and Science, Dr Woods, said: "This Bill will provide a clear and enforceable statement in law of the rights of children and adults, who because of disabilities have special needs, and put in place a statutory structure which will guarantee that education to them". The Bill, he said, enshrines "the principles on which our education system is based and copper fastens the guarantee of access to that system for all those with disability, children and adults alike". The Bill also provides for: A register of children with special needs;Education plans tailored to the disabilities and educational needs of each individual;Involvement by parents in the planning and ongoing review of their children's education; Mediation and appeals structures;The establishment of a National Council for Special Education as a dedicated statutory body with responsibility for ensuring the aims of the Bill are met; New statutory duties on health boards to provide assistance and services necessary for the education of children with special needs. The Bill incorporates many of the elements demanded by the task force. Its report was highly critical of the manner in which parents were often routinely excluded from decisions about the education and/or treatment of children. Government sources insisted the new Bill was not a response to the Sinnott judgment but part of its overall commitment to people with special needs. However, the Government will hope the Bill dampens public unease about the Sinnott case and its implications.

http://www.ireland.com/newspaper/ireland/2001/1212/hom20.htm
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Negotiators OK education bill requiring
reading, math tests for millions of students

Associated Press
GREG TOPPO AP Education Writer December 12, 2001

WASHINGTON (AP) - House and Senate negotiators have approved President Bush's top domestic priority, finishing an education bill that would require millions of students in grades three through eight to take annual reading and math tests. For the first time, their scores could affect how federal aid to their schools is allocated and spent. The bill, which also requires schools to come up with plans to close the achievement gap between poor and middle-class students, is virtually certain to win final passage in the next few days. "These reforms mean new hope for students in failing schools, and new choices for parents who want the best education possible for their children," said Rep. John Boehner, R-Ohio, who chaired the House-Senate committee that approved the final version of the bill. Bush on Wednesday celebrated the agreement by inviting Boehner and the other top three House and Senate negotiators to the Oval Office. "It's a good sign for the country about what can happen when the leaders in Washington decide to work together," said White House press secretary Ari Fleischer. The bill now goes to the House and Senate for final votes. Lawmakers expect it to be on Bush's desk by next week. While Boehner and others called the measure groundbreaking, some observers complained about the final product. Bob Chase, president of the National Education Association, called it "a tremendous disappointment," saying it would force states to develop and give the annual tests without enough funding from Washington - at a time when they are being hit hard by a recession. "Considering this bleak fiscal climate, these unfunded and underfunded mandates are irresponsible," Chase said. "The broad policy goals are laudable, but the lack of support to states suffering an economic decline is lamentable." Overall, the education bill authorizes $26.5 billion next year for elementary and secondary education - about $8 billion more than this year and about $4 billion more than Bush requested, but nearly $6 billion less than Senate Democrats wanted. The annual reading and math tests for all students in grades three through eight would tell states which schools are effective. Those with persistently low test scores would have to give some of their federal aid to students for tutoring or transportation to another public school. More aid would flow to schools whose scores don't improve for two years in a row, but if scores don't improve afterward, a school's staff could be changed. States and school districts also would get more freedom over how they spend federal dollars, but they'd be required to send annual "report cards" showing a school's standardized test scores compared to others locally and statewide. Also included is Bush's signature reading program, which gives schools nearly $1 billion per year for the next five years in hopes that every student will be able to read by third grade. The package is opposed by several groups that say it will force states and school districts to spend millions they don't have. Opponents include the National School Boards Association, the National Conference of State Legislatures and the American Association of School Administrators. Two senators - James Jeffords, I-Vt., and Paul Wellstone, D-Minn. - said they would oppose the measure. They said Republicans' refusal to include mandatory funding for disabled students made the bill incomplete. House Republicans twice rejected the special education funding measure. "This education bill requires our nation's schools to make major improvements within a short time frame," Jeffords said. "This is a worthy goal, but one which cannot be met unless the money is provided to give these schools the technical assistance and expertise they so desperately need to carry out the reform effort." A longtime special education advocate, Jeffords cited the need for more school spending when he left the Republican Party last May, handing control of the Senate to Democrats. Sen. Tom Harkin, D-Iowa, who sponsored the special education measure, said the White House persuaded House Republicans to block the measure to "punish" Jeffords. "I know that the reason the White House is so adamantly opposed to this is that it will make Jim Jeffords look good," he said. Jeffords himself said he thought the administration opposed the funding because it wasn't a priority this year. "They'll find it when they need it - about three years from now," he said, referring to the 2004 elections. On the Net: Senate: http://www.senate.gov House: http://www.house.gov
Copyright 2001 Associated Press. All rights reserved. This material may not be published, broadcast, rewritten, or redistributed.


http://www.brainconnection.com/SITEWare/2001/12/12/--dsa/7256-1713-Congress-Education.1stLd-Writethru.a0450..php3
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Judge alters Deptford special-ed settlement

The district will not have to reimburse $50,000
in services not paid for by an autistic child's parents.


By Jake Wagman

INQUIRER SUBURBAN STAFF CAMDEN - A federal judge has rescinded part of his order that the Deptford Township School District reimburse special-education costs for the parents of a student with autism.On Nov. 2, U.S. District Judge Jerome B. Simandle ordered that the school district pay $140,000 to the parents of a pupil identified in court papers as H.B.But it turned out that some of the services listed for reimbursement had not taken place."That's a $50,000 problem," Simandle said in court yesterday.The settlement was intended to pay private learning centers and therapists used during the two-year legal battle to create a program for H.B in the Deptford district.Simandle said a misunderstanding of the definition of compensatory damages by the parents' attorney had led the judge to order payment for $42,575 in therapies that had not been performed and $6,900 for therapy that the school district had provided."Certain matters were overlooked in previous decisions of this court," Simandle said. "Clearly the district should not have to pay for services not actually rendered."Lawyers for the Deptford school board filed an affidavit last week from the district's director of special services, Raymond L. Sherman. In it, he alleged that the parents' attorney, Jamie Epstein, submitted "erroneous facts" to the court.Simandle ordered that the district still has to pay $90,000 that the parents have spent, but he called "grossly excessive" the payments to a Westville doctor that Epstein said would total $2,100. According to Sherman's affidavits, such evaluations typically cost no more than $500.In court yesterday, Epstein defended the submission of the services in question by saying that if the parents had been able to afford them, they would have been eligible for reimbursement later."You shouldn't penalize this child because the parents couldn't put up the cost of therapy," Epstein said.The case is an example of how special-education cases can turn into prolonged legal disputes. The federal Individuals With Disabilities in Education Act says every child is entitled to a "free and appropriate education." When schools and parents in New Jersey disagree on what that means for a student with special needs, the case is brought before an administrative law judge in Trenton, whose opinion can be appealed to federal court.Jake Wagman's e-mail address is jwagman@phillynews.com.
http://inq.philly.com/content/inquirer/2001/12/12/local_news/JSPECIAL12.htm

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Recognizing Psychosis in Nonverbal Patients With Developmental Disabilities

by Ruth Ryan, M.D.Psychiatric Times December 2001 Vol. XVIII Issue 12 People with developmental disabilities (e.g., mental retardation, autism) are vulnerable to the same psychiatric conditions as the general population (Szymanski et al., 1990). Fortunately, for the most part, DSM-IV criteria can be adapted easily to permit accurate diagnosis (Aman, 1991; Ryan, 1994b). However, these individuals may exhibit some unusual behaviors that seem indicative of psychosis yet are actually almost never reflective of psychosis. In addition, even when indications of psychosis are present, epidemiological issues, such as comorbid conditions, may lead to a different final diagnosis than otherwise would be expected.Symptoms and Indicators In patients who do not communicate verbally, there are many cues that can lead a psychiatrist to recognition of psychosis. The following list was compiled from observing patients with psychosis who were able to communicate verbally. After observations, patients later explained the psychosis content. This information is valuable in that the results might be extrapolated as possible indicators in people who do not use verbal communication.
Patient stares to the side, nods and gestures as though listening to a conversation others do not hear. It is important to note that some people have been trained to do this or have learned to do this to occupy themselves ("self-talk"). If the patient seems to be in complete control of this activity or is using this activity for self-soothing purposes, the presence of true psychosis is less likely.
Patient seems to be shadow boxing with unseen others (unless, as in above, the patient is in total control of the activity or doing so for soothing purposes).
Patient brushes unseen material off themselves. Conditions that could produce paresthesias are more common in individuals with developmental disabilities than is psychosis and should be considered first.
Patient wears multiple layers of clothing. It is important to note that some people do this to self-treat sensory integration deficits. In addition, some people learn this as a coping skill in some congregate facilities, as a way to keep one's possessions.
Patient covers eyes or ears as though shutting out stimuli, with the caveat that this can be an expression of anxiety or physical pain.
Patient places unusual wrappings (e.g., feminine hygiene products) around their ankles, sleeve ends, ears or collars, also keeping in mind this could be an expression of anxiety or physical pain.
Patient glares with an out-of-context, angry or intensely fearful expression at strangers or previously liked others.
Patient wraps bandannas or extra scarves around the head and ears when this is not congruent with the weather or the rest of the person's clothing.
Patient wears costumes that are associated with a false role (e.g., wearing full firefighter gear when the patient is not a firefighter); caveat: the person may be expressing a wish rather than a false belief.
Patient inspects food and beverages with new and out-of-context intensity.
Patient grimaces or winces as though smelling or tasting something foul.
Similarly, there are symptoms that are just as important to recognize which are almost never indications of psychosis. They include the following:
Volitional self-talk.
Vocal tics. Tourette's syndrome and other tic disorders are much more common in individuals with developmental disabilities than in the general population. When someone is making nonsensical noises, this possibility should be considered.
Phenomena that are modeled directly from other people.
Phenomena that the person can start and stop at will.
Phenomena thought to be purely taught by circumstance or program. (Consultation with a behavior specialist and completion of a functional analysis [this refers to the process used by modern behaviorists, not a listing of the person's skills] can make this distinction.)
Displays of aggression, agitation, shouting or self-injury.Epidemiology ConsiderationsBetween 70% and 85% of people with developmental disabilities referred for psychiatric consultation have one or more untreated, undertreated or undiagnosed medical problems influencing their behavior (Ryan and Sunada, 1997; Sundheim et al., 1998). Many of these conditions can produce delirium, which may include psychosis (Ryan et al., 1998). Therefore, it is essential to conduct a thorough search for secondary medical conditions that contribute to or possibly cause the apparent psychosis (Szymanski et al., 1990).Between 60% and 100% (depending on sample) of individuals with developmental disabilities have experienced trauma, usually repeated incidents of abuse (Sobsey, 1994). Since many symptoms that resemble psychosis are actually dissociative phenomena, careful evaluation for posttraumatic stress disorder and other sequelae of trauma should be considered. Due the nature of their disabilities, patients commonly develop habits that could lead to suspicious behaviors. For instance, some people were given medications hidden in their foods; this may cause them to inspect food with extreme intensity. Others touch themselves in unusual ways or look at people with suspicion or anger in relation to flashbacks. Careful assessment of the rest of the patient's symptoms should assist with the diagnostic distinctions.Mood disorders with psychotic features are more common in people with developmental disabilities than are conditions in the schizophrenia spectrum (Szymanski and Crocker, 1989). Support staff and/or family members may not be attuned to monitor symptoms such as sleep problems, appetite problems and other neurovegetative signs of mood disorders; and the examiner will need to probe very carefully to establish these criteria.Individuals with pervasive developmental disorders and autism often have sensory integration deficits that can produce a variety of physical discomforts. Some people self-manage these discomforts with unusual gestures, postures or withdrawal. Evaluation of sensory integration status by an occupational therapist can help avoid misattribution of these symptoms to psychosis (Sundheim et al., 1998).When updated criteria are used, it appears that schizophrenia spectrum conditions are as rare in this population as in any other. Thus, even if the presence of psychosis is established, schizophrenia may still be the least likely diagnosis. By observing problems with initiation, gating deficits and affect inconsistent with content, clinicians can clarify the diagnosis and the long-term treatment plan. Specific clinical questions might include ascertaining if the person has a hard time getting started in preferred familiar activities, if the person appears to have more confusion and psychosis in preferred stimulating situations, or if the person seems to laugh at things that are frightening or gruesome. Individuals with schizophrenia tend to have more symptoms of psychosis in situations that are stimulating, even if it is something the person likes. If the symptoms resembling psychosis occur more often in low stimulation situations or in association with reminders of previous trauma, dissociation may be the more accurate diagnosis (Ryan, 1994a). Olfactory or gustatory hallucinations are much more common in certain forms of epilepsy and posttraumatic stress disorder than in schizophrenia spectrum conditions (Neppe and Tucker, 1988; Ryan, 1994b). One man, for example, was known to repeatedly wrinkle his nose and look at others as though smelling flatus. It was eventually discovered that he had complex partial seizures with a temporal lobe focus and ictal violence. Treatment of the epilepsy produced a remission of ictal violence as well as a remission of this frequently seen gesture.Certain physical gestures can be easily mistaken for psychosis. A person who bats out with their hands as though something were there might be experiencing visual hallucinations; in my clinical experience, however, the last several times this was a symptom, the cause turned out to be uncorrected myopia. Similarly, individuals who wave fingers in front of their eyes or bang their heads are more likely to have headaches or depression than psychosis.Of course, it is reasonable to attempt to interview all individuals, even those who do not use speech. Many understand more than they can express and can give very helpful answers via gestures, nods, drawings and non-speech vocalizations (Ryan, 2001; Stavrakaki and Klein, 1986; Trumble, 1993). ConclusionGathering observational data from the patient and from those who know the patient very well (i.e., family, caregivers and so on), as well as from videotaping and spending unstructured time with the patient, is essential to correctly identifying psychosis in nonverbal patients with developmental disabilities (Ryan, 2001; Szymanski, 1977). All observational data should be augmented with a complete database regarding family history and all physical signs and symptoms. The environmental context of a symptom of possible psychosis is essential in understanding its significance and meaning, if any. The time spent in these initial assessments is richly repaid in better quality of life and clinical outcomes for the patient. If, despite all attempts to gather complete data, the clinical outcome is not favorable, restarting the process with particular attention to unstructured observation may be helpful. Guides and other reading material
(Table) are also helpful to the psychiatrist encountering such patients.Dr. Ryan works full time with people with developmental disabilities, is clinical assistant professor of psychiatry at University of Colorado Health Sciences Center, and directs a non-profit research and education foundation. ReferencesAman MG (1991), Assessing psychopathology and behavior problems in persons with mental retardation: a review of available instruments. Publication No. (ADM)91-1712. Rockville, Md.: U.S. Department of Health and Human Services, Public Health Service, Alcohol, Drug Abuse, and Mental Health Administration, National Institute of Mental Health.Neppe VM, Tucker GJ (1988), Modern perspectives on epilepsy in relation to psychiatry: behavioral disturbances of epilepsy. Hosp Community Psychiatry 39(4):389-396.Ryan R (1994a), Posttraumatic stress disorder in persons with developmental disabilities. Community Ment Health J 30(1):45-54.Ryan R, Sunada K (1997), Medical evaluation of persons with mental retardation referred for psychiatric assessment. Gen Hosp Psychiatry 19(4):274-280.Ryan RM (1994b), Recognition of psychosis in persons who do not use spoken communication. In: Schizophrenia: Exploring the Spectrum of Psychosis, Ancill RJ, Holliday S, Higenbottam J, eds. New York: Wiley Press.Ryan RM (2001), Handbook of Mental Health Care for Persons with Developmental Disabilities. Quebec: Diverse City Press Inc.Ryan RM, Sundheim STPV, Voeller KKS (1998), Medical diseases. In: Textbook of Pediatric Neuropsychiatry, Coffey CE, Brumback RA, eds. Washington, D.C.: American Psychiatric Press, pp1223-1274.Sobsey D (1994), Violence and Abuse in the Lives of People with Disabilities: The End of Silent Acceptance? Baltimore: P.H. Brookes Publishing Co.Stavrakaki C, Klein J (1986), Psychotherapies with the mentally retarded. Psychiatr Clin North Am 9(4):733-743.Sundheim STPV, Ryan RM, Voeller KKS (1998), Mental retardation. In: Textbook of Pediatric Neuropsychiatry, Coffey CE, Brumback RA, eds. Washington, D.C.: American Psychiatric Press, pp649-690.Szymanski L, Madow L, Mallory G et al. (1990), Report of the task force on psychiatric services to adult mentally retarded and developmentally disabled persons. Washington, D.C.: American Psychiatric Association.Szymanski LS (1977), Psychiatric diagnostic evaluation of mentally retarded individuals. J Am Acad Child Psychiatry 16(1):67-87.Szymanski LS, Crocker AC (1989), Mental retardation. In: Comprehensive Textbook of Psychiatry, vol. 2, 5th ed., Kaplan HI, Sadock BJ, eds. Baltimore: Williams & Wilkins.Trumble S (1993), Communicating with people who have intellectual disabilities. Aust Fam Physician 22(6):1081-1082.

http://www.mhsource.com/pt/p011251.html

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ALL INFORMATION, DATA, AND MATERIAL CONTAINED, PRESENTED, OR PROVIDED HERE IS FOR GENERAL INFORMATION PURPOSES ONLY AND IS NOT TO BE CONSTRUED AS REFLECTING THE KNOWLEDGE OR OPINIONS OF THE PUBLISHER, AND IS NOT TO BE CONSTRUED OR INTENDED AS PROVIDING MEDICAL OR LEGAL ADVICE.  THE DECISION WHETHER OR NOT TO VACCINATE IS AN IMPORTANT AND COMPLEX ISSUE AND SHOULD BE MADE BY YOU, AND YOU ALONE, IN CONSULTATION WITH YOUR HEALTH CARE PROVIDER.