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AUTISM FIRST STEPS
AUTISM DAILY NEWSLETTER
Monday December 10, 2001
SPECIAL EDITION
INDEX:
* United States Autism Ambassador Offical Press Release: New State
Autism Ambassadors Announced
* Killing the Messenger
******************************
United
States Autism Ambassador Offical Press Release:
State Autism Ambassadors Announced
WHERE AS, a result of Autism, an estimated over 500,000
individuals in the United States have lost the ability to communicate and
interact with others; And
WHERE AS, Parents and professionals have requested a new position of an
United States Autism Ambassador to act as a liaison for the best interest of
individuals with Autism Spectrum Disorders and was nominated by the people; And
WHERE AS, This year it has been determined that 1 out of every 53 babies born
daily in the United States would in later years be diagnosed with one of the
Autism Spectrum Disorders. In Iowa we have over 4,000-5,000 Individuals with autism;
And,
WHERE AS, Dr Marie Bristol-Powers from the National Institute of Child Health
and Human Development stated that in more recent studies, the prevalence in
much higher and now 1% and that autism spectrum disorders is not rare. In fact
it is a pressing health problem; And,
WHERE AS, the recently released Center for Disease Control and Prevention
report found that autism spectrum disorders occurred 1 in every 150
individuals; And,
WHERE AS, at the recent International Meeting For Autism Research Conference,
noted autism epidemiologist Dr. Eric Fombonne stated that the prevalence of
autism is now 1-147, and further showed that the prevalence of autism has
increased between 600% and 3400%; And,
WHERE AS, according to the National Center for Educational Statistics,
enrollment will be 55.9 million by the year 2005. At least 800,000 educational
personal will be needed to serve these students; And,
WHERE AS, today Autism Spectrum Disorders is more common then Downs Syndrome,
Diabetes, Muscular Dystrophy, Cystic Fibrosis, and many forms of Childhood
Cancer; And,
WHERE AS, Professionals and Organizations worldwide are working together in one
great effort to raise awareness, diagnostic, treatment, therapy, and
educational options, resources, support, and legislation; And,
WHERE AS, caring for people with autism costs more than $13 billion per year,
and the majority of these costs are borne by the families of individuals with
autism. These parents have sacrificed tremendously to provide the specialized
treatments, specialized training, education, and support services that their
children need; And,
WHERE AS, even sadder is the fact that 40-48% of the individuals around the
world with autism spectrum disorders never receives the current diagnosis, waivers,
resources, or support they need. These individuals slip silently into the
cracks; And,
WHERE AS, there is hope and in 2001-2002 Legislators, State Ambassadors, US
Ambassadors, Autism Council, and many other Autism Organizations are in each
state working for better services, resources, and programs for families and
individuals with autism spectrum disorders. In the 2001-2002 legislative
session we are taking a progressive and pragmatic approach on autism related
issues; And,
WHERE AS, the United States Autism Ambassador shall establish and administer
the State Autism Ambassador Program. It shall be the function of the US Autism
Ambassador to act as a liaison to The State Ambassadors to help them fulfill
their duties as state autism Ambassador in the state that they reside in. The
United States Autism Ambassador will administer and implement the Autism First
Steps Autism Action Plan, so we as a United States will be prepared for the
increases of individuals with autism in future years; And,
WHERE AS, requests for State Autism Ambassador positions have been applied for
in AL, DE, NH, and WI and approved by the LD Wedewer, US Autism Ambassador and
voted on unanoiusly by the Board of Directors to be inducted into these
positions to work in their resideing states; And.
WHERE AS, we as a nation will be ready for the increases of the population with
autism spectrum disorders with an autism action plan; And,
WHERE AS, As a State Ambassador each person will have many duties to perform
and execute ranging from awareness, legislative, media, guest speaking on
occasion, Implement the First Steps Autism Action Plan and Programs, and more.
Each state Ambassador will work closely with the United States Ambassador and
Co-Ambassador, Autism Council, and Legislators, Educators, Medical
Professionals, and General Public; And,
THEREFORE, be it known that I the United States Autism Ambassador charge the
position of the State Autism Ambassador to Robert Sidel, Delaware Autism
Ambassador; And,
THEREFORE, be it known that I the United States Autism Ambassador charge the
position of the State Autism Ambassador to Eileen Martin, New Hampshire Autism
Ambassador; And,
THEREFORE, be it known that I the United States Autism Ambassador charge the
position of the State Autism Ambassador to Michelle Trzecinski, Wisconsin
Autism Ambassador; And,
THEREFORE, be it known that I the United States Autism Ambassador charge the
position of the State Autism Ambassador to Allecia G. Freels, Alabama Autism
Ambassador; And,
THEREFORE,
be it further known that These Individuals will be known from this day forward
as State Autism Ambassadors, and is further charged with the duties and
obligations of the State Autism Ambassadors; And,
THEREFORE, be it known that These Individuals have Accepted these positions
from this day forward; And,
NOW THEREFORE, LD
Wedewer, United States Autism Ambassador DO HEREBY PROCLAIM THAT THE DUTIES AND
OBLIGATIONS OF THE STATE AUTISM AMBASSADORS ARE BESTOWED UPON THE ABOVE
NAMED INDIVIDUALS FROM THIS DAY FORWARD AND THAT EACH INDIVIDUAL AMBASSADOR
WILL TAKE A PROGRESSIVE AND PRAGMATIC APPROACH TO ISSUES RELATED TO AUTISM
WITHIN THEIR STATE.
******************************
Killing the Messenger
Dr.
Andrew Wakefield Fired
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Dr. Andrew
Wakefield, the Autism researcher who found the a potential link between the
Measles - Mumps - Rubella vaccine (MMR) and Autism has been fired by the Royal
Free Hospital in London. Ironically, this news comes one day after a researcher
at Harvard University substantially replicated the results of Wakefield's
research, the first step at proving a hypothesis to be true according to the
scientific method.
Dr. Timothy Buie, a pediatric gastroenterologist from Harvard/Mass General
Hospital who has been conducting independent research similar to that reported
by Dr. Wakefield in Great Britain. According to his findings, which came about
as the result of over 400 gastrointestinal endoscopies with biopsies, as well
as evaluation of digestive enzyme function in children diagnosed with autism
and finding a connection, the chronic inflammation of the intestinal tract
observed by Dr. Wakefield is present in a significant number of cases, although
the incidence was noted to be less frequent in his group.
Buie announced his findings during the Oasis 2001 Conference for Autism in
Portland, Oregon. His findings are leading him to conduct more research into
dietary treatments for Autism, including Gluten Free - Casein Free diets for
Autistic children. His findings have also been supported by research done at
the University of Maryland, by Dr. Karoly Horvath and others, who obtained
essentially similar results to those found by both Wakefield and Buie.
Dr. Wakefield, who is recognized by many in the Autism community worldwide as
an authority on Autism, told parents of Autistic children involved in his
research, "I realise now that everything that has happened to me was
inevitable from the beginning. If you offend the system, then the system will
take its revenge." As a result, parent and Autism groups around the world
are reacting with horror to the termination of Dr. Wakefield by the hospital.
Now, at the time when his research has been validated by independent
researchers in other countries, Wakefield finds himself on the outside looking
in, at least as far as the Royal Free Hospital is concerned. While he still
will have access to patients that were under his program, according to a
message that he sent to concerned parents. Always the optimist, despite the
jabs made at him by many in the medical community, Wakefield said, "One
great benefit of this arrangement is that I shall no longer have to spend a
considerable amount of time in distracting political negotiations with the
Medical School and will be able to devote 100% of my effort to the research."
I am reminded of the story from mythology in which the messenger who brought
news of the defeat of the army in battle was killed for delivering unpleasant
news to the king. His death, however, did not change the fact that the battle
was lost. In Dr. Wakefield's case, the medical establishment may have tried to
kill the messenger, but the message did not change. It remained constant, and
has now been validated by others.
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******************************
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