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idea that people with H.I.V. should take steps to prevent passing along the
infection may seem self-evident. But health officials have long understood that
a host of factors stress, a craving for intimacy, fear of rejection, drug and
alcohol abuse can cause lapses in judgment and self-restraint that lead people
to have unsafe sex.
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So AIDS educators, alarmed at the continuing spread of H.I.V., have now added
a crucial weapon to their prevention arsenal: educational campaigns encouraging
infected people to take responsibility for not transmitting the virus.
The move represents an acknowledgment that the traditional prevention
approach to AIDS teaching people how to protect themselves from infection in
the first place has lost some of its effectiveness. Better treatments have
improved the health and extended the active sex lives of people with H.I.V. and
have also made many others less fearful of contracting the virus, researchers
say.
"Of course people want to be responsible," said Chris
Wittke, H.I.V. prevention manager at the
AIDS Action Committee of Massachusetts, which has sponsored an advertising
campaign focused on H.I.V.-positive men. "But that's an intellectual argument
that doesn't take into account the factors that go into how people have sex and
relationships, like love, lust, heat, desire and need."
The Centers for Disease Control and Prevention, which estimates that 900,000
people in the United States now have H.I.V., hopes to reduce the number of new
infections to 20,000 a year by 2006, from 40,000. As part of that effort, the
agency is spending $3.8 million a year for "prevention for positives" programs
in California, Maryland and Wisconsin. Other states and cities have started such
programs on their own.
The "prevention for positives" efforts cover a variety of activities. In San
Francisco, the Stop AIDS Project, a community-based advocacy group, is
sponsoring discussion groups for gay men with H.I.V. that specifically address
ways to sustain safe sex practices. In Modesto, Calif., health educators are
trying to help physicians improve their skills in discussing risk reduction with
their H.I.V.-positive patients.
One high-profile effort is an advertising and Internet campaign called "H.I.V.
Stops With Me," which began in San Francisco two years ago and has been expanded
to several other cities, including Los Angeles and Boston. It features people
with H.I.V. who appear on television commercials and billboards, tell their
stories on the campaign's Web site (www.hivstopswithme.org) and respond to
e-mail messages.
The representatives sometimes discuss their struggles in highly personal
terms.
"The risks I took and the positions I put myself in with random strangers in
dark, sometimes unsafe places, is enough to make my skin crawl," wrote Troix, a
27-year-old veterinary assistant in Boston. "I was lonely, hurting and too
wrapped up in my own drama to step outside of myself and remember what it was
like for me to get back that positive result."
The new educational efforts have not pleased everyone. Billy Curtis, a San
Francisco youth counselor, said he was horrified when he first saw the "H.I.V.
Stops With Me" advertisements because he thought they made scapegoats of people
with the virus and absolved the uninfected of having to think about protecting
themselves.
"You're saying to people you have irresponsible H.I.V.-positive people
infecting these innocent H.I.V.-negative people," said Mr. Curtis, who is gay.
"But ultimately I am responsible for whether I seroconvert or not."
But supporters of the campaign say that a vast majority of prevention efforts
still focus on those who are not infected, and that the intent is not to pass
judgment but to offer emotional support to people with H.I.V.
Bob Lawrence, a Modesto gay man with H.I.V. who serves on a committee that
advises county officials on prevention of the disease, said that at first he
also opposed the idea of directing campaigns at infected people. But after
hearing more about the concept, he changed his mind. Part of the message the
county needs to convey, he said, is that H.I.V.-positive men who have unsafe sex
are not only endangering others but are at greater risk for contracting other
sexually transmitted diseases and, possibly, drug-resistant strains of H.I.V.
"I was around back in the days when gay men were told we deserved AIDS
because we were an abomination, so my initial reaction was that this was like
saying gay men have to stop having sex," he said.
"But then I started looking at this as a way of helping H.I.V.-positive
people make healthy decisions."
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"A foolish faith in authority is the worst enemy of truth."
-- Albert Einstein, letter to a friend, 1901
"I know of no safe depository of the ultimate powers of the society but the people themselves, and if we think them not enlightened enough to exercise control with a wholesome discretion, the remedy is not to take it from them, but to inform their discretion by education."
-- Thomas Jefferson, letter to William C. Jarvis, September 28, 1820
"What's the point of vaccination if it doesn't protect you from the unvaccinated?"
-- Sandy Gottstein
"Who gets to decide what the greater good is and how many will be sacrificed to it?"