My name is Julie Duffield. I hold a degree in Math and Chemistry
from Brigham Young University, and I have 2 children with Autism. We
have had incredible experiences working with our children through
biomedical treatment, and we hope for a full recovery. At this point,
many educators and psychiatric evaluators comment on our children's
improvement socially, but we don't feel like our children are out of
the fog yet. This is a short version of our story. Even though I can
only tell one item at a time, some events and treatments overlap.
Let me start with my oldest boy, Michael. He was a the happiest
child we'd ever seen. He was plump and all smiles. He was learning how
to sing, talk and dance. He loved to lead music as it played, and I was
convinced that he would be a drummer or have something to do with
music.
I found out that I was pregnant with my second child. We were so
excited, since Michael was such a joy. Relatives and friends would warn
us that the next one could not possibly be as easy to deal with as our
wonderchild Michael. We often had people offer and even beg to babysit
little Michael. If it weren't for his frequent ear infections and
antibiotics, he would have been the perfect child.
Then, we brought in Michael to his 18 month well baby appt. We gave
him Tylenol before going to the doctor's, since he had high fevers
following his previous vaccines. He received 4 vaccines on that day. He
started screaming, and straightened out his whole body stiff, and
jerked in my arms as they administered the rest of the shots. They were
prepared to give a 5th shot of chickenpox, but I declined.
I had never seen my boy react like this to pain. The convulsive type
motion was blown off by the doctors as my son's anger at my allowing
him to have the injections. I thought that might be a possibility, so I
shrugged my shoulders as I took my screaming child out of the office.
Michael had a fever within 4 hours of the shots. It got up to 104,
but we knew this was normal, so we kept giving Tylenol as the doctor
had recommended. On the third day of the fever, I called the doctors
office. The nurse said that if it was still there on the 4th day, we
should come in. We came in on the fourth day, where we were told that
it was most likely a viral infection, and there was nothing they could
do. If it got worse, we should come back. "Worse than 104?" -- was to
be my question over the next 3 months solid of fevers. Instacares,
Nightime pediatrics and even emergency rooms were no help either. The
high was 105.7 under the arm, and Tylenol would bring it down to 101 or
102 temporarily. The average remained around 104. We were told that the
vaccines could have nothing to do with the sickness, since the
pharmaceutical pamphlet said that the fever would only last 1-3 days.
It had to be something else.
During this three month period, Michael lost all of his social
skills. His speech was replaced by angry grunting. He didn't
understand what we were saying. He was scared of most sounds, and no
longer liked music. He was inconsolable during the 4th of July
fireworks. He would cry all of the time. It was absolute Hell to watch
his regression, which we associated with his being ill. An ear
infection developed at the end of the three months, treated with a
round of antibiotics, finally stopped the fever.
The misery we experienced while he was ill, was nothing compared to
the horrors that began when the fever finally stopped. He began to
deteriorate into a stick figure child. He lost weight, and wore the
same clothes size for over a year and a half. Growing babies are not
supposed to stay the same size, and we became quite concerned. Michael
wouldn't sleep. He would nap at about 6AM, and wake up 2 hours later.
Sleep meds only seemed to make him more wild. I was sick from being
pregnant, and needed to wake at 6AM for my science teaching position.
My husband often had to work late with his job, so I would be up with
Michael till one or two in the morning, while Joe would stay up the
rest of the night with Michael. Our house was a constant nightmare. My
husband and I were at our wits end. We never saw each other, since he
needed to sleep whenever we were both home at the same time, to make up
for lost sleep taking care of Michael.
The most disturbing behavior from Michael, was his willingness to
slam his head against walls. He would zone out, and laugh as though he
were drunk. He would often get on all fours and slam his head downward
on the hardwood. Another thing that bothered me, is that he'd slowly
push his eyeballs backward into his sockets. We would have to restrain
him often, to avoid serious damage.
When we went back to the family practitioner who had given the
shots, the Family practitioner treated my visits as though I were an
overconcerned mother. He thought Michael was going through a phase, and
injuring himself to get attention. He did offer to give me
anti-depressants. I didn't think that drugging mom would solve the
problem, so we never returned to that doctor. It took us 5 months to
find a new doctor who would work with my public education insurance. We
were on multiple waiting lists to get Michael evaluated for a
developmental assessment.
During that time, we dealt with all of the glaring eyes, with
neighbors and relatives thinking we were the worst parents in the
world. Everyone had advice. ...If you would sing to him more...If you
would only read books to him!... If you just would forbid TV...If you
would stay home instead of working...If you would just get his sleep on
schedule...Maybe you should get his hearing tested... even though we
knew he could hear an ambulance approaching before the rest of us. No
one really understood, and we couldn't explain it either. It wasn't
much fun to visit others, and fewer people came to visit us.
Michael was diagnosed with Autism, 2 weeks before Jessica was born.
We were told such things as, you will have to institutionalize him when
he gets strong enough to hurt you. Therapy is the only option. He might
learn to use the bathroom by himself by the time he's 18. Ritalin and
other psychotic drugs are the only way to improve your life at
home. Autism can't be treated, it is lifelong.
We were essentially written over to the mental health department,
with no recommendation for testing on what was going on internally in
our boy. We were told we would have to wait 6 months before
Michael would be able to go to the autism school. This was his only
hope of improving. Ear infections and other illnesses continued, and
Michael was often in need of stronger antibiotics. We worried that our
options of antibiotic treatment might run out. He seemed to develop
resistance to them quickly.
Friends began to bring us literature on biomedical treatment for
autism. We put Michael on the GFCF diet. After 3 days, he started
to make eye contact, and began sleeping through the night. We were
quite encouraged, and began to search for biomedical factors in autism.
We also were worried about Michael's weak immune system and possible
IgA deficiency, so we looked for what might help the immune system.
It was this point in time that we ran into the Mothers Milk Club of
Utah. They had organized a supply of Mothers Milk to give to children
with weak immune systems. The university hospital provided the bulk of
the donations. You must understand, that the use of the breastmilk was
intended to treat immune function, not autism. As we gave Michael
breastmilk from myself, friends and the hospital, not only did the ear
infections stop for good, his autism started to go away.
Michael began hugging me. He became quite social and sought
attention from others. He started babbling more. He seemed to snap out
of his little world. We were so pleased. We found that we weren't the
only ones benefiting from the breastmilk with autism. There was a
growing group in the Mothers Milk Club who were having similar success
stories. I found it fascinating that children with autism often have
altered immunity.
Since then, Michael has been diagnosed with a low IgA level, heavy
metal toxicity from mercury, aluminum, lead, cadmium, arsenic and
antimony (similar to that of an Alzheimers patient), Autoantibodies
that attack his own brain protein (Myelin Basic Protein and NeuroAxon
Filament protein), abnormal EEG, Irritable Bowel Syndrome, seizure
disorder, elevated measles titer, nutritional deficiencies, inability
to properly digest food, Magnesium deficiency and Zinc deficiency --
among other diagnosis.
For those who may not know, having autoantibodies to the brain
indicate that the body is attacking it's own brain protein.
The breastmilk seemed to keep most of his symptoms at bay. We had
people raving that he didn't behave as though he were autistic anymore.
You can tell he has symptoms if you work with him directly, but his
play and happiness appeared quite normal.
Then, we lost the breastmilk donations through the university
hospital. The head nurse didn't want to use up their freezer shelf
space for the program, and didn't want to be hassled with any
inconvenience. The other nurses would still try to collect milk for us
for a time there, but pretty soon the pressure from superiors and the
inconvenience stopped the donations completely.
We kept up with the breastmilk for awhile through my pumping milk
and through donations from friends, but some weeks we'd have plenty,
and other weeks we'd go without. The worst part, was to watch Michael
regress into old behaviors when we didn't have enough breastmilk.
This is when we discovered Transfer Factor. A woman who was using
this to keep her diabetes at bay called me about it. We started using
the TF whenever we didn't have breastmilk. We'd use up to 9 a day. As
far as we could tell, the TF had the same effect as the breastmilk. We
just made sure we supplemented with Vitamin A, taurine and fish oils -
to make sure he was getting the nutrients he used to receive from the
breastmilk.
We have since used secretin, chelation for heavy metals, liquid
magnesium, zinc, calcium, molybdenum, Selenium and other supplements.
We try our best to keep up to date on nutritional deficiencies found in
Autism, so that we may find other helpful treatments for our son. We
are also paying more than what we make on ABA therapy, which goes well
when we get the right supplements into him. Our son is improving
quickly. He is now 3 1/2, and is well on the road to recovery. His
language is coming the slowest, but he is now imitating sounds, and is
starting to understand basic commands. He improves each time we chelate
the heavy metals. We really feel like the Transfer Factor sustains him
through the chelation process.
As for my daughter, well, her story is completely different. She
reacted to her first Hepatitis B shot as a newborn. She developed
lesions in her mouth and rectum, and it was suggested that the lesions
may be running all of they way through the digestional tract. After
that shot, we decided that we'd never give her another. They say the
serious reactions are one in a million, but we have seen two of our own
children react. Interestingly enough, no doctor reported our
children's reactions to their vaccines. If adverse reactions are not
reported, how can we know the true stats on reactions to vaccines?
This is when we started studying the immunizations, to find that
they contain Mercury, Aluminum, Formaldehyde, foreign DNA and other
toxins including the mutated virus or bacteria that is the vaccine. All
of these components are capable of changing humans genetically. Mercury
and Aluminum have terrifying implications. Mercury will build up in the
bodily organs - the liver, kidney and brain - and interfere with all of
the bodily systems. One major sign of mercury poisoning (since it will
not show up in urine, blood or hair unless the exposure is recent), is
that the individual seems to have lost their ability to detox heavy
metals and viruses. They will accumulate these toxins with a lower
exposure than others, which interferes with the bodies ability to
process necessary minerals properly.
Recent congressional hearings lined up the symptoms of mercury
poisoning to the symptoms of Autism, and they matched perfectly. Even
though major government groups maintain that there is no proof that
mercury is a problem for babies, they are requiring the pharmaceutical
companies to get it out of the vaccines. No recall of mercury vaccines
has taken place, however, so no financial burden would be placed on the
manufacturers.
One question, why do some kids react badly to the mercury, and
others do not? Are some vaccine lots higher in mercury that others?
When a nurse preps the vaccine, and uses it on 3 children, is the child
with the last use (where all of the settled vaccine product
accumulates), getting a higher dose of virotoxin with the mercury? Is
it purely an allergy issue? Does it depend on how many shots the child
receives in a day? Does it depend on the child's previous
exposure to toxins?
We were glad to find out this info, so we could do better by
Jessica. We decided to avoid heavy metal exposure. We started drinking
reverse osmosis filtered water. We avoided Fluoride, which is known to
carry Lead across the blood/brain barrier. We avoided milk, in case she
had a sensitivity to it as Michael did.
So, we stood and watched Jessica develop a bit behind schedule.
We were highly concerned for her welfare. She was slightly behind on
milestones, but not enough to show big concern. She smiled and made eye
contact, and would imitate us. At her one year doctors appt, she would
clap her hands, do the indian yell and do actions to children's
songs. Her speech was simple babble, but multiple consonants were
included in the babble. She knew her own name, and she loved to cuddle.
Then, somewhere between 13 and 14 months, she started to regress.
She could no longer imitate song actions. She stopped babbling
completely. She didn't seem to know her name - and she stopped making
eye contact. She exhibited some seizure activity, in the form of
altered eye dilation and zoning. Sometimes - without a change in light
intensity - her eyes would dilate and then the pupils would snap back
to a small size. She moved strangely in her sleep, as though she were
having nightmares. Her arms would spread out and she would have strange
tics.
We took her to her pediatrician at 16 months, who couldn't believe
what she saw. She had truly regressed. Her muscle tone had gone down,
and her walking was now a bit unsteady. Her eye contact was rare, and
she'd avoid looking at mommy. She refused to go to anyone but mom,
since mom would breastfeed her.
She received a diagnosis of Autism by age 17 months. We started her
on Transfer Factor and chelation, and she has improved dramatically.
She is now 18 months old. We took her back to the psychiatrist who
initially evaluated her, and she says that Jessica is a different child
than she was two weeks prior. She is not 'cured' or 'recovered', but
she makes eye contact, smiles and is gaining back her imitation. She is
playing with toys again. The great thing, is that she is so young. At
18 months, she has gained what she lost before the regression, and we
know she responds to biomedical treatment and ABA. She should come back
even faster than Michael.
As a result of her regression and dramatic improvement, we have had
our home, soil and even my breastmilk tested. Our home is high in Lead.
Our soil had elevated lead in certain areas. My breastmilk has arsenic
and trace amounts of lead coming through. When we tested our families
immune systems, we found that Jessica also had autoantibodies to her
own brain, and a high Human Herpes Virus 6 titer. This would explain
why Transfer Factor would help. As for me, I have an incredibly high
Rubella titer, which suggests an atypical rubella infection.
We have to sit and wonder, did the Lead in our home set up our kids
for the vaccine reaction, or did the mercury in the vaccines make my
children more susceptible to the lead? Are my children hypersensitive
to mercury, or did my case of rubella from my adult MMR shots set me up
to weaken any children while in utero?
Some good news, is that the removal of mercury can reverse the
presence of autoantibodies to the brain. In the meantime, Transfer
Factor can regulate the immune system from doing more damage.
Seizure activity in autism, took a lot longer for us to figure out.
We didn't know that Michael had seizures till we had an EEG done. Some
children with autism have a normal EEG, but seizure activity shows up
on a MEG scan. Michael's EEG showed that he has more when he's asleep
than when he is awake. We have come to recognize his staring spells and
strange eye movement linked to his seizures. In some cases, we notice a
seizure when we see his pupils dilate completely, then snap down to
size again -- with no change of light on his eyes. On occasion, we
would see more serious seizures where he would clench his fists and
shake. We previously thought these were tantrums, since they would
usually accompany stressful situations. We didn't know that stress
could trigger seizures. We didn't know much about seizure activity at
all, when you come right down to it. We began to notice 7 to 10
seizures a day, after we knew what to look for. I often wonder if
seizures are more prominent in autism than previously thought.
We have been able to keep seizures at bay, with the liquid
magnesium, activated B-6 vitamin, taurine (an amino acid) and
pycnogenol (maritime tree bark). When we can sneak all of these
supplements into Michael's sipper cup, he has no more visible seizures.
If we leave even one of them out, we see 3 or 4 seizures a day. As for
pycnogenol, the highest quality product that we can find, is Choice
Prime from 4Life. We aren't sure if the pycnogenol from grapeseed has
the same effect. It might.
We are so pleased that we have found a seizure control that works
without doing damage to the liver or interfering with other body
functions. We couldn't use standard seizure meds, since my boy's liver
was already in such bad shape.
With as much help as the supplements can be to a child with Autism,
you can expect a different amount of time to see results. For
example...when some children have a chronic infection with a hidden
virus, they will most likely get sick on Transfer Factor before they
get better. This does not mean they are reacting to the Transfer
Factor, but that the Transfer Factor is working. If the virus or
bacteria in the child was able to trick the child's immune system into
believing that it was not a threat, the Transfer Factor will suddenly
alert the body of the foreign presence. This is why the child might get
ill for days, or even weeks before improving. Remember, illness after
starting Transfer Factor is a good indicator that the Transfer Factor
is working.
The more cleanup that must be done in the body, the longer it will
take to see the positive effects of the supplement. Some people may
notice an effect within days, but you shouldn't necessarily give up if
it takes months for your particular child. As in all cases, trust your
gut feeling, to decide if you should raise or lower the amount of
supplement given. The parents are the most perceptive in knowing
whether or not a supplement is helping their child. Transfer Factor may
not alleviate autism symptoms in some children, but help them remain
healthy as the parents work with their particular child's case.
There is so much internal repair to do in Autism, that it is
necessary to keep looking for answers for your child. Even my two
children are not alike in treatment and response. Treatments that are
perfectly safe, such as essential fatty acids, Transfer Factor or RDA
vitamin dosage are easy to jump into, while chelation therapy or high
dosage vitamins should be studied and used under direction of a
physician who is educated on biomedical treatments for Autism. Again,
you are the only one who will have the insight to see if the treatment
is helping your child.
I suspect that most families will not receive all the diagnosis of
my children, but I hope that the biological side of Autism will become
well known for families and physicians. I must stress that what I've
written is not the only answer for these children. Each child must be
looked at as an individual.
I hope our particular families case will help bring hope to others.