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SCHAFER AUTISM REPORT                "Healing Autism:

                             No Finer a Cause on the Planet" ________________________________________________________________

Tuesday, November 18, 2003                      Vol. 7  No. 231

 

 --- > PROMOTE YOUR MEETINGS, CHAPTER OR CONFERENCE

             No Cost to List

       In the Largest, Widest Read "The Autism Calendar"tm

       http://home.sprynet.com/~schafer/frm/calendar-form.htm

 --- > NOTE CALENDAR DEADLINE ** Nov 24 ** FOR DEC UPDATE

 

 

    EDUCATION

   * Catholic School Program in PA A Model For Special Education Nationwide

 

    CARE

   * $800,000 from US Dept. HHS To Prepare Law Enforcement for Mentally Ill

   * Medical Errors Pose Deadly Threat

 

    FORENSIC

   * Death Probe Frustrates Mom

 

    TREATMENT

   * The Specific Carbohydrate Diet & Advanced Dietary Interventions

 

    EVENTS

   * Jacob’s Bridge Kid’s Day Out Fun Clinic in New Hampshire

 

    READERS’ POSTS

 

 

EDUCATION

 

Catholic School Program in PA A Model For Special Education Nationwide

 

            “I told her she has to stay with us forever,” said her

      mother, laughing. “But if we help her manage her money and things,

      I know she could keep a job and live on her own.”

 

      [By Angela Boseman, Pittsburgh Post-Gazette.] http://www.post-gazette.com/localnews/20031117stanthony1117p3.asp

 

      Twelve years ago, when Lisa and Joe Rajakovich's oldest child started first grade at Word of God Elementary School, they were thrilled to discover that children with autism and other learning disabilities would be in his classes. Because of a new program at the Swissvale school, Dan Rajakovich learned to appreciate that he and other students who weren't “typical” were “different but the same” as they participated in sports and learned the fundamentals of art, music and other subjects together.

      But after their fourth child, Maria, came along, the Rajakoviches' feelings about the program ran much deeper. Maria was born with Down syndrome, and she was able to follow her three siblings to Word of God.

      “It was such a comfort for us to know that she could go,” Lisa Rajakovich said. “We're so fortunate that our diocese offers a wonderful program like this because a lot of other dioceses don't.”

      The program at Word of God is an outgrowth of St. Anthony School Programs, which celebrates its 50th anniversary this year.

      Now operating at 11 schools throughout the region -- seven elementary, three secondary and Duquesne University, where students receive vocational training -- it has become a nationally recognized model for inclusive, Catholic special education.

      Thomas O'Toole, executive director of St. Anthony School Programs, said it was unique because it is “the only program where a child can enter in kindergarten and, at age 21, still be in a setting with peers. Others do inclusive education at elementary and high school levels, but no one is close to ours with different sites and, especially, with Duquesne.”

      The program encourages academic excellence through basic elements such as homework and class participation while focusing on vocational skills such as day-care assistance, mail room training and other support functions.

      “What sets it apart from others in its class is that everything comes from the religious standpoint that everyone is equal in God's eyes,” said Lisa George, director of education for St. Anthony. “It's a loving, caring environment because it's Christ-centered.”

      That was part of the reason the Rajakoviches enrolled Maria, now 9, in the program, but their connections to Word of God went beyond their four children.

      The couple met in kindergarten at the school when it was called St. Anselm, dated in high school, married and chose to raise their family in the same neighborhood and at the same school where their story began.

      “We wanted Maria to have the religious aspect, and it's nice to continue the family tradition,” Lisa Rajakovich said. “Plus, she's flourishing there. She's reading and spelling and writing.”

      So is Nicole Hardiman, of Regent Square.

      Public school teachers said Nicole would always be in special education classes. She couldn't read, and they said she'd never be able to learn.

      Mary Ann Hardiman didn't buy any of that, so she sent her daughter to Word of God the year St. Anthony School Programs began operating there. Nicole was in the second grade.

      “I'll never forget,” her mother said. “She came home and said she had a surprise for me, then she read a book. I was in tears. Her progress has been phenomenal.”

      Nicole Hardiman continues to defy the odds.

      Last year, she was awarded the St. Joan of Arc Medallion from St. Lucy's Auxiliary to the Blind in recognition of more than 100 hours of community service. She was the first student from St. Anthony School Programs to receive the award, which honors Catholic high school students for their achievements in volunteerism.

      Now, at 19, she is enrolled in the program's site at Duquesne, where typical college students act as job coaches for her vocational training. She works with children at Carlow College School and is preparing possibly to become a teacher's aide.

      “She loves Duquesne and she loves kids,” Mary Ann Hardiman said. “It's amazing how she has grown from second grade into this beautiful young lady. She's her own person.”

      Nicole's is one of many St. Anthony success stories. Over the past 50 years, 789 students have been served and more than 95 percent of post-secondary graduates have been placed in the work force.

 

How it works

      The program's goal is to promote independence. Teaching methods that organize and structure learning are used mainly for students with autism, though they work well for all students.

      George oversees the education process for the program.

      “Our expectations are high,” she said. “We demand a lot, not only for academics but also for social skills and behavior, because that's what will carry on in life.”

      About 50 percent of students in St. Anthony School Programs have learning disabilities or subnormal IQs, 30 percent have autism and 20 percent have Down syndrome.

      Though students don't have to be Catholic, those who aren't pay higher tuition.

      “They make sacraments with their class, and that means a lot to Catholic parents,” George said.

      St. Anthony students' main classroom is called the “resource room.” The student-to-staff ratio is 3-to-1 with a maximum of 13 children at each site.

      Students are assigned to age-appropriate homerooms and included with their general education peers 50 percent of the time.

      “We find that their friends and peers are the best teachers, because they learn from them by example,” George said.

      A student's Individualized Education Program in the resource room encompasses reading and language arts, math, handwriting, computer and social skills. It ensures that each continues to learn at a pace that fits the student's abilities.

      Students with more severe needs work in the resource room more often. They stay with their homerooms mostly for classes such as physical education, social studies, religion and music, in addition to Mass. Those who can handle other academic classes are included as much as possible.

      “Inclusive class skills determine success with their peers,” George said. “Raising their hand, being prepared for class, doing homework, and following rules, plus functional things like counting money, shopping and telling time, are part of the focus. The goal is for them to be productive citizens of the community.”

      Mary Ellen Begley, a special education teacher at Word of God, said: “Kids progress because of the interaction and support. Students here look out for our students. They're invited to birthday parties and they participate in all extra-curricular activities.”

      Mary Ruth Nardozzi is one of many students who enjoys the support of peers and teachers.

      “I'm 13, a teenager!” she said with a broad smile after being congratulated for spelling her last name.

      She said her favorite part of school was music class and that she had lots of friends: “Everyone is nice.”

      George agreed that that was why students such as Mary Ruth excel.

      “Our kids end up being the most popular in the whole school since everyone knows who they are,” she said. “Other parents always say they like it because it teaches their kids acceptance and how to be a better person.”

      Hardiman said that attitude helped her daughter to develop the confidence she needed to exceed expectations and strive toward independence.

      “The teachers were so kind, considerate, and open,” she said. “They told the kids that the students from St. Anthony are just like you and me, they just learn differently. I've never met more caring teachers than the ones at Word of God and St. Anthony.”

 

Looking ahead

      On Friday evening, St. Anthony School Programs held its annual Opportunity Award Dinner to kick off the yearlong 50th anniversary celebration. The event is a major fund-raiser for the program, which relies on the support of donors.

      Over the years, the list of donors has included local community leaders and Robert F. Kennedy, who donated $50,000 from the Joseph P. Kennedy Foundation in 1962.

      In the meantime, students and parents such as the Rajakoviches remain grateful.

      “In my research online, I've found that many other parents who have kids with Down syndrome are frustrated because there's no inclusive religious education in their area,” Lisa Rajakovich said. “We're so fortunate that our diocese sees the need to support and offer it.”

      O'Toole wants to add more sites to make the program available to every child in the diocese.

      When the opportunity is given, the possibilities are endless: Maria Rajakovich said she wanted to be a cheerleader and a doctor when she grows up; her mother is a pediatric nurse.

      Nicole Hardiman, who recently visited the apartment of a friend from Duquesne, now wants to move out on her own.

      “I told her she has to stay with us forever,” said her mother, laughing. “But if we help her manage her money and things, I know she could keep a job and live on her own.”

 

 

 

 

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* * *

 

Advocacy Basics from Wrightslaw

 

      [Thanks to the AutismLink list.]

 

      Wrightslaw, an excellent resource on advocacy in the educational system, has a great series on behavior problems and how to address them in the schools. http://www.wrightslaw.com/

 

      Behavior Problems: What Schools Are Obligated to Do by Pete Wright http://www.wrightslaw.com/advoc/ltrs/behavior_obligate.htm

 

      Functional Behavior Assessments: What? Why? When? Where? Who? http://www.wrightslaw.com/info/discipl.fab.starin.htm

 

      Are Children with Disabilities Required to Take High-Stakes Tests? http://www.wrightslaw.com/advoc/ltrs/exempt_state_tests.htm

* * *

 

CARE

 

$800,000 from US Dept. HHS To Prepare Law Enforcement for Mentally Ill A Ventura County program aims to teach law enforcement how to defuse delicate encounters

 

      [By Sandra Murillo.] http://www.latimes.com/news/local/la-me-crisisteam12nov12,1,1946717.story?co

ll=la-headlines-california <- - address ends here.

 

       Two years after launching the training program, Ventura County sheriff's officials Tuesday lauded the success of a course designed to better prepare law enforcement officers in dealing with the mentally ill.

      To date, 251 officers from six local law enforcement agencies have completed the Crisis Intervention Team Program, which officials credited with helping to save lives by defusing potentially violent situations.

      “Although you can't quantify it, I know anecdotally it's saving lives, time and time and time again,” Sheriff Bob Brooks said during a presentation to the Board of Supervisors.

      At least 20% of local officers and communications specialists have taken the 40-hour course, but the goal is for all patrol officers to receive at least eight hours of training, said Joyce Wilde, program manager. The program is funded with an $800,000 grant from the U.S. Department of Health and Human Services through 2004.

      Wilde said such training has become increasingly important because in a county where there are almost 12,000 adults with severe mental illness, officers often are confronted with difficult and sometimes life-threatening situations involving a disturbed person. On average, county law enforcement officers respond to a minimum of three calls a day involving a mentally ill person, she said.

      “People who used to be housed in psychiatric hospitals, because of the closure of state hospitals and the lack of treatment centers, are now more likely to come into contact with law enforcement,” Wilde said.

      The program was prompted in part by continuing complaints from the community about a lack of police training in dealing with the mentally ill.

      In 2002, the county grand jury issued a report that found that of 32 officer-involved shootings over the previous decade, more than half involved a mentally ill person. It concluded that with the 1997 closure of Camarillo State Hospital, incidents involving mentally ill subjects would continue to rise.

      According to the report, Oxnard police were involved in seven fatal shootings of mentally ill people during the period studied, the most of any local police agency.

      Earlier this year, the city of Oxnard agreed to a $1.5-million settlement with the family of a distraught man who was fatally shot by police in 2001 after his mother called officers to take her knife-wielding son to a hospital.

      Although clearing the Oxnard officers of any crime, county prosecutors found that the shooting may have resulted from faulty tactics by poorly trained officers.

      Today, the county's largest law enforcement agencies - the Ventura County Sheriff's Department and the Oxnard Police Department - have a combined 146 officers that have undergone the crisis intervention training.

      In the class, sheriff's deputies and officers from the Ventura, Simi Valley, Port Hueneme, Oxnard and Santa Paula police departments learn techniques to defuse life-and-death situations.

      With the help of mental health professionals, they learn to recognize when a person is suffering from a psychotic episode. They role-play and learn that the typical commanding police presence is not appropriate in dealing with a troubled person. They learn to speak softly, use a first name and establish rapport with the person.

      “They're there to slow down the situation,” Wilde said. “They immediately come upon it ready to de-escalate the situation.”

      Wilde said the program seems to be slowly working. In the nine months from Jan. 1 to Sept. 30, there were at least 969 incidents involving the mentally ill, she said. In 129 of those, a weapon was involved; 21 cases involved a gun. But only one of the incidents in which crisis-trained officers responded did not end peacefully.

      Last February, an intoxicated 49-year-old man carrying a kitchen knife and suffering from psychosis called police from his Oxnard home saying he was suicidal. Crisis-trained officers arrived at the scene minutes later to find a paranoid and agitated man threatening them with a knife.

      Officers talked to him for 20 minutes, eventually calming him down.

      They were able to transfer him to a county mental health facility.

      For Wilde, the incident is an example of how far law enforcement officers have come in a short time.

      But even as the program progresses, the county has seen several officer shootings involving the mentally ill in recent months.

      In April, deputies fatally shot a 19-year-old man suffering from bipolar disorder and psychosis as he approached a crowd at a Thousand Oaks swim school after he was seen cutting himself with a knife.

      In March, a 56-year-old emotionally distraught woman was fatally shot in her car at Point Mugu State Park after a standoff with deputies. She had a gun in her possession.

      Crisis-trained officers were not involved in either incident.

      The Crisis Intervention Team was originally formed to train police officers in hostile situations but now also works to help authorities identify and provide referral services for mentally ill people with frequent run-ins with law enforcement, Wilde said.

      “We're just getting up to speed right now,” Wilde said. “I strongly feel that the Crisis Intervention Team will bear out over a period of time.”

* * *

 

Medical Errors Pose Deadly Threat

 

      [By Heather Simonsen.] http://www.sltrib.com/2003/Nov/11182003/tuesday/111976.asp

 

        Medical errors are one of the leading causes of death and injury in the United States. According to a study done by the Institute of Medication, as many as 98,000 people die in U.S. hospitals each year because of medical mistakes. More people die from medical errors than from motor vehicle accidents, breast cancer or AIDS.

        For child patients, the risk is even greater. According to the Journal of the American Medical Association, the chance of your child falling victim to a prescription medicine error is three times more likely than such errors are in adults.

        “Frankly, I'm just shocked,” says Sara Christensen, a Holladay mother of four, when told these statistics. “You don't hear about medical errors as much as you do motor vehicle accidents and AIDS.”

        Christensen's youngest daughter suffers from autism, a developmental disorder. She says parental perseverance is key in making sure her daughter gets the best care possible.

        “Nobody cares about your child except you and your spouse,” she says. “Your doctor can't care that much. It's a sad realization, but [he has] 100 patients just like you.”

        “It's very important for families to be very involved in their children's medical care,” agrees Howard Parker, patient safety manager at Primary Children's Medical Center. “The systems we have are good, we make few errors. But we still make errors. We're human.” Primary Children's created Parker's position last year to lower the risk of medical errors. The job is representative of a new trend among hospitals around the country whose officials have growing concerns about the number of medical mistakes.

        Primary Children's Medical Center did not want its rate of medical errors published. Parker says anytime the hospital has an unexpected death it conducts a full investigation.

        Medical mistakes occur when a doctor prescribes the wrong medicine or a pharmacist misreads a prescription and fills an inaccurate dosage. They also happen when doctors use the wrong plan to care for a child, or technicians make mistakes on a lab report. Knowing what questions to ask and what key things to look for will help you avoid such mistakes.

        “The medical community as a whole has become very concerned about the problem of medical errors -- it's become a major topic in health care,” Parker says. “It's always been a problem but it was an invisible problem until a few years ago, because we're aware health care is improving as whole.”

        The best thing you can do to protect against medical mishaps is to take an active role in every decision made regarding your child's health care, according to the Agency for Healthcare Research and Quality, or AHRQ.

        “Don't make assumptions. Don't assume that everything is correct,” says Parker. “Use your own judgment. If you see something that looks out of the ordinary, speak up. We've been too trusting of physicians in the past. It's healthy to question them.”

        Specifically, make sure your doctor knows every medicine your child is taking, including prescription, over-the-counter medicines and dietary supplements such as vitamins and herbs. Also, make sure your pediatrician is aware of any allergies your child might have.

        “Parents can and should be a backup to prevent medication errors. They should ask questions to pharmacists and physicians,” says Parker. “Often there are interactions between prescribed medications and herbal remedies.”

        When your doctor writes a prescription, AHRQ recommends you make sure you can read it. If it's not legible to you, it may not be to your pharmacist, either. Ask your doctor to write the name of the drug in block letters.

        Eighty-eight percent of medicine errors involved the wrong drug or the wrong dose, according to a study by the Massachusetts College of Pharmacy and Allied Health Sciences. AHRQ recommends you always ask the

pharmacist: “Is this the medicine that my child's doctor prescribed?”

        “Any time you pick up a prescription you should make sure the label on the bottle matches the prescription and has the correct information on it -- name of the child, pediatrician,” says Parker. “Read the instructions . . . before you leave the pharmacy and ask the pharmacist any questions you have rather than getting home and trying to figure out 'what does this mean?' “

        Directions on medications can be confusing. For example, AHRQ advises you ask the pharmacist if “four doses daily” means taking a dose every 6 hours around the clock or just during regular waking hours. Also, ask the best way to measure your child's liquid medicine (household teaspoons do not always hold true to the measurement of a teaspoon of liquid). Ask about possible side affects and ask for written information you can refer to later at home.

        Look out for inconsistencies in your child's medication. Parker says, “If this [medication] is a refill, make sure it looks the same. If they're used to taking white pills and all the sudden they have a blue pill, you should inquire about this.”

        If your child is hospitalized, the same set of rules apply. But monitoring their drug intake at the hospital is more difficult because nurses fill the prescriptions and administer them to the child. Yet, the need to double check each dose for accuracy is even more important in the hospital because the medications tend to be stronger and more potent -- thereby increasing the risk of serious harm in the event of a mistake.

        “Ask: 'what is this drug? What does it do? What should I expect to see? Is it going to make her sleepy? Will it ease her breathing?' “ Parker says. “Having parents with their children is something we recommend. “

        Christensen, the Holladay mother, says being up front with her child's pediatricians can be daunting.

        “I do ask questions. But I feel like the doctors are patronizing,” she says. “Sometimes the doctors try to simplify so I'll understand, but they don't give me the benefit of the doubt that I might know what's going on with my child.”

        The experts at AHRQ say if you have a choice, choose a hospital where many children have had the same surgery or procedure done that your child needs. Finding a hospital with specific experience in her surgery decreases the likelihood for error.

        While in the hospital, make sure your child always has on her identification bracelet.

        Also, ask all health care workers who come in contact with your child to wash their hands first. AHRQ says that when parents make such requests, doctors and nurses tend to wash more often and use soap.

        For more online information about how to prevent medical errors in children, visit http://www.ahrq.gov/consumer/20tipkid.htm.

* * *

 

FORENSIC

 

Death Probe Frustrates Mom

Michigan woman seeks answers about restraint of son at school

 

            "You don't know how Michael loved life.

             Michael didn't want to die."

 

      [By Stephanie Esters For The Kalamazoo Gazette.] http://www.mlive.com/news/kzgazette/index.ssf?/base/news-7/1069086296300160.

xml

 

      Nearly three months after the death of her son at Parchment High School, Elizabeth Johnson is searching for answers.  She doesn't know the cause of his death.

      She hasn't been told the details of what happened.

      She doesn't know for sure how or why her son was physically restrained by school staff, or why medical personnel weren't called sooner.

      Today would have been the 16th birthday of Michael Renner-Lewis III. Instead of celebrating, the Portage mother is filled with frustration at police and school officials as the investigation into the boy's death continues.

      “The thing that hurts me is ... I cannot get any information,” said Johnson, who initially urged patience with the investigation, in her first personal interview about her son's death.

      “I am upset at the school. I'm angry, frustrated ... (The attitude seems to be) don't talk about it.”

      Michael, who was autistic, died Aug. 25 on the first day of school. Police said the 6-foot, 165-pound boy was physically restrained by several school staffers after he experienced “seizure-like” symptoms and became agitated about 12:30 p.m.

      At some point, the boy became unconscious. He was pronounced dead at Bronson Methodist Hospital at 2:30 p.m., although Johnson says it's her understanding Michael was dead when he arrived at the hospital.

      The initial autopsy did not establish a cause of death.

      Officials from the Kalamazoo Regional Educational Service Agency, which employed the aide who worked with Michael, and the Parchment School District are declining comment about the death and have referred inquiries to their attorneys.

      Johnson said school officials also are not talking to her.

      “They're not giving the family any idea of what happened,” said Karen Brown, a family friend. “Our best information has come from the Gazette.”

      Craig Mutch, a Grand Rapids attorney who represents KRESA, said today it is his understanding that some information has been shared with Johnson, but noted the police investigation in the case is not yet complete.

      “From our point of view, our hands are tied,” he said.

      Calls from school Michael was his usual happy self that Monday morning, his mother remembers, playing his favorite song, “I Can Only Imagine,” over and over in his bedroom.

      He was excited about the start of his sophomore year, dressing in the acid-washed jeans and black-and-beige checkered shirt that he had meticulously ironed and laid over a chair the night before, Johnson said.

      Michael headed off to school around 7 a.m., and Johnson went to her nursing job in Kalamazoo. She planned to leave work early that day to pick up her son and hear about his day.

      But around 12:50 p.m., Johnson said, she received a call at work from a woman who described herself as Michael's teacher.

      The woman told her that Michael had had a seizure and was now asleep, but that he needed to be picked up.

      Johnson said she interrupted the woman when she mentioned a seizure. “I said, 'No, uh-uh, he never had a seizure in his life.' “

      When the call came, Johnson was in the midst of helping with a medical procedure. Since the call didn't sound urgent, she asked a friend, Phyllis Wall, to pick up Michael at school.

      Wall said she arrived around 1:25 p.m. She has told the Gazette that she was led to a room where Michael was face down on the floor and being restrained by at least four adults. She realized Michael wasn't conscious, Wall said, and told the staffers to turn Michael on his back, which they did, and she started cardiopulmonary resuscitation.

      The 911 call was made at 1:57 p.m., according to police records. Around the same time, Johnson said, she received a second call from the school principal, saying her son might need to go to the hospital. School officials have refused to comment on any aspect of the case, including who made the phone calls.

      Confused by the second phone message, Johnson said, she called Wall's cell phone. “She said, 'I'm busy, Elizabeth, I'm busy, I can't talk to you,' “ Johnson said.

+ Article continues:

http://www.mlive.com/news/kzgazette/index.ssf?/base/news-7/1069086296300160.

xml

* * *

 

TREATMENT

 

The Specific Carbohydrate Diet & Advanced Dietary Interventions

 

      [From Karen Seroussi. The SAR neither reviews, nor endorses treatments for autism.  This information is provided for our readers’ information only. -editor.]

 

      We hope you will join the official online support group for ANDI, the Autism Network for Dietary Intervention.

      ANDI (http://www.autismndi.com) has been dedicated to helping parents implement gluten- and casein-free diets for over five years. In that time, many parents have found that additional gains have been made by further limiting the diet to exclude other foods (e.g. soy and corn). Some children are also showing very positive responses to some additional dietary interventions -- often developed for people with various gastrointestinal

(GI) disorders.

      The purpose of this list is to initiate discussion and provide support for families of children with autism spectrum disorders who are already on a gluten-free and casein-free diet, and who are exploring additional treatment options such as the Specific Carbohydrate Diet (SCD), the Body Ecology Diet (BED), grain-free, sugar-free, supplementation, and other dietary interventions. Because every child is different, each may need a slightly different treatment plan, with differing levels of compliance.

      This list is for the open discussion and free exchange of ideas, and for the purpose of mutual support for practitioners, parents and caregivers utilizing advanced dietary interventions for the autistic children in their care. Participants must be respectful of others at all times if they wish to remain on the list.

      If you are just getting started with GF/CF diet, you are welcome here, but we would suggest that you also join the list at http://www.gfcfdiet.com, where most basic gf/cf questions are discussed and are covered in the archives.

      To join the ANDI-ADI list, please go to http://health.groups.yahoo.com/group/ANDI-ADI

* * *

 

EVENTS

 

Jacob’s Bridge Kid’s Day Out Fun Clinic in New Hampshire

Date of Clinic: November 30, 2003 12 noon to 2 pm!

 

      Concord, NH:  The first annual Jacob’s Bridge Kid’s Day Out Fun Clinic will be held at New Hampshire Technical Institute (NHTI) in Concord on Sunday, November 30, 2003 from 12 noon to 2 pm! The clinic will be free for all participants with prizes for all participants, skill instruction in basketball and other sports or quiet activities for special participants.

      The free clinic is open to campers of all ages and abilities. This clinic is being sponsored by the five participating colleges including Keene State College, Colby-Sawyer College, New England College, NHTI and Plymouth State University.

      Head coaches from each school and members of the men’s basketball team will direct this special clinic designed to promote the fourth annual Jacob’ s Bridge Through Autism Classic held at NHTI on Tuesday, December 2.

      Campers will also have a chance for autographs from the college basketball stars from the five NH colleges! This special event will offer a positive experience for all campers attending this fun event!  This year the coaches wanted to give more to the community and offer this clinic.

      As many of you know and deal with daily, it’s not always easy to include all siblings at events.  This clinic we hope will enable a child on the spectrum to have a chance to play some basketball with their siblings and/or friends.  If this isn't possible we are also going to have a quiet room upstairs that families can go to and chat and mingle amongst

themselves.  We want this to be a positive event for all!!   So many times

you can't go to an event because it is too hard.  You don't even want to think how your child will process the entire environment, so you just say no or don't even mention it to the siblings.  We hope you will all feel comfortable to come and have nice day, meet new friends and network to help bridge the gap.  A special information table will be set up to promote awareness and education about Autism.

 

Jacob's Bridge Through Autism Classic December 2, 2003 at NHTI

Games: Plymouth State University vs. New England

Keene State College vs. Colby-Sawyer College

 

      Participants should pre-register by calling Susan Scheinman at 603-254-7455 or Paul Hogan at 603-271-6426. Registration forms can be e-mailed by contacting Hogan at phogan@nhctc.edu or Scheinman at sws13@adelphia.net . For more information on Jacob's Bridge Through Autism

please visit the website www.jbtautism.org.   Enjoy. Please pass this along

to all you know and may be interested...

* * *

 

The Future Challenges of Autism

For those who will be in DC for the Autism Summit Conference and might want to attend.

 

      The Subcommittee on Human Rights & Wellness hearing originally scheduled for Wednesday, November 19, 2003 at 2:00pm has been moved to Thursday, November 20, 2003 in Room 2154 of the Rayburn House Office Building at 2:00 p.m.

      “The Future Challenges of Autism:  A Survey of the Ongoing Initiatives in the Federal Government to Address the Epidemic”

      Dr. Wagner from the National Institutes of Mental Health, Dr. Duke from Health Resource and Service Administration, Assistant Secretary Pasternack from the U.S. Department of  Education, Rick Rollens from the M.I.N.D. Institute, and Dr. Edelson with the Edleson Center for Environmental and Preventative Medicine.

* * *

 

READERS’ POSTS

 

You may now submit abstracts on-line and register for the International Meeting for Autism Research (IMFAR), which will be held May 7 - 8, 2004, in Sacramento, California.  Please visit the IMFAR Web site at http://conferences.ucdavis.edu/imfar for more information. Call 530.752.0198 if you experience any difficulty accessing this site.

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Please email or call me if you are employed by Disney Corporation or ABC and have an autistic child. I am the father of a four year old autistic boy. I am trying to change the insurance benefits available to Disney employees seeking reimbursement for ABA therapy. Chadd G. Wickert  312-984-5343 chadd.g.wickert@abc.com

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Parents for Autistic Children’s Education (PACE), a non-profit parents group, has been working with senior Fairfax County Public Schools (FCPS) staff to develop a proposal for the first charter school in Northern Virginia. A public hearing on the proposal has been scheduled for November 17, 2003  at 7 p.m. at Jackson Middle School, 3020 Gallows Road, Falls Church. The Board is to act on the charter during its November 20, 2003 meeting. If the charter is approved, The PACE School would initially serve 60 children with autism spectrum disorders beginning in July of 2004. For information -- Randy Nicklas at 703-391-2251 or PACECharterSchool@comcast.net

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Looking for a residential facility, preferably in the northeast, for 37 year-old diagnosed PDD (significantly involved) with mild autism and some schizophrenia or bipolar disorder. She has behavior issues but none that are violent or harmful to herself (she screams and yells, being quick to get

angry)  She is on 6 medications; is a night owl who is fairly productive in her awake time in that she reads and writes consistently, she is articulate, and so while she still may need systems of behavioral accountability in place, a less structured environment would probably do her a world of good, as would a room of her own, and a quiet location. mjcarley@aol.com

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Searching for outstanding Autism/Asperger Syndrome merchandise? You'll find over 450 items at www.AutismShop.com. Proceeds benefit autism research and support.

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There are several spots open in the December 20-29, 2003  Berard Auditory Integration Training program in San Diego. Dr. Guy Berard developed the training in France. The goal is to retrain the auditory processing system – we focus on hyperacute hearing and auditory processing.  This sensory-based approach may be beneficial to individuals with ASD, ADD/ADHD, PDD, LD, and other individuals with auditory processing and behavior challenges. The 10-day program consists of two, 30 minute training sessions per day. Contact terries@execpc.com  or go to the website www.we-exist.net/ait

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I am the Dental Director for Easter Seals Metropolitan Chicago. Our program treats individuals with developmental disabilities free of charge, including patients with autism.  As part of our fund raising efforts, we are in the process of expanding our Car Donation Program. If anyone who has expertise in the used car or scrap metal business would be willing to answer some of our questions, we would be most appreciative.  Jeffrey S. Cantor,

D.D.S.(jeffreyscantor@yahoo.com)

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To Help Parents Manage Autism And Vaccine Injury, Nutrition Care for Children (NCFC), a therapeutic nutrition clinic focused on helping children with autism and other developmental issues, in BOURNE, Mass, unveiled its new Web site, www.nutritioncare.net, in collaboration with Lorraine Hurley, MD and Pam Ferro, RN.

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Thank you for providing all of the information that you do. I believe the greatest obstacle we have in the USA is the failure to acquire worldwide information about Autism and ASD. Your report and the links it provides, has been a welcome site on my e-mail listings. Please keep up the hard work.

Thank you  Jennifer Brown    brownjj@optonline.net

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Relocating to Greater Montpelier,VT area.  Need a public preschool with ABA format, 1:1 student/teacher ratio, great OT/Speech services, extended day, and possible additional home-based services for a 4-year-old with PDD-NOS.

Lisa Allen     lisa_m_allen@msn.com

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My son, who is labeled PDD-NOS is also hyperlexic and a touch of ADHD! He can read at a 3.5 level or higher, but is comprehending at a primer level. How would you address this issue! He is 7, soon to be 8. He has been reading (sight words) since he was 2. I brought him to special services through the local school system, because he wasn't talking like he should be at the age of 3 1/2. At the most recent IEP, the school system asked if I could try to find an "Autism Kit" for them to use with him in the classroom. Do you know of any "Autism Kits" or where I could get therapy in a bag!? Please help me! vivianhaug@yahoo.com

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There are several support groups on yahoo.com and even one for girls with autism.  Go to the main screen next to the listing  CONNECT and click on groups.  That screen will have a search factor...type in autism and it will

bring up a list of groups.   thefirstblackrose@earthlink.net

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Our family recently moved in our state to get better care for our Autistic son. The move was good.  Our son is doing well.  How do I explain to relatives the importance of the move and where my time is spent? MarvinSloan@msn.com

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The Holidays are coming!  Only 37 shopping days left until Christmas!  Get great gifts and support 20 different autism charities. Great for grandmas, teachers, therapists and anyone who loves someone with autism! http://www.geocities.com/autismfundraiser

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John Hopkins University presents The Autism NetVerse Project (A Provost Undergraduate Research Award (PURA) Recipient) to collect poetry and artwork from individuals on the autism spectrum. In addition, Autism Arts was approached to collaborate with these efforts. Please visit our website for more info at: http://www.autismarts.com/gpage4.html2.html

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[Thanks to Terrie Silverman for compiling these posts.]

 

 

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