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Parents of 3 autistic kids can relate
By Frank
Eltman
The Associated Press
May 18, 2003
STONY BROOK, N.Y.
- They're raising three children on a
sprawling estate on Long Island Sound. One
drives a Humvee, the other a BMW
convertible. He's a retired Wall Street
executive, she's a stay-at-home mom.
In so many ways, Matt and Debra Cody
enjoy a privileged, suburban life. Now they
are sharing another part of that life - and
their wealth - with others.
Stony Brook University recently opened
The Cody Center for Autism and Developmental
Disabilities, thanks in large part to a $2.5
million donation from the couple.
The Codys understand the challenges of
raising an autistic child better than most
parents - all three of their children have
the disorder.
"We're fortunate enough and God's blessed
us in many ways," said Matt Cody, who
retired in 1998 as general partner of
Speers, Leeds and Kellogg (now part of
Goldman Sachs) and chief executive officer
of its Nasdaq Division.
"We have the wherewithal to take care of
our children, but the big question that came
out was what about everybody else? What
happens to them?"
Autism is a neurological disorder that
affects more than 500,000 Americans. It
usually appears by age 3, mostly in boys.
Affected children have trouble communicating
and interacting with others. They may not
respond to their names or even look at other
people. In severe cases, they may become
aggressive or injure themselves.
The Cody Center will have three primary
functions. A community service program will
seek to increase awareness. A second program
will provide clinical services and care. And
a research arm will use facilities such as
the nearby Brookhaven National Laboratory.
The center will also offer undergraduate
scholarships and graduate fellowships for
the study of developmental disorders.
Only about two dozen such treatment
centers for autism exist nationwide, said
Joe Guzzardo, spokesman for the National
Alliance for Autism Research.
"I think that speaks to how important the
Cody Center is," he said. "There are some
places in the country where families are
forced to move to get closer to services
like this."
The Codys' three children - Dillon, 18,
Shawn, 15, and Kaitlin, 10 - have varying
degrees of autism. "Each one has that common
thread of autism," said Matt Cody, "but each
one is different. Uniquely different."
The Codys' first encounter with Stony
Brook University came in 1988, when they
took Dillon to see Dr. John Pomeroy, a
prominent autism expert and Stony Brook
professor.
"This center wouldn't be here without
Matt and Debra," said Pomeroy, founding
director of the Cody Center. "Matt is not a
person who just sort of put his money into
this and stepped away. He's working every
day. . . . Debra's taken on a lot of the
work in terms of fund-raising.
"They're people with experience. They're
the people who know what the problems are."
It's not the first time the Codys have
helped. In 1997, the couple donated $500,000
to help Stony Brook open a community
resource center for parents of autistic
children.
Shirley Strum Kenny, president of Stony
Brook University, said the Codys have an
"extraordinary dedication to their own
children, but they really understood that
other people who have these problems didn't
have the financial resources they have to
deal with it and they needed help."
For their part, the Codys are humbled by
the attention.
"Parents will say to me, 'I can't believe
I'm complaining. I have one autistic kid and
you have three,' " said Debra Cody. "I'm
like, what difference does that make? You
still feel the same way I do. . . . It's
still heartbreaking."
She admitted it took a long time to come
to terms with autism.
"I live it, breathe it, sleep it, dream
it, eat it, breathe it, the whole schmeal,"
she said. "But there're some parents out
there - and I'm not knocking it because I
was there once upon a time - I looked at my
children and all I saw was autism. Autism.
Not a child, just this nightmare autism.
"But I accepted it. It took a long time,
but now I see a child with autism."
Matt Cody said a bout with hepatitis C
and a subsequent liver transplant a few
years ago changed his outlook.
"I lived when I shouldn't have," he said.
"So I'm here for a reason because my work is
not done and maybe in a way that's some of
God's work." |