Autism: 'how
diet cured my son'
by ROSALIND RYAN, femail.co.uk
ong
car journeys with young children - full of endless questions,
chatter and games of I Spy - leave many parents with a headache.
But until recently mum Helen Bennett positively longed for her
little boy to behave just like that.
Instead Tom, five, would spend all his car journeys - and most of
his days - in total silence.
He was locked in his own world, unable to engage properly with
life around him due to a form of autism called Asperger Syndrome.
The devastating symptoms affected almost every area of his life.
At nursery as other children played he would sit alone, engrossed in
his own thoughts and obsessively lining up his toys.
But in the past six months all this has changed. Despite being
told by doctors that her son's condition was incurable, Helen has
found a treatment has improved Tom's condition beyond recognition.
Here we present the story of how a new treatment has improved
Tom's Asperger Syndrome. ______________________________________
When their little boy was born, Helen and Paul Bennett were
overjoyed.
But he was immediately put on antibiotics to protect him from a
virus he had picked up in the womb and as he grew his ill health
continued.
'As a baby, he was always vomiting and seemed to pick up every
virus that was going,' says Helen, 38.
His sleeping patterns were also erratic. For the first two years
of his life, he would only sleep for two or three minutes at a time
before waking. When he reached the age of three, this pattern
reversed and he began sleeping excessively in the afternoons. As he
grew older, Helen and Paul began to notice other oddities in Tom's
behaviour. He did not seem quite like other children.
'The most distinctive sign was that when he got excited or was
concentrating on something, he would flap his arms quickly,' says
Helen.
World of his own
Tom also became vacant at times, disappearing into a world of his
own. He also began shaking involuntarily and had terrible temper
tantrums over things that 'normal' children would not react to.
Helen's friends, family and even her health visitor told her she
should not be worried about Tom's behaviour. It was often dismissed
as a mannerism that he would grow out of, but Helen was convinced
that something was not right with her son.
The first person who agreed with her was Tom's nursery school
teacher. She had worked with autistic children before and suggested
that Helen take Tom to her GP to be tested for the condition.
Frustratingly for Helen and Paul, their doctor also said they
should not worry about his behaviour, but at their insistence, he
referred them to a specialist. After assessing Tom, the specialist
made the diagnosis that Tom was suffering from Asperger Syndrome.
The condition is a form of autism, a spectrum of developmental
disabilities that affects the way a person communicates and relates
to the people around them.
Asperger Syndrome is on the lesser end of the spectrum. This
means that sufferers have some of the symptoms of autism - such as
difficulty forming relationships, problems with communication and a
love of routines or set patterns - but they are not as severe as
those forms on the other end of the spectrum who can also have
learning disabilities.
It is not known what causes Asperger Syndrome, but there are a
number of theories that it could be triggered by a physical factor -
such as an illness - that affects brain development.
No cure
Although many sufferers can eventually be taught how to
communicate with others Helen was told there was no known cure for
the condition.
'It was absolutely devastating,' says Helen. 'Nobody wants an
autistic child - the word autism conjures up images of an
emotionally detached child banging their head against a wall. Who
wants that for their child? I felt terrible.
'We always thought that Tom would be like us; sociable and
outgoing with lots of friends, but when we were told he had Asperger
Syndrome, we realised that we had a son who wouldn't want to do that
and who would never really be like us.
'There was no history of autism in my family so I had no idea of
what to expect. Doctors and specialists kept telling me it was
mental illness with no cure. We just had to learn to live with it.'
Helen had to come to terms with the idea that her son would never
go on to form the close relationships she herself had enjoyed as a
child. She also had to accept that he might never tell her he loved
her and would appear to be completely indifferent to her feelings.
Helen began doing her own research into Asperger Syndrome. The
more she learnt, the angrier and more frustrated she became.
'The child development specialist told me that Tom might get
bullied when he went to school and would find it difficult to make
friends,' she says. 'I began thinking that I didn't want this for my
son and was determined to find something that could help him.'
Diet
By chance, one of Helen's friends happened to attend a seminar on
treating Asperger Syndrome and autism through diet. The doctor
giving the seminar, Dr Jean Munro, ran a clinic for treating
children with behavioural disorders in the town where they lived,
Hemel Hempstead.
After just one visit to see Dr Munro at the nearby Breakespear
Hospital Helen felt she had found the answer to Tom's illness.
Dr Munro believes that autism and Asperger Syndrome are caused by
damage to the bowel. Her theory is that giving children antibiotics
in the first year of their lives - or during pregnancy - damages the
lining of the bowel, making it more porous.
This damage affects the way people with autism digest their food.
Ordinarily, the body breaks down certain proteins in our food into
components called peptides. These peptides are then broken down into
smaller particles that can easily pass through the wall of the
intestines.
But because it is thought antibiotics can cause bowels to become
more porous, their intestines absorb the peptides before they have
been broken down properly.
These peptides then pass through into the bloodstream, damaging
the brain and causing the symptoms
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Even Santa couldn't keep him
awake - Tom's condition
caused him to fall asleep
at inappropriate times!
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of autism.
Some of these peptides mimic the drug morphine, so a child
suffering from autism would be expected to have high levels of this
morphine-like chemical in their bloodstream.
'Tom had been given antibiotics almost continuously for the first
six months of his life so it all started to make sense to me,' says
Helen. 'A urine test then confirmed that he had high levels of this
morphine in his blood. This accounted for his high pain threshold,
unusual sleep patterns and other symptoms - it felt like we had
found a 'cure' for Tom's condition.'
Sensitivity
The majority of these peptides have been identified as coming
from gluten, sugar and dairy, so Dr Munro recommends her patients
eliminate these foods from their diet. A further sensitivity test
may then be required to identify any other possible food triggers.
Helen started Tom on the gluten, dairy and sugar free diet in
July this year, one month after his first visit to the clinic. In
just four months, Helen has been astounded by the change in his
behaviour.
She says he is becoming generally more aware of what is around
him and has started taking an interest in other people - such as by
asking them questions. He has also started remembering more
information and can recall it more easily than before.
Another symptom of autism is dark circles under the eyes, thought
to be caused by the child's inability to absorb the proper amount of
nutrients from their diet. Tom also suffered from these circles but
since starting the diet, they have virtually disappeared.
The biggest change in Tom's behaviour has been his interaction
with other children. Helen says, 'Before starting the diet I noticed
that other children would be having conversations but Tom wouldn't
be joining in. He was always too involved in his own activities,
such as obsessively lining up all his toys in neat rows.
'He never used to have one special friend but now he has got a
big group of friends that go round to each other's houses for tea.
He has even got a little girlfriend!'
Tom will have to follow the diet for the rest of his life to
control the symptoms of his Asperger Syndrome, but this is no
different to somebody with a dairy or gluten allergy who has to cut
these foods out of their diet. He may also need additional
sensitivity tests to identify any other foods that trigger his
condition.
Change
Since the change in Tom's behaviour, Helen and Paul now feel they
have the chance to get to know their 'real' son, but they are not
yet making any big plans for his future life or career.
Tom's condition has already improved by 80 per cent and Helen and
Paul hold out hope that he may one day completely recover. If his
behaviour continues to improve as dramatically as it has done so
far, this could be a real possibility.
'I noticed a difference after just two days on the diet and it
was really dramatic,' says Helen. 'Normally on long car journeys Tom
and I would sit in silence as he was absorbed in his own world.
'But this time we were driving and he said 'Look Mummy, there's a
tree' and I almost crashed the car! It was the first time he has
ever taken an interest in his surroundings like that and it has
given me real hope for the future.'
To find out more about Asperger Syndrome and the diet that Tom
is following, click on the link below.
Autism
and elimination diets
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