Stockholm, Sweden, - Newswire - The
Swedish Dental Material Commission released a report last week recommending that
dental mercury amalgam be banned. Advocates applauded the Swedish Commission's
advice and urged the US government to review the safety of amalgam, especially
for pregnant women and children.
This is the first step of a worldwide
movement to stop poisoning people and the planet with dental mercury, especially
since there are safer alternatives readily available, said Michael Bender,
director of the Mercury Policy Project.
The Swedish Commission tasked Professor
Emeritus Maths Berlin with giving an updated risk analysis in environmental
medical terms on mercury in dental fillings, based on an overview of scientific
literature published in 1997-2002 and current knowledge. Berlin had previously
led two World Health Organization Task Groups -- one on inorganic mercury and
one on methylmercury and also testified before the US Congress Subcommittee on
Human Rights and Wellness on May 8, 2003.
Congressional hearings were held in May
to review the latest science on dental mercury risks, said Charlie Brown of
Consumers for Dental Choice. Once the truth gets out, no on is going to
tolerate mercury fillings in pregnant women and children.
After the Commission presented their
recommendations to the Swedish Minister of Social Welfare, newspaper headlines
across Sweden and Norway conveyed the story:
'Abolition of amalgam is welcomed' (Dagens
Nyheter, Sweden)
'No more amalgam fillings' (Svenska
Dagbladet, Sweden)
'Sweden will get rid of amalgam'
(Aftenposten, Norway)
'Swedes say NO to amalgam in teeth'
(Aftenposten Aften, Norway)
'Amalgam to be discontinued in dental
care' (Dagens Nyheter, Sweden)
The Swedish newspaper Dagens Nyheter wrote
Amalgam can cause ill health. That is the unanimous conclusion of the study
delivered on Tuesday to the Minister of Social Welfare Lars Engqvist. The Dental
Materials Commission recommends that the government and Parliament speed up
efforts to remove mercury-containing amalgam from dental care.
The Swedish Commission included
representatives from the Swedish Dental Association, the dental schools, the
Swedish National Board of Health and Welfare, and the Swedish Association of
Dental Mercury Patients. The 557-page report contains analysis and
recommendations to increase knowledge about health problems related to amalgam
and other dental materials, and to improve the care given to patients with such
problems.
The components in dental restorative
materials such as amalgam -- also known as silver fillings -- may, in rare
instances, result in side-effects or allergic reactions, South African Dental
Association (SADA) said on Tuesday. SADA was responding to recent reports
focusing on the alleged toxicity of dental amalgam.
The California parents of an autistic
six-year-old recently sued the American Dental Association alleging mercury in
the mother's nine fillings caused her son's autism.
SADA's executive director Neil Campbell
said a small amount of mercury was released from amalgam restorations,
especially during placement and removal.
The risk of adverse side-effects is very
low for all types of dental restorative materials, including amalgam and all
resin-based materials.
Patients experiencing different physical
symptoms may request the removal of amalgam restorations because of their fear
of possible adverse effects of mercury, he said.
There was nothing, however, in scientific
literature indicating that general physical symptoms may be relieved by
replacement of the dental restorations, he said.
Side effects were usually limited to the
area where the amalgam was applied.
Although there is no evidence that the
use of amalgam is hazardous to patients, a health risk of mercury exposure to
dentists and other oral health personnel exists if the material is not properly
handled.
Campbell said dental amalgam was
frequently used material for restoring decayed teeth.
Its main advantages include wide
indications for use, ease of handling and excellent physical properties.
It has been used in dentistry with good
results for more than a century. The quality of dental amalgam has been vastly
improved during the last 20 years.
SADA said its views were corroborated by
that of the World Health Organisation (WHO) and the International Dental
Federation (FDI).
* * *
MEDIA
MMR: More Scrutiny, Please
The public feels the media were too quick to
report maverick claims
The media love a maverick. That's one
reason why a figure such as Dr Andrew Wakefield, who challenged established
thinking over the measles, mumps, and rubella (MMR) vaccine, has received so
much coverage in the British press. But although some newspapers have presented
Wakefield as a popular hero, fighting scientific officialdom on behalf of
parents worried about autism, nearly half of the public believes that
journalists should have subjected his claims to more scrutiny before reporting
them.
A study of what and how people learn about
science from the media discovered that 48% of the public felt that when
scientists go against the grain, as Wakefield did in suggesting a link between
MMR and autism, the media should wait until other studies confirm those findings
before covering them. Thirty-four per cent of the survey sample of more than
1000 people thought that the media should give such scientists prominent
coverage and 18% expressed no opinion.
The public's reticence might seem odd,
particularly since MMR does not involve issues of privacy, and since such work
may already be in the public domain through publication in reputable journals,
say the researchers from Cardiff University School of Journalism. But it speaks
to the degree to which many people feel the need for expert guidance on
scientific issues.
The researchers analysed the way in which
science and science related issues were reported on television news, radio news,
and in the press during seven and a half months in 2002. They also used two
nationwide surveys (using representative samples of more than 1000 people),
carried out in April and October 2002, which tracked the public's knowledge,
opinion, and understanding of science related issues reported in the media. The
focus of their attention was on climate change, the MMR controversy, and cloning
and genetic medical research.
Their report, Towards a Better Map:
Science, the Public and the Media, published last month, found that what people
knew usually corresponded with those aspects of a story that received most
persistent coverage. The details or subtleties of media coverage are, in this
respect, much less important than the general themes of that coverage, in which
certain ideas are repeated and associated with one another, says the report.
MMR and autism is one example of such repetition and association. While this
does mean some information is communicated effectively to most people, it can
also result in widespread misunderstandingeven if the reporting itself is
generally accurate.
In the case of MMR and autism, people were
also misled by the journalistic quest for balance in reporting. The researchers
say, We discovered that the coverage was unintentionally misleading in creating
the impression that the evidence for the link was as substantial as the evidence
against it. This is a finding that also emerged in preliminary results released
last September ( BMJ 2002;325: 603[Free Full Text]). Only 30% in the April
survey and 23% in the October survey were aware that the bulk of the evidence
favoured supporters of the MMR vaccine.
The researchers found that Wakefield's
claimsof a speculative link between the MMR vaccine and autism, with
questionable scientific data to support itwere not comprehensively or
systematically challenged in media coverage. Instead, the media leapt to the
speculative link, and then, because the risks of non-vaccination were fairly
clear, the idea of offering three single jabs gained a great deal of currency.
This put government and scientists supporting MMR on the defensive, and pitched
them against the notion of parental choice. This created a serious difficulty
for the scientists and health professionals, who are only able to propose dry
generalisations against the more emotive and sympathetic figures of parents
concerned for the welfare of their children, says the report.
The researchers say that while
Wakefield's claims are of legitimate public interest, our report does give
credence to the view that research questioning the safety of something that is
widely used should be approached with caution, both by scientists publishing
that research and journalists covering it. They add, This is especially the
case if any decline in public confidence has negative consequences for public
health.
This does pose a difficulty for
journalists, however, and for non-specialist reporters in particular: how to
distinguish an MMR from a thalidomide. Sometimes, it seems, the public wants
them to raise the alarm and sometimes it doesn't. And sometimes there is simply
just no alarm for them to raise.
Her son Matthew, 3, has severe autism. He
is non-verbal, only communicates by screams and has many aggressive behaviours,
including pushing, hitting, and scratching. Matthew must be carried when outside
because there is the danger he will run into traffic. But he is starting to get
heavy in his mothers arms.
I cant take him anywhere, she said.
Kicked out of his day care recently,
Matthews violent tendencies have increased.
Lori is waiting for help. Her son has been
on a waiting list for Intensive Behavioural Intervention (IBI) treatment for six
months. Time is ticking because the province only funds IBI until age six.
He probably needs quite a few years of
treatment, Phillips said. If there wasnt a cut off, it would be a little less
of an issue.
Phillips was one of four Sudbury mothers
with autistic sons gathered at a news conference organized by NDP health critic
Shelley Martel, Friday morning.
Martel is calling for the government to
recognize IBI as a medically necessary service for children with autism and to
continue funding the treatment beyond age six.
Right now, the treatment is not funded
through OHIP, but through a special program run by the Ministry of Community,
Family and Childrens Services.
While it does not work for every child it
appears to be very effective in helping the majority, she said.
Autism is a neurological disorder.
IBI approaches the children as if they
have a brain injury, teaching them through intense repetition and one-on-one
work, in an attempt to create new pathways in the brain.
But the waiting lists are long for this
time-sensitive treatment approach. Currently there are 800 children in Ontario
waiting for IBI and of that number about 20 live in Sudbury.
The Ontario Ombudsman Clare Lewis has
undertaken a special investigation because of the waiting lists for IBI
treatments, Martel said.
Many families are paying out of their own
pockets for the treatment, but most cant afford the price. One years worth of
IBI treatments (about 30 hours a week) costs around $50,000. One family in
southern Ontario is in the process of selling their home to pay for it, Martel
said.
Rather than try to fund the IBI treatment
themselves, many families are turning to the courts to effect change.
Twenty-nine Ontario families are in the midst of a charter challenge to get the
government to fund IBI beyond age six. Another 80 have filed human rights
complaints, arguing the policy discriminates against their children on the basis
of age. One southern Ontario family has successfully won a court decision to
have the province continue funding the treatment. Recently, an Ontario court
disallowed the governments attempt to appeal that lower court ruling. However,
the case was not precedent-setting and only applies to that child.
The Ministry of Community, Family and
Childrens Services Web site explains why children only receive the treatment
up to the age of six : Research indicates that intensive intervention services
are most effective when initiated early in a childs life.
However, the government has yet to produce
this research at a trial, Martel said. Like most treatments, it is most
effective when administered early. But there is no reason to give up on the
older kids.
Susan Cindric, a widow and mother of two,
had her oldest in IBI for one year before he was cut off. Hes now integrated in
a regular class; enjoying it and able to read and write. However, before IBI,
Cindrics son would not have been able to eat lunch in the schools cafeteria
because he was terrified of noises and strangers.
The gains were tremendous during that
year. He would have definitely benefited from more, she said. It is a
treatment supervised by a psychologist. Why dont they fund it through OHIP?
Theyre only going to have to spend more on him later.
Also at the news conference on Friday was
four-year-old Liam Kitching. The boy did not pause once during the hour, flying
his Harry Potter figurine around the room, spinning and occasionally pulling on
his mothers arm for her to join him.
At one point, Trish Kitching, a mother of
three, thought her son was deaf. Shed clap her hands right beside his ear but
wouldnt get a reaction. If she held a book close to his face, hed look away,
refusing to focus on it. Liam makes little eye contact and when frustrated,
bangs his head against any surface. The diagnosis of severe autism came this
January.
Shes hoping hell start IBI this summer,
but still has no commitment in writing.
The government should spend a day in my
home, Trish said. Its cheaper to spend the money now.
* * *
TREATMENT
Huge Increase In The Prevalence Of Autism Is
Being Reported Worldwide Announcement of Toronto Autism Conference - June 21 &
22, 2003
An unexplained huge increase in the
prevalence of Autism is being reported, in Canada, the U.S., U.K., Middle East
and Asia.
Autistic Spectrum Disorder has become more
common than childhood cancer and childhood diabetes, and is putting enormous
demands on our health and educational system.
Autism varies a great deal in severity.
Some individuals are mildly affected and may exhibit slight delays in language
and mild difficulties with social interaction. Others, with more severe autism,
may have no speech and exhibit self-injurious and aggressive behaviour.
The symptoms of Autism can be greatly
reduced by early diagnosis and treatment. Early identification and treatment is
key to helping these children.
The Autism Canada Foundation (http://www.autismcanada.org)
have recently organized a powerful training workshop for parents, physicians,
ABA therapists, speech pathologists, occupational therapists, and other members
of the medical community. Dr. Jeff Bradstreet, M.D., F.A.A.F.P., will host the
workshop along with his colleague Dr. Jerry Kartzinel, M.D., of the Florida
based International Child Development and Resource Center (ICDRC).
This one-of-a-kind workshop will teach how
to integrate medical, behavioural and nutritional treatment options for children
with Autism, PDD and related disorders. Successful intervention techniques the
ICDRC are using to bring real hope to the 1,600 children they treat worldwide.
Location: Ryerson University, Learning
Resources Centre, Library Lecture Theatre (L72) 350 Victoria Street Toronto,
Ontario, Saturday June 21 & Sunday June 22, 2003 To register: (905) 332-4766
or
http://www.autismcanada.org
Wasaga Beach Leigh Hoppins guardian
angel has arrived.
The 10-year-old girl welcomed Buddy, a
three-year-old chocolate Labrador, into her life a few days ago, and the duo
have already forged a special bond.
Upon arriving at the Hoppins home, Buddy
immediately went to Leigh, somehow sensing that she was his project.
Hes like her little guardian dog he
goes into her room and sleeps with her at night, said Cathie Hoppins, Leighs
mom.
Leigh thought she was dreaming when Buddy
arrived.
Hes nice, said Leigh of her new
companion. Hes my buddy.
Leigh was diagnosed at age four with
Asperger Syndrome, a highly functional form of autism. She lacks social skills,
has repetitive behaviour, and sometimes displays severe aggressive outbursts,
said her mom.
Buddy will be Leighs special companion
and a safety anchor should she try and stray away from him.
The number 1 thing is safety, said
Cathie. But the ultimate goal is for her to have her independence. Hes just so
gentle the way he watches over her.
Cathie said she already sees changes in
her daughter, a Birchview Dunes elementary school student.
Shes a lot calmer now, and is really
excited when she gets home from school, said Cathie. To have him here when she
gets home is a big deal. She just loves him.
The family has readily accepted the dog as
one of the family.
Were really surprised about how well
hes adjusted into our family, considering how much hes moved around in recent
months (with training courses), Cathie said.
After applying to get a National Service
Dog in March of 2002, the Hoppins family held various fund-raisers in the fall
to purchase the $8,000 specially-trained canine. Many service and community
groups approached the family with financial assistance.
We couldnt have done this without this
community, Cathie said. It was great the way they pulled it all together.
After 15 months of training, Buddy arrived
at their Wasaga Beach home.
Buddy was trained at a facility in New
Hamburg, near Kitchener. Blaine and Cathie Hoppins did a weeks worth of
training there to learn various commands and familiarize themselves with Buddy.
Part of Buddys training included sitting in a busy mall with a hamburger in
front of his nose.
He had to ignore the temptation, and
passed.
Hes ready hes definitely ready, said
Cathie.
Theres one more step for Buddy to
overcome. The Hoppins will take him into high-traffic communities for his Public
Access Test in a few days. If he passes, his training will be complete and Leigh
will be tethered to him in public using a waist harness.
Buddy, who will retire around 10 years
old, is outfitted with a purple jacket when hes on the job. Cathie said his
demeanour changes significantly when he dons that jacket, although he still has
his playful side.
There are two sides to Buddy in the
Hoppins eyes.
We want him to be a dog, not just a
little soldier, Cathie said.
A teenage boy, who has a form of autism,
reported his bike missing two weeks ago. News of his stolen prized bike caused a
generous donor to step forward, to replace the bike that meant so much. Joey
Machen got the surprise of his life when he stepped off the bus and found a new
bike waiting for him.
Last month, Joey's prized Zephyr bike went
missing from the family's Idaho Falls yard. Ever since, Joey's mom says her son
has not been the same. Natalie Machen, happy for sons gift:
There is somebody special out there, that
understood what it meant to have a handicapped child and how important it is for
them to have their special things.
The family wishes to thank the anonymous
donor, and others who offered to help replace the stolen bike.
* * *
AWARENESS
'David Is David': Growing With an Autistic
Brother
In a new book, The Ride Together: A
Brother and Sister's Memoir of Autism in the Family, Paul and Judy Karasik tell
the story of growing up in a tall Victorian house in Chevy Chase, Md., with
their parents and two brothers, Michael and David. David, the oldest, is
autistic and mildly retarded, and the book follows him as he grows from infancy
to middle age. (He is now in his 50's and lives in a group home near
Washington.) Excerpts follow; the first is set in 1960, the second in 1966. Judy
Karasik narrates; the cartoons are by Paul Karasik [See cartoon at the provided
URL above.]
How come David never has to clean up his
room? I asked.
Michael opened up the door to the toy
furnace and blew out the ghostly fire hovering over the small white bricks of
solid fuel. He turned a lever, steam hissed out from the water tank, the shiny
silver pistons reduced their pace, and the engine's wheel stopped its spinning.
What are you talking about? he asked.
Look at the wheel slow down, Judy, said Paul, whose mind had remained on the
steam engine.
He gets special treatment, I said.
That's not right. It's not fair.
Huh? Michael asked, puzzled. Oh yeah,
he said, as his brain stretched around to include my way of seeing things. He
pulled open the door to the furnace, lit another match, and reached in to
reignite the cube.
Well, Judy, David is David, Michael
said. You know who he is.
The fuel took. Trembling smoke-shaped
flames chased one another along the brick's length.
It's not fair, I said. It's always like
this. We get one set of rules but he gets another.
David didn't have to make his bed, rake
leaves or clear the table. He interrupted. He had his shows. He ate more cookies
than anybody else. It wasn't right and we had done nothing just sat there and
watched while first Mommy, then Daddy, then Mommy again, made exceptions for
David.
Fairness is important, I said. Michael,
here's this huge unfairness, right in the middle of everything. Every day.
Paul turned his attention away from the
engine for a moment. It has to be fair, he said.
Michael shook his head. Judy, it is not a
big deal. You make such a big deal out of stuff. . . .
Somebody needs to ask them why.
So go ask them, that's O.K., Michael
replied, increasingly annoyed. I'm busy. . . .
Mom turned her attention to me and said,
in a matter-of-fact way: Well, Judy, David gets some things easier because a
lot of ordinary things are harder for him. Getting through the day is harder for
David than it is for the rest of us.
Hard? I replied. His life didn't look so
hard to me. Mommy!
OAR Seeks Runners for Autism for the 2003
Marine Corps Marathon
[From an OAR announcement.]
In February the Marine Corps Marathon
invited to the Organization for Autism Research (OAR) to participate as a 2003
Charity Partner. Since then OAR has been laying the groundwork for the first
Run For Autism to be held in conjunction with this prestigious and popular race
held in Washington, DC, each fall. Being a Charity Partner will enable OAR to
create an event that will generate excitement as well as autism awareness across
the country. We are honored to be the first autism group to participate in this
special marathon. Having guaranteed entries helps attract runners. Were
already halfway to our goal of 100 runners. noted Mike Maloney, OARs Executive
Director.
OAR has crafted its Run For Autism within
the broader Marathon. Ideally, runners from across the country will team with
local autism organizations to help increase general autism awareness, highlight
the need for more funding for autism research, and publicize local autism
services, initiatives and issues.
The run will take place on Sunday, Oct.
26, 2003. It typically attracts some 16,000 runners and 70,000 spectators.
Often referred to as the People's Marathon, the run draws many first-time
marathoners as well as more experienced runners. It welcomes novice runners and
very generously gives worthy charities the opportunity to raise funds.
OAR's goals for the Run For Autism are to
have a total of 100 Runners for Autism in the Marine Corps Marathon or its
associated 5K run and among
them have at least one runner from each state.
As of today, OAR has 50
runners signed up representing 14 states and the
District of Columbia. Each will strive to raise $2,500.
To say this is exciting for OAR is a vast
understatement! added Maloney, a 23-year veteran of the Marine Corps. The
Marine Corps Marathon and autism is a great match. Above all, a marathon
demands courage, endurance, will and determination, qualities that parents in
the autism community exhibit each day. Having 100 Runners for Autism set in the
arena of the Marine Corps Marathon and the Nation's Capital provides us with an
opportunity to make a powerful, memorable, and highly visible statement about
autism and the need for autism research. Maloney said.
The Marine Corps Marathon is no longer
accepting applications and selects its regular participants through a lottery,
which is now complete. Except for charity partners like OAR, the race is
closed. OAR expects many of the runners who were turned away to join the Run
For Autism. OARs spaces are limited. Maloney said. We are awarding them on
a first come, first served basis, and we hope that runners and autism
organizations across the country will join us.
For information, please contact Mike
Maloney or Ellen Maidman-Tanner at (703) 351-5031.
* * *
READERS POSTS
Beginning in September, psychologist Lynda
Kravitz (LEkravitz@aol.com) will be forming/facilitating a support group for
parents of special-needs children. The group probably will meet monthly in
Oakland. Lynda, who has a special-needs child, also facilitates a support group
for the Jewish Federation of the East Bay. For more information, contact Lynda
at 510/420-0888.
******
I live in Riverside, California and am looking
for experienced tutors/therapists for a early learner's 40 hour a week in home
program. Training will be provided! Please e-mail me privately at
Kallegal@aol.com
******
Looking to start an Autism support group in
South Orange County, California. I am the mom 0f 7 yr old w/Autism & also work
as a behavioral therapist w/Autistic children. Group would address help w/IEP's,
tutors & behavioral issues. mithfx5@hotmail.com
******
For the second half of 2003 July thru December
our television show Spotlight Autism can be seen in New York City area as
follows: Wednesdays at 6:30 pm. channel 35 Saturdays at 4:30 p.m. channel 34
******
Working on a book with a major publisher on the
possible connection between Thimerosal and autism. I am looking for families who
have been affected by autism, who have members that are current or former
employees of Eli Lilly Co., to be interviewed for the book. I am also looking
for autism families in the Indianapolis area who might know people that are
current or former employees of Lilly. I can be reached at dkirby@nyc.rr.com.
Thank you very much. David Kirby
******
BAE Systems NA & UK employees: Is there an
Autism epidemic among the children of our high tech employees? Do you think our
employer could do more? I'd like to hear your ideas.
douglas.shade@baesystems.com
******
Has there been any studies done on the impact of
a pregnant woman taking a flu shot? I hope this is being looked at by some of
the researchers. We often wonder if mercury exposure could have occurred before
our son was born. He showed some autistic characteristics right from the
beginning; followed by regression after his MMR. bbrodley@yahoo.com
******
I have a 6 yr old son with autism and have just
had a second son. I am trying to decide whether to vaccinate my newborn son.
Does anyone have any advice or protocols from other doctors?
sferlmann@midstate.edu
******
Relocating to Dallas and would like info about
schools and resources. Have a 6 year old PDD-NOS son entering 1st grade.
efamga@bellsouth.net
******
On the Through the Eyes of Autism video. I
can't even begin to tell you how incredible this is. It's about a 25 year old
man with autism who is nonverbal and communicates through his keyboard. He was
corresponding with Christine through Email and gave her great insight into how
someone with autism thinks and feels. Everyone who sees this will realize that
there really is a typical child in there but has no way to show it.
http://lighthousestudios.info/ Jo Pike
******
I spoke with Dr. Mark Geier a week ago. He has
anecdotal evidence linking Rh negative mothers who received RhoGam shot(s)
during their pregnancy as having an extremely high number of autistic children
compared to their low population numbers. The RhoGam shot has over 100 micro
grams of thimerasol. He would like someone to do a study. Perhaps a Dr. that
sees a large number of patients with autism, a school for autism etc.
LMWeinmaster@cs.com
******
My 4yo daughter has mild-moderate autism. She is
in a 35 hr/wk ABA program. Supervising psych thinks she would benefit from
Ritalin to help her focus (behavior is ok, but is inconsistent with trials dues
to her inability/unwillingness to focus on taks at hand.) I would rather make
Ritalin a last result..would like to know if anyone has any experience
supplementing with GABA, DMAE and zinc. Heather hearenger@yahoo.com
******
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DISCLAIMER: All
information, data, and material contained, presented, or provided here is for
general information purposes only and is not to be construed as reflecting the
knowledge or opinions of the publisher, and is not to be construed or intended
as providing medical or legal advice. The decision whether or not to vaccinate
is an important and complex issue and should be made by you, and you alone, in
consultation with your health care provider.
"A foolish faith in authority is the worst enemy of truth."
-- Albert Einstein, letter to a friend, 1901
"I know of no safe depository of the ultimate powers of the society but the people themselves, and if we think them not enlightened enough to exercise control with a wholesome discretion, the remedy is not to take it from them, but to inform their discretion by education."
-- Thomas Jefferson, letter to William C. Jarvis, September 28, 1820
"What's the point of vaccination if it doesn't protect you from the unvaccinated?"
-- Sandy Gottstein
"Who gets to decide what the greater good is and how many will be sacrificed to it?"