Many more kids with the disorder;
no more answers Kathryn Skelton
Staff Writer
For two nights around the
full moon Benjamin Dionne wont sleep more than an hour. Its been that way as
long as his mom can remember. He breaks furniture in his bedroom so often
theyve nearly stopped putting any in. The closet door is gone. Benjamin, 9,
signs, points to pictures and writes. All his printed messages start I want. n
Emile Thomas hates buzzing sounds. He wont go outside after spotting a bee.
Right now, in school, hes learning that falling down wont kill him. For a long
time, the 9-year-old refused to walk on ice or snow. His dad used to call Emile
a little china doll. n Until last year, a strangers hello could prompt
Brandon Hatch to share his life story, moms name and address. Brandon, 11, will
start middle school with his peers this fall, taking regular classes in all but
math (hes a little behind) and gym (hes a bad sport.) It scares her, but his
mom is pretty sure Brandon will drive a car some day. n Benjamin, Emile and
Brandon have autism, a disorder with varying degrees of severity thats growing
in Maine every year. Authorities cant simply explain why.
Maybe its because
criteria for diagnosis changed about 10 years ago. Maybe doctors are finding
kids that had never been diagnosed before. Maybe kids are being shifted from one
disability category to another. Maybe its a fad diagnosis.
Maybe.
New numbers from
Maines annual count of special education students show more autistic children
here for the 12th year in a row, which is as long as the states kept track. In
a decade, the figure has grown 754 percent, from 99 students to 846.
No one appears to
have an explanation thats sound, said David Stockford, director of special
services at the Maine Department of Education.
The Autism Society
of America puts the prevalence of autism at about 1 in every 250 people. As far
as Stockford can tell, Maines rate is about on target with that.
Autism is a
neurological disorder, affecting social skills and communication, according to
the ASA. Its four times more common in boys.
Classic symptoms are
a delay in spoken language, not talking at all or repeating the same things.
There can be rigid adherence to a certain routine, hand and finger flapping or
preoccupation with one particular subject.
After a May report
found the number of children receiving services for the most severe type of
autism in California doubled from 1999 to 2002, ASA President Lee Grossman said
in a prepared statement this study confirms ASAs stated position that the
growth of autism in children is accelerating.
Several years ago,
the ASA provided the federal government data it believed demonstrated the
growing prevalence of autism to be a national health crisis, a crisis our health
and human services system is not prepared to meet, Grossman said.
Fifty years ago, a
prominent psychologist theorized autism was caused by refrigerator mothers.
Women who were too cold, too isolated. They werent doing things right. His
theory was debunked, but its still out there in some peoples minds, said
Carol Thomas, Emiles mom.
There is ongoing
research into the leading theories that autism could be caused by genetics, some
environmental trigger or be linked to a childhood vaccine.
Maines part of that
research.
Its one of four
states with Iowa, Michigan and New Mexico involved with a pilot project that
encourages autistic people and their families to donate brain tissue samples at
death for study.
There are all of
these theories out there, but we really dont know whats causing it, thats why
its so important the researchers have brain tissue to work on, said Donald
Brann, executive director of the Autism Society of Maine in Winthrop.
He said the state
was picked because his organization has an autism database going back 20 years,
along with a paid staff. A lot of states dont have that.
The oldest person in
the database is 67, the youngest 18 months.
When children and
adults are diagnosed with autism in Maine they typically contact the society,
Brann said, which leaves literature in lots of doctors offices.
There are support
groups throughout Maine, he said, and occupational and speech therapists who
specialize in autism to be referred to. Theyre very busy, Brann added.
He doesnt believe
the rise of autism is Maine has reached the crisis point, and Dora Ann Mills,
the states health director, hasnt flagged it as a particular health issue for
Maine.
The state is being
very responsive, more so than other states, Brann said. State funding for his
group, originally cut 20 percent amidst the budget crisis, eventually was
restored.
Hes been meeting
with a statewide task force of school and health professionals monthly since
November.
Were trying to get
a grasp on what we can do to improve the system, he said. I think a lot of
schools are overwhelmed.
Classroom services
are certainly better, Brann added, than when his own 30-year-old son was a boy.
The state will put
together a commission this summer to look at national research and talk to
experts on how to reduce the occurrence of developmental disabilities, spurred
by a bill this session by Rep. Arthur Lerman, D-Augusta.
Lerman is the
executive director of Support Solutions, which offers services to children and
adults.
We would love to
put ourselves out of business. Unfortunately, these days the trend is in the
other direction, said Lerman, who has an office in Lewiston.
He wants to look at
the effectiveness of early intervention, whether there is information out there
the state ought to be aware of that could reduce the instances of disorders like
autism in the next generation. A report is due this winter.
Its ambitious, but
youve got to start somewhere, he said.
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