* Post-Holiday
Action Alert on the Congress IDEA Rewrite
TREATMENT
* Diagnosed and
Manage Autistic Children
* Non-Stimulant
for ADHD -- Full-Length Doctors Interview
RESEARCH
* Book: The
Essential Difference: Men, Women and the Extreme Male
Brain
* Prevalence of
Autistic Spectrum Disorder In Children Attending
Mainstream
Schools In A Welsh Education Authority
FORENSIC
* Autism Theory
Remains In Doubt
CARE
* Teen Who Has
Autism Missing And In Danger
* A Life Of
Routine, Then Grievous Loss
ACTION ALERT
Post-Holiday
Action Alert on the Congress IDEA Rewrite
S 1248 is on its
way to the Senate Floor!
[From the
National Down Syndrome Society. Thanks to TASK.]
On
Wednesday, June 25, 2003, the Senate Health, Education, Labor and Pensions
(HELP) Committee unanimously passed its bipartisan IDEA reauthorization bill, S.
1248.
The bill
that was passed was an amended version of the one that was introduced two weeks
ago. In response to the feedback that the Committee received, some changes were
made, most significantly in the discipline provisions. S. 1248 will go on to a
full Senate vote sometime between July 7th and the end of July.
Grassroots Action
Steps for July 4th Recess
Our goal
over the next few weeks will be to discourage any amendments on the Senate floor
that would diminish the protections currently in the bill and to encourage
amendments in the areas we still have concerns.
Please call,
email or fax the Senators your comments on S. 1248. This is particularly
important for the Republican Senators.
When you
contact your Senators:
1. Please
thank them for the positive provisions in S. 1248, including the most recent
changes to the discipline provisions and
2. Then
express our top three remaining concerns (this information is provided below).
3. Make
sure to use personal stories to illustrate the importance of your points.
Positive
provisions of the original S. 1248 as compared to H.R. 1350
1. Option
of 3 year IEP is only for ages 18-21
2.
Improvements in the transition provisions, including an increased focus on
post-high school outcomes. No option for voluntary binding arbitration
3. An
improved version of the resolution session that H.R. 1350 requires before
parents can go to a due process hearing
4. A two
year statute of limitations from time parent should have known about violation
(as compared to a 1 year statute of limitations from date of actual violation)
Governor does not set rate for attorneys fees; instead fees continue to be
awarded by the courts.
5. A
childs disability must be considered in most disciplinary actions
6.
Strengthened enforcement provisions apply if a state is not complying with IDEA.
Positive
changes to S. 1248 (as amended on June 25th)
The
grassroots response convinced the Committee that three important requirements
from the current IDEA discipline provisions should be added to S.1248 and that a
due process issue should be clarified! Thank you to all those who contacted
their Senators or the HELP Committee staff!
1. The
requirement for a behavioral assessment, if one has not
already been done,
was added to the discipline provisions of S.1248. This will help keep the
behavior from recurring.
2. The word
knowingly was put in front of the words possesses or uses illegal drugs to
conform to current law. The effect of this change is that the school system must
look at whether our children understood that they had illegal drugs in their
possession before applying the disciplinary procedures. This is a significant
protection since the school system would not otherwise have to consider the
childs disability for drug offenses under S. 1248.
3. A
parental notification requirement from the current IDEA discipline provisions
was added to S. 1248. This notification would inform parents that a disciplinary
action is being contemplated for their child and inform them of all the
procedural safeguards that apply.
4. It was
clarified that a hearing officer can order compliance with the IDEA procedural
requirements.
Top three
remaining concerns
1. The
elimination of short term-objectives or benchmarks. Tell the
Senators that
regular report cards are meaningless for children who have below grade level
goals and functional goals. We rely on the periodic reports that are tied to the
short-term objectives. The elimination of short-term objectives will create more
paper work for teachers who are writing these periodic progress reports because
they are going to have to provide a narrative explaining the various steps that
have been made toward achieving the annual goal. These steps are essentially
short- term objectives or benchmarks. If these progress reports are not done
properly there will be litigation to clarify how annual goals are to be measured
without short-term objectives or benchmarks.
2.
Limitations on the subject matter of a due process hearing. In S. 1248 the
subject matter of a due process hearing is limited to the issues raised in the
due process complaint notice. This requirement will force parents to figure out
everything that could possibly be an issue in the hearing. There is no
opportunity to add issues later if they have inadvertently been left out
(putting parents without an attorney at a great disadvantage).
Tell your
Senators that in order to minimize litigation and relieve pressure on parents to
hire attorneys early in the process, parents should be able to add an issue
without filing a separate due process complaint for that issue. Otherwise
parents are going to be heading into the mandatory meeting with the school
system and the IEP team (in S. 1248 this is called an Opportunity to Resolve
Complaint meeting) prepared for an adversarial due process hearing, instead of
a collaborative resolution session.
3. Placement
while a discipline decision is appealed. S. 1248, children who are ordered to
alternative educational placements for more than ten days do not have the stay
put right to remain in their current educational setting while the decision is
being appealed. Under current law all children are entitled to stay put except
in cases involving drugs, weapons and the substantial likelihood of harm to
oneself or others. The loss of stay put is a huge concern, especially for
children with transition problems. Explain to your Senators the amount of
regression your child would suffer in the time an appeal might take. This is
especially unjust if an appeal determines that the disciplinary action was
inappropriate. You should point out the increased risk of litigation if the
child needs additional services in order to catch up.
Remember
that your voices have made a difference in the development of S. 1248! We need
to make sure the Senators continue to hear our appreciation and concerns so they
are prepared to protect our childrens rights when S. 1248 goes before the full
Senate in July.
On the NDSS
Advocacy Center Website, we have a letter prepared that you can sign and send to
your own Senators via e-mail. Just click on
http://capwiz.com/ndss/issues/alert/?alertid=2705606 and enter your zip code
in the box on the right. Then just follow directions. If you have questions or
comments about this information sheet, contact Patty Smith at psmith@ndss.org.
If you or others you know would like to be added to the NDSS mailing list, send
name(s) and email address to alauritzen@ndss.org. National Down Syndrome
Society, 666 Broadway, New York, NY 10012, Phone: 800-221-4602; Fax:
212-979-2873; e-mail: alauritzen@ndss.orginfo@ndss.org Web site:
http://www.ndss.org
ALERT Addendum
[From
Parents for the Rights of Developmentally Disabled Children
(PRDDC) Craig A.
Durfey, Founder, CraigD3976@aol.com . Please note that the Schafer Autism Report
does not necessarily recommend the actions above or below. They are provided
for our readers information only.]
Request all
families who have been affected by children with autism to support Federal
legislation HR 1350 amendment H.AMDT.98, to provide training first responders
and school safety personnel how to best respond to children with autism author
U.S. Congresswomen Loretta Sanchez and was agreed by voice vote.
However the
US. Senate S.1248 did not include this very important issue of training first
responders or school safety personal how best respond to children with autism.
We need to be sure to let our Senators, House Representatives know to include
this in the final Conference report to be sent for President George W. Bush to
sign into law.
Pediatric
literature doesnt contain any medical cures, guidelines, or consensus for
treating autism. However, most current treatments focus on improving overall
function. Typically, this goal involves enrolling the child in an appropriate
and intensive early intervention program to promote development of
communication, social, adaptive, behavioral, and academic skills. These programs
can also decrease maladaptive and repetitive behaviors, and help the family
manage stress by providing information about community resources, such as
respite care and support groups.
Clinicians
should tailor interventions to developmental and behavioral needs as well as the
familys coping style and resources. Interventions may include parent education
and support, highly structured social play, individualized school-based
education, behavior management and training, medical treatment, and respite.
Parents of children who have just received an autism diagnosis may find help
through talking with other parents of autistic children.16 Help parents find a
parent to parent organization, and give them the contact information for a
local Autism Society of America chapter.
The federal
government mandates age-appropriate early intervention and school programs,
which are often based on a developmental delay rather than a specific diagnosis.
The federal Individuals with Disabilities Education Act of 1990 (and subsequent
revisions), mandates appropriate educational plans for children with
developmental disabilities or delays and allocates specific rights to their
parents. Services include speech-language therapy and occupational and physical
therapy for preschool and school-aged children.
Several
treatments consistently benefit children with autism. The treatments mentioned
here dont indicate exclusive treatment, nor do they serve as a standard of
care. Al-though specialists will likely direct the care of a child with autism,
remain actively involved, even if you disagree with the familys treatment
decisions.
Common
Misperceptions of Autism
Behavioral
Technology and Social Skills Training Behavioral training and management is the
cornerstone of treating autism at any age. Behavior management and structured
teaching of skills help to prevent undesirable behaviors and help caregivers
more clearly teach and give directions to children with autism. Discrete trial
training is one form of applied behavior analysis. It involves intensive,
one-on-one teaching so children learn small parts of behaviors or skills in
short, repeated sessions. As a child learns skills, the teacher adds new ones in
carefully planned sequences.
The social
story uses scripted scenarios to help children with autism understand and
follow specified social protocols.17 Another approach uses symbols or pictures
to demonstrate appropriate and inappropriate behaviors.
Children
with autism should be in childcare centers and classrooms with
typically-developing children so they can model desirable behaviors. A teacher
can extend this modeling by creating a circle of friends, in which she invites
children to join a circle with an autistic child. The teacher then encourages
the children to express concerns about the difficulties the child is having and
help create solutions.
Habilitative
Services
Communication training involving preverbal and verbal communication and
occupational and physical therapy are also essential for managing autism. These
are most effective when interwoven throughout a total program. Because children
with autism often have a core deficit in functional communication, they
typically need intensive intervention to develop receptive and expressive
communication.
Based upon
behavioral principles, speech therapy may focus on acquiring language skills or
helping the child communicate more effectively by correcting errors in semantics
or pragmatics. Gestural, verbal, pictorial, and technological systems and
discrete trial training can effectively teach language. Each child needs an
individualized program, with family and teacher support, to learn communication.
Careful assessment is critical, as well as skilled training and commitment of
the adults who will use the system with the child.14 Occupational and physical
therapy can help address any coordination concerns and motor deficits.
Alternative
Therapies
Unconventional treatments abound partly because no medical cure exists for
autism. Many parents pursue alternative therapies because of a desire to try
almost anything that might help, claims of improvements from other families, or
rising skepticism regarding scientifically-based treatments. Become familiar
with the more popular alternative therapy treatments for autism, such as
unconventional diets, vitamin supplementation, sensory integration, and vision
treatments. Approach parents choices with objectivity and compassion.
Tell parents
that many people are urging scientific evaluation of treatments. Advise that
they should be skeptical of any treatment- especially those touted as a cure,
a method that will lead to recovery, or one that will benefit all who have
autism. Encourage parents to speak with a health care provider and ask
themselves these questions before starting any proposed treatment:
* Could the
treatment harm my child?
* How will
failure of the treatment affect my child and family?
* Does the
treatment have scientific validation?
* Do
specified assessment procedures exist?
* Can we
integrate the treatment into the childs current program?
* * *
Non-Stimulant for
ADHD -- Full-Length Doctors Interview
In this
full-length doctors interview, Thomas Spencer, M.D., explains how a different
kind of drug is offering hope to the 2 million children in the United States
with ADHD.
What do you
consider the main thing people think they know about ADHD but dont? Dr.
Spencer: Well, it depends on when you heard about it. But in general, the public
is a little bit behind on the wealth of new findings. [ADD] used to be defined
as a motoric overactivity -- hyperactivity, minimal brain dysfunction, these old
terms. In about 1980, the term changed to attention deficit disorder. Its not
really a total deficit, but a control of attention, more of a cognitive
disorder, a brain disorder with behavioral features at times. That was a huge
shift from kids who were overactive for whatever reason to somebody who had
trouble paying attention, focusing, completing tasks, and who may or may not be
hyperactive. There are other medical findings. Some psychiatric disorders are
primarily psychosocial, primarily in relationship to family and upbringing. ADHD
turns out to be more medical than many of these other disorders. Its 70 percent
genetic. That is, on average, 70 percent of its ideology, its cause, is genetic.
That s rare and its among the most genetic of disorders. A number of the brain
studies that theyve been able to do with the individuals with ADHD show
remarkable findings. Weve seen them with some of the other brain or psychiatric
conditions, but theyre really quite striking and quite consistent in this
disorder. I think the public is usually unaware of these things. It takes
several years for it to kind of get out.
Its almost
gotten to the point where the terms ADD and ADHD have become interchangeable. Do
you think thats another area where people get confused? Dr. Spencer: Thats a
good question. The names have changed over time, and by and large, when people
use either name, they mean the same thing. It is a problem that some individuals
with ADHD are very active and hyperactive, and some are not hyperactive at all.
They simply have attentional problems or school-related problems, and we now
think its differing forms of the same condition, so the titles have changed
over time. Essentially, we mean the same area of conditions and both parts of
it, the hyperactivity and the inattention, are related and can go together.
Are they
usually treated the same way? Dr. Spencer: It depends on the type of treatment
that youre talking about. Medical treatments tend to work similarly for both
conditions, but psychosocial treatments or environmental treatments may be quite
different. If a child is simply disorganized, has poor discipline, and cant
function well in school, but is quiet and not a behavioral problem, youd be
working on school remediation, organizational issues, learning issues, per se,
or social issues, say if those were primarily. There are other kids who are so
full of energy that theyre a bit disruptive and they need some behavioral
feedback. Thats a different kind of psychosocial treatment for a similar
condition.
Does a
childs diet have anything to do with ADHD? Dr. Spencer: Your question about
diet was actually formally studied. Everybody had the impression that diet was
closely related. If diet was to be a cause of the problem, then if you changed
diet, then people would get better, and it hasn t been shown to be true. Kids
with ADHD tend to crave junk food and sugar. They eat poorly. If you eat a lot
of sugar, youre a little more hyper, but even if you exclude sugar and all
these additives and eat a very bland, difficult-to-enforce diet, you dont
improve that much. That was actually tested. There were lots of double-blind
controlled studies of that. The American Academy of Pediatrics wrote a position
statement saying that there may be a few sensitive individuals, but by and
large, diet isnt a good treatment for ADHD, and its not usually part of the
cause.
The
Essential Difference: Men, Women and the Extreme Male Brain Men and women have
different brains. This notion has been the subject of increasing scientific
analysis, media interest, and pulp psychology of the men are from... variety.
Now, Simon Baron-Cohen (professor of psychology at Cambridge University) has
drawn on 20 years of clinical and academic experience and attempted to summarise
the research on this subjectan impressive proportion of which is his ownand
its implications for the
future.
Baron-Cohen argues that there are three kinds of normal human
brain:
empathising (type E), systemising (type S), and balanced (type B, which is
a meld of types E and S). With a reader friendly style and using fascinating
data, he states his central claim that, on average, men have a type S brain,
while the female brain is predominantly type E. There are exceptions, in that
some men may have a type E brain and some women a type S brain. He goes on to
consider the current (and evolutionary) strengths and weaknesses of these three
types of brain.
He defines
empathising as having a cognitive and an affective componentyou perceive what
another person might be thinking and you have an appropriate emotional reaction.
Systemising is the drive to understand a system and to build one. Its aim is
to discover the causes of things, allowing control of ones environment. At
its extreme, the author argues, the systemising brain is autistic (what he calls
the extreme male brain). This explains the islets of ability seen in some
autistic people (despite their associated mental retardation) and the narrow,
yet often profound, depth of focus in the enthusiasms of people with Aspergers
syndrome (such as, probably, Newton and Einstein).
Some of the
data that Baron-Cohen presents are depressingly deterministic. The authors own
team followed up a group of infants at one and then two years of age. They
discovered that the higher the levels of prenatal testosterone, the less eye
contact the child made as a toddler (with a correspondingly smaller vocabulary).
The implication is that by measuring testosterone one can predict a toddlers
potential for empathy. What is new about this line of inquiry is that it opens
up a possibility that autism may be connected to prenatal concentrations of
testosterone (the research has yet to be done).
Baron-Cohen
rightly concludes his exploration of this contentious subject by considering the
ethical implications. We now contemplate a future where prenatal sex hormone
levels could be altered, so as to avoid the possibility of autism or even a
child with a systemising brain. Would this serve humanity? Quite rightly,
Baron-Cohen defends the importance of brain variety, including the extreme male
brain. Without autism, argues one of his autistic patients, we might not have
fire and the wheel. Our difference is essential.
Iain
McClure, consultant child and adolescent psychiatrist Vale of Leven Hospital,
Alexandria, West Dunbartonshire imcclure@vol.scot.nhs.uk
* * *
Prevalence of
Autistic Spectrum Disorder In Children Attending Mainstream Schools In A Welsh
Education Authority
All
mainstream primary schools in Cardiff were invited in July 1998 to participate
in a prevalence survey of autistic spectrum disorder.
Teachers of
each class filled in a questionnaire based on ICD-10 criteria for autistic
disorders.
The Autism
Spectrum Screening Questionnaire (ASSQ) was completed on children identified
with problems identified by the questionnaire.
A total of
11692 children born between 1 September 1986 and 31 August 1990 were screened:
234 (2%) children were identified as requiring an ASSQ; 151 of 234 (65%) ASSQs
were returned.
Of the 151,
60 children (52 male, 8 female; 40%) scored 22 or more.
Their notes
and the involved professionals were consulted.
Thirty-five
children, unknown to specialist services or with complex features, required
additional assessment.
Seventeen
children (all male) were found to be on the autistic spectrum.
When the
overall rubric was disentangled we found a diverse population of affected
children including a handful who did not fit easily into ICD-10 classification.
Correcting
for incomplete ascertainment we found a minimum prevalence of 20.2 out of every
10000 (SE=4.5) for autistic spectrum disorder in this population.
* * *
FORENSIC
Autism Theory
Remains In Doubt
[Playing the
autism card as a criminal defense is a two-edged sword. It may provide justice
to the individual perpetrator in court. But every time autism is used as a
defense for committing a violent crime, it creates and reinforces a public
stereotype of autistic people being dangerous sociopaths to be avoided. -LS.]
http://www.expatica.com/main.asp?pad=2,18,&item_id=32560
Amsterdam
Psychiatry experts called to give evidence at the Amsterdam Appeals Court
contradicted each other when asked on Thursday whether the convicted killer of
maverick politician Pim Fortuyn has a subtle form of autism.
The court
requested expert witness testimony earlier this week in an attempt to determine
whether Volkert van der Graaf, 33, has a condition known as Asperger Syndrome.
Van der Graaf was sentenced on 15 April to 18 years jail for killing Fortuyn,
but both the prosecution and the defence submitted appeals against the sentence.
If it is
proven that Van der Graaf has Asperger, he could be sentenced to an unlimited
period of detention in a secure hospital on the grounds of diminished
responsibility.
Youth
psychiatrist Menno Oosterhoff said Asperger is so subtle that psychologists at
the Pieter Baan Centrum (PBC) missed symptoms and wrongly diagnosed him. He
believes Van der Graaf has Asperger Syndrome and should be re-examined. The PBC
examined Van der Graaf after he was arrest on 6 May 2002, the day that he killed
Fortuyn.
Oosterhoff,
a psychiatrist attached to the the Academic Centre for Child and Youth
Psychology in Groningen, came to his conclusion based on media reports about the
killer and the public prosecutors closing speech in the Amsterdam trial.
He said
Asperger patients have a disorder in the true meaning of the word, giving as
example several statements from Van der Graaf in which he admitted he had not
yet given enough thought to the consequences of his act and the fact that he had
not expressed regret for the murder.
But in
contradictory testimony, PBC psychologist Jacob Oudejans said Van der Graaf did
not have Asperger and that the Utrecht-observation clinic had taken into
consideration the possibility that he might have autism when it conduction its
examination. He said it became quickly apparent that Van der Graaf did not have
autism.
The
Amsterdam-Osdorp court has directed criticism at the PBC report, which stated
Van der Graaf had a personality disorder, but ruled out the possibility it
played any role in the murder of the anti-immigrant Fortuyn.
Fortuyn
founded the populist LPF party before he was shot and killed in the lead up to
the 15 May 2002 national election.
Oudejans
said Van der Graaf had made a political assessment of the danger of Pim
Fortuyn before carrying out the murder.
Meanwhile,
the court requested the prosecution call a second psychiatric expert to the
witness stand.
Forensic
psychologist Corine de Ruiter was sworn in and agreed with Oosterhoff. Both of
them said they could not understand why the PBC came to the conclusion that Van
der Graafs disorder had not played a role in the murder of Fortuyn.
Van der
Graaf, of Harderwijk, claimed on Tuesday he would never kill again and defence
lawyer Stijn Franken also said on the first day of the appeal that 18 years jail
was too harsh, reminding the court that no one without a prior conviction had
received such a stiff penalty on conviction of a single murder.
The
prosecution is expected to again demand a life sentence be imposed on Van der
Graaf. It maintains its claim that the killer attempted to seriously frustrate
the democratic process by murdering Fortuyn and asserts the court failed to take
into account the lack of remorse expressed by Van der Graaf.
The
Amsterdam appeals court is due to make its ruling on 18 July.
[Copyright
Expatica News 2003]
* * *
CARE
Teen Who Has
Autism Missing And In Danger
[By Jennifer
Sullivan in the Seattle Times.]
When
Roseanne Smith reported her 16-year-old son, Ashton, missing 24 days ago, police
assured her that he probably ran away.
But from the
start, Smith insisted it was out of character for her son to miss his 11 p.m.
curfew. The teen suffers from a form of autism that makes it unlikely that he
would deviate from his everyday routine.
Now, no
longer considered a runaway, Mountlake Terrace police are classifying him as
missing and in danger.
Theres
nothing to indicate he was abducted, said Detective Mike Haynes. But we have
not been able to rule anything out.
A photo of
the Mountlake Terrace High School student has been posted on missing childrens
Web sites and tacked up at bus stops across Snohomish County.
Police say
they are running out of leads.
Ashton Smith
suffers from Aspergers Syndrome, a disorder that can be characterized by
regimentation or repetitiveness.
Ashton has
been gone for 23 days, outside of his normal routine, and I feel Aston would
could come home, call me or something, his mother said yesterday. He would be
lost without his normal routine.
She said the
teen interacts socially at a fifth-grade level and can be easily manipulated.
Smith, 42,
who is unemployed, said getting police to reclassify her son as missing was a
struggle.
She said she
begged Mountlake Terrace police and state officials to issue an Amber Alert a
statewide emergency broadcast when he first disappeared but her request was
rejected because it didnt meet the criteria.
Sue Wagner,
missing childrens clearinghouse coordinator for the State Patrol, said an Amber
Alert is issued when the missing child is under 18, law enforcement believes the
child is in danger and there must be enough descriptive information to think a
broadcast would assist in the recovery of a child.
If somebody
had seen Ashton get into a car it would fit the criteria, absolutely, said
Wagner, who is working closely with Mountlake Terrace police. The problem is,
if we did this on every missing child the plan would be ineffective. People
would turn a deaf ear to it.
Since the
states Amber Alert system was signed into law by Gov. Gary Locke in October, it
has been issued three times.
Ashton
Smiths parents are divorced. Among those questioned has been Wesley Smith, the
teens father.
He told
police he thought Ashton was depressed and perhaps suicidal, Detective Haynes
said. But Ashtons mother disagrees.
The teens
father could not be reached for comment.
The teen was
last seen about 9 p.m. June 9 in the cabana area of the Maple Glen apartments,
where he lives, in the 5400 block of 212th Street Southwest in Mountlake
Terrace.
He is white,
has brown hair and eyes, is 5 feet 8 inches tall and weighs 140 pounds. He was
wearing a gray or green T-shirt, blue jeans, white socks and blue Velcro
sandals.
Geraldine
Dawson, a University of Washington psychologist and director of the schools
Autism Center, said people who suffer from Aspergers Syndrome have routine and
predicable lives.
It is a
developmental disorder that affects the childs ability to read social cues and
to communicate nonverbally, Dawson said. You can almost think of it as a
social-learning disability.
Dawson said
children who have Aspergers Syndrome have much better language and cognitive
abilities than most children diagnosed with classic autism.
While
Roseanne Smith keeps busy tacking up fliers at bus stops in Snohomish and King
counties, Haynes is disappointed that his tracking down of more than 30 tips has
been unsuccessful.
Ive
personally searched the parks in this city and the wooded areas within a mile of
the complex, Haynes said.
It is
frustrating. Were doing everything we can to find the kid.
Jennifer
Sullivan: 425-783-0604 or jensullivan@seattletimes.com
Ronnie
Mich, 61, sits in his Audubon house days before
moving.
Ronnie, who has autism, requires 24-hour care.
His fathers
estate, allegedly stolen by its executor,
was to
provide for that.
Ronnie Mich
woke up at 6:30 a.m. Tuesday in the familiar surroundings hed known for all his
61 years.
It was
moving day at 195 Carlisle Rd. in Audubon, but the autistic man didnt fully
grasp the cascade of events - the deception and the generosity - that led to
this moment.
Ronnie
looked in his small closet filled with shirts and slacks lined up neatly on wire
hangers and picked out a pair of green trousers. On the door was a collection of
neckties, each one tied by his father before his death nearly three years ago.
He needed
every item in the room to be in its place. His pillow had to be centered on his
double bed, a reminder to sleep in the middle, not too close to the edge.
Stuffed
animals and the board games he loves playing sat on the bureau, and pictures of
horses, dogs and cats adorned the walls. A sign on his door said, Ronnies
Room.
Like the
rest of the modest house, his bedroom was a 1950s time capsule, part of the
ordered haven where he was supposed to live out his days.
His father,
Stanley Mich, had seen to that. Hed worked hard and lived frugally, amassing
$1.2 million - enough to provide for his sons 24-hour care.
But now,
with that money gone - allegedly stolen by the executor of the estate - and the
house sold to pay off mounting debts, Ronnie was moving to a home for seniors
with disabilities.
His
neighbors and longtime friends, George and Elaine Stone, and caretaker Amanda
Bramble helped him through the final hours, trying to calm his fears.
Are they
going to like me there? asked Ronnie, slowly and softly pronouncing each
syllable. Are you going to visit me?
At 7 a.m.,
he sat down for breakfast for the last time at a 50-year-old Formica-and-chrome
table in the kitchen of his two-story home. His meal was the same as always:
Wheaties, orange juice and coffee.
He doesnt
want to leave, but he has no choice, said George Stone, 58, who grew up with
Ronnie on the block and was the driving force in a community effort to rescue
him when his plight became known in May.
What we
have to do will be a shock to him. He understands he has to leave, but I dont
think its sunk in.
In a few
hours, Ronnie would walk out the door, leaving everything hes ever known - the
home his grandparents built nearly 100 years ago and his father bequeathed to
him.
Stanley
Mich lived for Ronnie, his only child.
When his
wife, Ethel, died in the 1950s, Stanley focused completely on the welfare of his
son, then about 12.
He saved
wages from his routes selling newspapers and potato chips and candies, and
happily watched his wifes telephone stock skyrocket.
By the time
Stanley was in his late 80s, he thought his sons future was set.
He sought
the help of lawyer Dennis OBrien, a fellow parishioner at St. Rose of Lima
Roman Catholic Church in Haddon Heights.
OBrien, who
was Ronnies age, had an office a few blocks from the Mich house and often
bought large numbers of charity raffle tickets from Ronnie, who sold thousands
in the neighborhood over the years.
Before
Stanley died of cancer in September 2000, he named OBrien executor of his
estate and guardian to Ronnie.
Stanley
didnt know that the lawyer had been disbarred in 1999 and placed on five years
probation for misappropriating thousands of dollars entrusted to him by clients.
Two years
after Stanleys death, Elaine Stone became suspicious about OBriens handling
of the estate after spotting a $5,000 property-tax-delinquency notice posted at
a local bank.
OBrien was
supposed to have been paying the bills. On May 2, he was arrested.
Of the $1.2
million, all that remained was $163, said the new executor of the Mich estate,
Charles Thompson, a family friend and Elaines brother.
OBrien was
charged with money laundering and theft in the alleged embezzlement of more than
$1.5 million from six estates, including Michs.
The Camden
County prosecutors complaint described him as a marauder and manipulative,
cunning individual who preyed on the elderly.
OBrien is
being held without bond in the Camden County Correctional Facility and faces a
parole-violation hearing Friday.
OBriens
attorney, Robert Agre, was on vacation and unavailable for comment.
About 35
people, including members of OBriens church, have contacted prosecutors,
saying they believe they also have been victimized. The losses may exceed $3
million, authorities said.
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