Facilitated communication is an attempt to help autistic children
speak by using a "facilitator" to steady their hand as they type words
and sentences into a keyboard, expressing their thoughts. The
facilitator or whomever is standing there is able to read it aloud.
It was 11 years ago when facilitated communication first started making
waves in the autistic community.
When ABCNEWS' Diane Sawyer interviewed three teenagers about it back
in 1991, they told her that facilitated communication had changed their
lives. One 16-year-old autistic boy, Jeff, seemed overjoyed at being
able to communicate.
"Yes, it has changed my life because now I can let people know that I
am intelligent and I am good with words and I care about people," Jeff's
facilitator said, reading what the teen had typed into the keyboard. "I
love them."
But several leading experts in the field said they tested facilitated
communication scientifically and found conclusively that it didn't work
at all and that well meaning facilitators were unconsciously guiding
fingers toward the keys. Still, the families of the three teens that
ABCNEWS met, Lucy Harrison, Ben Lehr and Jeff Powell, say they have
continued to use facilitated communication and when Good Morning
America visited them again recently, each said it was still changing
their lives.
'We Didn't Know She Was There'
Lucy Harrison, who was 15 at the time of the first interview, talked
about autism when ABCNEWS first met her.
"I wish I was not autistic," Lucy Harrison said through facilitated
communication. "I wish I could do all the things other kids do."
Nita Harrison, Lucy's mother, said her daughter's communication
astounded the family.
"As she says, 'I am like everyone else inside my body,'" Nita
Harrison said."And she is in there, two feet away from us, and we didn't
know she was there."
Lucy Harrison is now 26, and her facilitators touch only her shoulder
as she types into the keyboard. She speaks as she types though not
always clearly and is an incredibly fast typist. Observing her, it
seems impossible that her words are not her own as she writes about
facilitated communication, which she calls FC.
"And a good way to be in the world was a way to have the FC for the
people who need understanding," she typed. "The person who's autism, the
person will be the one who needs to be the....quickly the world will
pass the person with the lack of the communication."
" (Communi) 'cation, yes," she says aloud as she typed.
Lucy is nearly finished with college, taking classes with the help of
facilitated communication, and is thinking about getting a job when
she's through, possibly at Pizza Hut, she says.
A Poet of Winter
Jeff Powell was 16 when ABCNEWS first met him, and through
facilitation he explained that his body makes involuntary movements that
he can't control
"Yes, it does what it wants to," Powell's facilitator said, reading
the words typed out by Powell. "Sometimes I can't help what it does."
Powell, an ace student and inspired poet, audited a couple college
courses after high school, but then stopped going to school. His
practice of typing without looking shared by many people with autism
is something even supporters say seems impossible.
He still writes poetry with facilitated communication: "Caving in the
snow, my feet feeling cold, snowbound, not easily defrosted, testing the
icy jingles of fresh freezing snow
"
Ben Lehr, another teen, was full of personality when ABCNEWS met him
in 1991. He declared himself a Democrat and typed out that Anita Hill
was telling the truth.
Lehr, now 29, finished college and surprised his parents, by telling
them, they say, through facilitated communication, that he wanted to get
a roommate and move out on his own. He did just that, and today, with
his sister's help, he builds furniture that is sold in local stores.
The three teens who first told their stories a decade ago are each in
their way making their own way in the world.
"It was a dream of the
getting the cure, the cure of the autism,
autism," Lucy Harrison said.

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