That is the reality for the parents of children with autism. Half a
million children in the United States are currently diagnosed with
autism, for which there is no known cause or cure. The numbers are
inexplicably growing.
Half or more of those afflicted with autism will never speak, leaving
desperate parents to wonder if, deep inside, there is a child they will
ever know. But thanks to one unusual little boy from India, some parents
are getting a rare glimpse into the isolated world of autism.
Deep in the heart of India, in a two-room house in the city of
Bangalore, the unimaginable took place. Tito Mukhopadhyay, a severely
autistic 11-year-old boy, was writing poetry. His language skills proved
that, despite his odd behavior, his cognitive mind was alive.
"With the help of my imagination, I can go to places that do not
exist and they are like beautiful dreams," Tito wrote in his book of
poetry. "But it is a world full of improbability racing toward
uncertainty."
Mysterious Rise in Autism
In 1992 there were 250,000 cases of autism in the United States. By
2002, that number had nearly doubled, rising to 425,000. In California,
the number of cases of autism has jumped a staggering 273 percent in 10
years.
No one really knows why.
"If you asked a hundred specialists about what could contribute to
the increase, you'd get at least 30 or 40 answers," said Dr. Mike
Merzenich, a neuroscientist at the University of California in San
Francisco.
The average level of intelligence among autistic individuals is
unknown because their impaired communication skills make testing of
cognitive abilities often nearly impossible.
Theories about what causes autism range from childhood vaccines to
delayed development in utero. A Danish study released last year studied
50,000 children given vaccines and 50,000 not vaccinated, and the autism
rates were about the same. Still, some cling to the theory that vaccines
have something to do with autism.
But as the experts debate, autistic children remain at the heart of
it all, which made Tito's case all the more compelling.
Tito's mother, Soma Mukhopadhyay, had somehow found a way to
communicate with her autistic son. She forced him to focus by gently
prodding him, sometimes raising her voice to keep him on track whenever
she asked him a question and required an answer.
And Tito responded. First by pointing and then, slowly, by writing
out sentences. The sentences grew into elegant observations about life
as a child locked in the body of an autistic.
"The thoughts are bigger than I can express," Tito wrote.. "Every
move that I make shows how trapped I feel under the continuous
happenings."
Thousands of Titos?
His case raises the question: Are there more children like him?
"There might be thousands of children like Tito, and one of our
challenges is to determine whether anything can be done about that and
whether there are more children that can be in a sense awakened like
Tito," Merzenich said.
Tito's poetry caught the attention of world-renowned autism experts,
who wanted to study him. The boy was one of the few people with autism
able to describe his inner experience.
Halfway across the world in Los Angeles, another mother, Portia
Iversen, was doing everything she could to give her son Dov a chance.
"There's certain intensity and vigilance you feel when you're the
parent of an autistic child," Iversen said. "A vigilance to help them
break through and break out of the disorder."
Like Tito, Dov was severely autistic. But Iversen had refused to
accept her son's fate and had started a foundation, Cure Autism Now, to
fund research into the condition that ruled Dov's life. And it was that
foundation that brought Soma and Tito to the United States.
"I was just filled with questions to ask Tito about all these
behaviors," Iversen said. "So that I could understand my son Dov
better."
The Unexpected Happens
During Soma and Tito's visit something unexpected happened. Soma
taught Dov the method she used with Tito, getting him to focus, point
and spell out entire sentences. For the first time, Dov could tell his
own mother, in rich detail, everything she wanted to know.
"This is not a cure for autism, it's a tool," Iversen said. "It will
probably not work for everybody the way it has for Tito, or for Dov, but
we have to try and determine if it can."
For Iversen, the changes have been astonishing.
"Every day was a new excitement," Iverson said. "Making up for all
these years of 'what do you want to be when you grow up? What's your
favorite subject in school? Do you like school? What's your favorite
color? How do you like having brothers and sisters?,'" she said.
Soma and Iversen are at work on a manual that aims to teach other
parents what they call the "rapid prompting method." Now Soma has begun
to teach the method at Dov's school, working with nine other autistic
students.
When Iversen asked Dov what being able to communicate has given him,
he spelled out an answer:
"I am understood."
Merzenich says Soma and Mukhopadhyay's efforts should be examined
closely by the medical world. "So we need to look at the strategy more
widely and determine whether or not it is a valid strategy for a large
number of children," Merzenich said. "That's still unresolved . But The
initial observations are extremely hopeful."

This is part one of a three-part Good Morning America series,
"Autism: Unlocking the Mystery," reported by ABCNEWS' Dr. Tim Johnson
and produced by Ami Schmitz, Morgan Zalkin and Anna Robertson. |