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SCHAFER AUTISM REPORT                "Healing Autism:

                             No Finer a Cause on the Planet" ________________________________________________________________

Monday, December 22, 2003                    Vol. 7  No. 253

 

 --- > NOTE WED. CALENDAR DEADLINE ** DEC 24 ** FOR JAN UPDATE

 

 

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    AWARENESS

   * Families of Sickest Kids Crushed By Soaring Costs

     And State Aid Cuts

   * Alabama Girl Among Top 10 In National Inventor Contest

 

    CARE

   * Singing Songs Of Love

   * Teacher's Aide Charged With Abusing Autistic Students

   * Santa Lends a Helping Hand

 

    EDUCATION

   * Schools Experiment To Maintain Order

 

    PUBLIC HEALTH

   * The Great Vaccination Debate Reaches Canada

 

 

AWARENESS

 

Families of Sickest Kids Crushed By Soaring Costs And State Aid Cuts Love and despair: Ohio families struggle to provide medical treatment for their children

 

      [By Debra Jasper, And Spencer Hunt for The Cincinnati Enquirer.] http://www.lancastereaglegazette.com/news/stories/20031218/localnews/59758.h

tml

 

      Don Jamison faces a painful choice: He can divorce his wife or quit his job to qualify for government health care for his son, or he can risk not getting the $653,000 in medicine each year that keeps his boy alive.

      Debbie Martin has this tough dilemma: She can let her 10-year-old autistic son go without care, or she can run up tens of thousands of dollars in doctor and hospital bills that she can never repay.

      Barb Steele knows hard decisions: The former teacher has already spent her retirement money and cash from the sale of her house on medical care for her severely ill son. Now she can either buy groceries or repair the Toyota that gets him to the doctor.

      “We're beyond bankruptcy,” the West Chester mom says. “There's nothing left.”

      In the health-care world of 2003, thousands of middle-income families throughout Ohio and the nation face extreme choices like these every day, The Cincinnati Enquirer has found.

      Families are caught between soaring health-care costs and medical miracles that keep seriously ill people alive and everyone else living longer.

      Too rich to get government aid and too poor to pay extraordinary medical costs, some families are forced to make decisions that the rest of us can hardly comprehend. They're selling their homes, cashing in retirement plans and burning through savings to pay for care their kids so urgently need.

      As their insurance runs out or premiums swell out of reach, some parents are considering divorce, bankruptcy or quitting their jobs to lower their incomes to get government aid.

      The tough choices fall on families as state and local governments confront hard times by cutting programs that once helped thousands.

      Officials say they had to act. Spending on Medicaid, the health-care program for the disabled or poor, jumped 40 percent in five years to $228 billion nationwide. In Ohio alone, just 25 of the most seriously ill people cost nearly $18 million in 2001, an Enquirer analysis shows.

      One person's care cost $1.8 million in a single year. To offset those costs, Ohio this year quietly reduced health-care coverage to 5,000 middle-income kids with diabetes, cerebral palsy and other serious diseases.

      Ohio also made it tougher to get nursing care and other help at home -- turning down 73 percent of the 7,088 people who applied since 2001. Many were parents of severely ill or disabled children who had been waiting for months or even years.

      Barb Edwards, director of the Ohio Medicaid program, says the decisions are heartbreaking but necessary.

      “Do we pay more to get more doctors into the system, or do we cover immunizations for children? Do we help autistic kids, or do we help the elderly?” she asks. “The reality is we have limited resources to deal with unlimited need.”

      If trends continue, things will only get worse. Medical costs will continue to climb, people will live even longer with more serious illnesses, public funding will get stretched further -- and more families will face more extreme choices every day.

      “There is no access to help. No money for services. Families have to break up just to get help for their sick child,” says Penny Wyman, director of the Ohio Association of Child Caring Agencies. “The social services system in Ohio is on its knees.”

 

No way to pay

      Don Jamison lies awake at night haunted by fears. There's no way he can pay $653,000 each year for the drugs his 13-year-old son needs to keep hemophilia from killing him.

      There's no way that he can't.

      Jamison debates quitting the factory job he's held for more than two decades to qualify for government health care to pay for the drugs. He wonders if Jennifer, his wife of 16 years, should divorce him to lower her income and qualify herself.

      Maybe, he thinks, the couple should sell the 136-year-old farmhouse they've so painstakingly restored.

      He might make one of those choices, if he thought it really would help.

      But, he says: “If I quit my job and lose everything, will my son be healthy? No. How does it help the government for us to go bankrupt? It's not right.”

      Until 13 years ago, the stocky 42-year-old Jamison was just another young husband with a slice of farmland and middle-class dreams in rural Preble County. He never imagined he would someday need $12,500 in drugs each week for his son, Blake.

      The severe hemophilia that afflicts the boy is much worse than blood that won't clot on a wound. Without help, Blake could bleed internally so much that he could become crippled or die.

      Jamison wants Blake to keep taking Advate, a new prescription medicine that would let him grow up much like any other kid. The drug is safer than earlier, human blood-based medicines that put people with hemophilia at risk for HIV and other infectious diseases.

      “Blake plays the piano, he's a first-chair trumpet player and he gets straight As,” Jamison says proudly. “He reads Harry Potter. He does a lot of the things like other kids do, and that's just what we want for him.”

      The Jamisons once thought their private insurance would cover Blake's medical costs. But like thousands of other American workers, Don Jamison's health insurance policy had a lifetime limit of $1 million.

      Even with Blake taking older, less expensive medicine in the early 1990s, the Jamisons' insurance was close to capping out by November 2000. The couple swallowed their pride and went down to the county welfare office to apply for government aid.

      They hated telling strangers intimate details about Blake's health, their jobs and their incomes. They hated the thought of their neighbors finding out they couldn't afford care for their own son. But they figured the embarrassment would be worth it if they got help.

      They never doubted they'd get it. After all, they had both worked hard and paid taxes all their lives. Yet the county quickly turned down their request.

      With Don's job at a food service equipment company and Jennifer's work as a customer service representative, the couple earned $4,641 a month -- far more than the $1,180 income limit for the help they wanted.

      “I can only look at income,” says Pam Sarver, a referral specialist with the Preble County Job and Family Services Department, who saw the Jamisons.

      She says the income rules force middle-income families to make terrible choices, but there's not much she can do.

      “They'll ask me, 'If I lose my job or get divorced, could I get help then?' “ Sarver says. “And I say, 'Yes, you can.' “

      Despite their growing frustration, the Jamisons refused to give up.

      When their insurance ran out over the summer, they bought additional coverage through Aetna. That insurance pays for their son's medicine, but the monthly premium is $1,389, nearly half their take-home pay.

      The Jamisons then turned to the Internet and found a series of grants to help cover part of their insurance costs. They also were just approved for insurance help from a government program they believed was a long shot.

      The Jamisons now have to decide between the two options. Either way, they know that when the money runs out in a year or two, they will be back where they started, trying to pay for insurance that's well beyond their means.

      At 13, Blake worries most that his parents might divorce to qualify for help.

      “I'm scared of losing my medicine,” he confides. “But I'm even more scared of losing one of them.”

      The Jamisons say they had no idea how far they would have to go to take care of their son.

      “It's been total devastation,” Don Jamison says. “It feels like I've been walking down a long, dark hallway knocking on doors, but no one is answering.”

      His co-workers offered to host a fund-raiser to help, but he just shakes his head.

      “What people don't understand,” he says, “is that we can't sell enough cookies to cover this.”

 

Left behind

+ Article continues:

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tml < - - address ends here.

 

 

 

 

 

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* * *

 

Alabama Girl Among Top 10 In National Inventor Contest

 

      [By Holly Hollman.] http://www.decaturdaily.com/decaturdaily/news/031220/inventor.shtml

 

      Elkmont, Ala. — There may have been a time when Jennifer Cech did not think she would be able to brag “how incredibly talented” her daughter is.

      When Katie was born, doctors told John and Jennifer Cech that she had infantile autism, a condition that can cause poorly developed communication skills, abnormality in speech pattern, inability to sustain a conversation, inability to make friends and tantrum-like behavior when the child's routine is disrupted.

      Katie's condition was not that severe. She remembers having trouble memorizing, and she is almost completely deaf.

      “I have hearing aids now,” the 11-year-old Elkmont High School sixth-grader said. “I'm outgrowing the problems I had learning.”

      She has more than outgrown them. She has surpassed her problems. On Thursday, Katie's teacher, Matt Stockman, notified her that she placed in the top 10 nationwide in an inventor's challenge.

      Katie designed a walking stick that can growl and provide light. The top of the stick has an animal's head, such as a wolf.

      “His growl can scare animals away, and the light helps you see if it gets dark,” she said.

      She got the idea from a magazine picture of a staff with an animal's head on it. On her entry form she wrote this explanation for her invention: “Imagine yourself deep in the dark woods and the sun is beginning to set. You forgot your flashlight and the matches you packed in your backpack are wet and soggy. How will you find your way back to camp or to your cabin? This lighted walking stick is the perfect answer.

      “A molded resin animal head in your choice of characters sits on top of a 2-inch diameter staff. Just below that animal head, a fabric-covered hand grip provides a comfortable place to grasp your walking stick during your long hikes. Light shines through inserted plastic shapes that have been carefully molded into the body of the staff. A button at the throat of the animal can be pressed to make an animal sound like a horse snort, the growl of a wolfhound or the deep grunt of a deer. A night-light-sized bulb provides the light for the walking stick and is powered by two C cell batteries, which are purchased separately from the walking stick.”

      Katie also drew her creation.

      “I started drawing when I was 5,” she said. “I like to draw half humans, half dogs.”

      By placing in the top 10, she won toys from the company that hosted the contest, Wild Planet, and a chance to be a child consultant to Wild Planet for a year.

      Katie said she enjoys science and art, but she would like to have a job where she can care for animals. Near her wooded Elkmont home, she often finds abandoned dogs and cats. She has a Shiatsu named Max and three cats named Erwin, Aggie and Snickers.

      Her family locates homes for some of the animals that she finds. When the animals are too sick, her mother takes them to a veterinarian to be put to sleep.

      “It's really sad when we do that,” Katie said. “I try to leave food out for the ones that are OK.”

      She has never been bitten and believes that's because animals trust her.

      “I like to come up with names for them from movies I watch,” she said.

      Her mother couldn't be happier that her daughter has so many interests.

      “I'm so proud of her,” Jennifer Cech said. “She's done so well, and she doesn't mind telling you about it. She gets excited and will just talk and talk.”

      Katie admits she's been “jumpy and smiling” since Stockman told her that she won. With Katie planning to enter more art and science contests, she'll probably have plenty to talk about.

* * *

 

CARE

 

Singing Songs Of Love

 

      [By Di Caelers in New Zealand.] http://www.capeargus.co.za/index.php?fSectionId=342&fArticleId=312444

 

      The picture says it all; Leanne Scott hugs her autistic son Donovan, 13. His eyes speak of his trust for his mother, but his hands are pushing her away, drawing himself out of her embrace.

      That's the story of autism, a world little understood even by the parents and carers closest to these youngsters who live in their own little bubbles, totally unaware of the feelings of others, hyperactive, obsessive and, at their worst, even dangerous.

      It's a world that Scott not only did everything she could to understand, but also committed to financially in a bid to create a home-from-home for these youngsters who are mostly impossible to keep at home.

      In the process, however, Scott has committed herself to a lifetime of caring, with very little financial help for a staff-intensive enterprise that is often the only option available to children who fall through the cracks of other care institutions.

      When Donovan's father died and left them some money, Hurdy Gurdy House, in Penhill near Eerste River, was opened - and while it's been a godsend for the young residents, the strain it's taken on Scott is obvious.

      “I think if I'd known at the outset what I was doing, I would never have done it. It's like trying to set up your own intensive care unit,” she says bluntly, desperately appealing for government assistance for a project that is clearly too much for any one person to take responsibility for.

      A visit to Hurdy Gurdy House tells a story of the lives of its residents they would never be able to articulate. Heavy barred doors separate them from the kitchen where medication and potentially harmful utensils are kept.

      It's completely undecorated. If there were ornaments, the residents would simply break them. All the bedroom doors have reinforced bottoms, evidence of tantrums thrown in the worst moments when doors have been kicked in.

      There are no locks on those doors - and not only because they might lock themselves in. “They just take them off,” Scott says, pointing to locked cupboards to prevent the youngsters constantly unpacking everything they own, another symptom of their condition.

      Scott tells of the “very nasty separation” she experienced on finding out that all was not well with her apparently carefree, intelligent baby.

      First he didn't react to noise, and her mother, Vaurneen Scott, sounded the alarm and Scott had his hearing tested. It was fine. He wasn't babbling by nine months, and by 18 months Scott realised that she couldn't teach him anything.

      At the Red Cross Children's Hospital developmental unit, Donovan was diagnosed with pervasive developmental disorder, an umbrella term that includes autism.

      When Scott had her daughter Charlotte - when Donovan was 22 months old - she fully realised the impact of living with an autistic child.

      “All my memories of Charlotte as a baby are of her in her chair on top of the cupboard or on top of the fridge, out of Donovan's reach. He was dangerous to her, even though he never meant to be.”

      It was when she tried to get Donovan into one of the two schools in Cape Town that cater for autistic children - he was rejected because he didn't meet the strict criteria - that she realised her child may not have anywhere to go.

      “It's bad enough when you're alive, but what happens when you're  dead,” she says.

      Donovan did spend 18 months at Camphill, near Hermanus, where he was very happy. But because he cannot be toilet trained, he again fell through the cracks.

      Also, Scott realised that he would never be self-sufficient enough to stay on the farm where adults live once they become too old for Camphill.

      On November 15, 2001, Hurdy Gurdy House was opened, named for the singer Donovan's song about the Hurdy Gurdy man.

      “It seemed extremely appropriate,” says Scott of the rambling house where four autistic boys now live, aged from 13 to their 20s.

      “We'd so like to take in more children. But because we get no subsidy it's very expensive so it's impossible for us to begin to address the enormous need that's out there.

      The fact that all the residents are males is a reflection of the reality that autism affects many more boys than girls. They had one girl, but she left when her family emigrated to Britain.

      Currently, there is a little light on the horizon with social services indicating an interest in funding staff training and committing to psychological support for the staff.

      They have also applied for funding for a professional manager from Autism South Africa, and they want to persuade the association to take Hurdy Gurdy House under its wing.

      “When I started Hurdy Gurdy House I was on a year sabbatical from the University of Cape Town (she is deputy head of the statistics department). Then I was on maternity leave with my youngest daughter Hannah who's 16 months, so I had a lot of time to spare for Hurdy Gurdy House,” she says.

      Hannah's father and Scott's partner of three years Richard Gaertner ran Hurdy Gurdy House when she went back to work, but the financial burden proved too much for the family and he too had to return to work.

      Scott is desperate for help to keep open the doors of this home for riddle children.

      For more information, call Scott at 021 638 1187.

* *

 

Teacher's Aide Charged With Abusing Autistic Students

 

http://www.news4jax.com/education/2716392/detail.html#

 

      Jacksonville, Fla. -- A 60-year-old teacher's aide at a Duval County elementary school accused of abusing several of her students faces criminal charges and lost her job.

      Graceil Jones was arrested last Friday after investigating reports from school security officers that the teaching assistant at Pinedale Elementary has struck at least three students, at least two of them disabled.

      According to a police report, the teacher that Jones was assisting had seen Jones strike an 8-year-old autistic boys on different occasions, once with her hand, once with a ruler, and once with her shoe. She also reported the Jones regularly would bend the boy's fingers back so far that he would fall to the ground screaming.

      The teacher said she has seen Jones also bend a 6-year-old autistic student's fingers back, forcing her to the ground. Similar abuse was reported on a 9-year-old boy at the school.

      “There appeared to be some very poor decision-making on the part of this employee,” Duval County school district spokesman John Williams said. “It's a shocking allegation. These are autistic children, and there's absolutely no excuse to hit them.”

      Jones turned herself into police and was charged with child abuse. She was later released on $2,503 bond.

      After Duval County school officials investigated the charges, the 14-year employee was fired. The district told Channel 4 that they plan additional training for the remaining teachers at the school, not only about appropriate behavior, but also about reporting any abuse they observe to their superiors.

      Copyright 2003 by News4Jax.com.

* * *

 

Santa Lends a Helping Hand

 

      [By Erin L. Boyle.] http://www.nj.com/news/sunbeam/index.ssf?/base/news-1/107199840081030.xml

 

      Pennsville Twp., NJ -- The parents were unsure how their children would react to Santa Claus, but they need not have worried: Children everywhere instinctively know what to ask him.

      For Christmas presents.

      At the Salem County Autism Support Group's meeting in the Small Wonders Preschool here recently, it was no different. Santa -- also known as preschool co-owner Bob Puitz -- came laden with gifts for the group's children, many who have autism and other neurological disorders.

      A hallmark of those with autism is difficulty with new situations and experiences. The disorder has a wide variety of symptoms of varying severity.

      “Most autistic children have an interaction problem with people,” said Nancy Galey, whose son, Ross, 6, was diagnosed with a mild form of autism two years ago. “Most of them are not good with eye-to-eye contact.”

      Jagger Hitchner, 8, who has Asperger Syndrome, sat on Santa's lap for a few minutes, detailing all he wanted for Christmas: a light saber from “Star Wars,” tan Army men and green Army men, a Buzz Lightyear with a utility belt and a video game.

      “I liked him (Santa), 'cause he was in red,” Jagger Hitchner said afterward.

      His aunt, Angel Jackson, comes to every support group meeting for her twin sister, Diane Hitchner. Jackson said the event was a success.

      “I think it went over well,” she said. “I was surprised because I thought they would be afraid, but they were all very receptive to it.”

      Because the event was the first Christmas party the group held, some parents did not know how the children would react when Santa entered the room. Galey said that many of those with autism are not aware of others around them and have difficulty adapting to different social occasions.

      While “Santa” sat on a rocking chair in the middle of the noisy preschool, handing out wrapped toys, many of the children stood in a long line to sit on his lap. When they received their gifts, they eagerly tore open the wrapping paper.

      Several continued what they were doing before Santa arrived. One little boy continued running a toy vacuum cleaner, oblivious to all that went on around him.

      The group, sponsored by the Center for Outreach and Services for the Autistic Community, or COSAC, has been meeting at the preschool once a month for a year and a half. Kim Sheehan, COSAC group facilitator, said the group helps parents deal with the joys and difficulties of raising children with autism and other neurological disorders.

      “I think this is good, because it's a really fun way to enjoy their families rather than coming together for a problem,” she said of the Christmas party.

      As “Santa” left the party Wednesday evening, he said good-bye to each child. He stopped in the hall, where Jagger Hitchner was putting his coat on, to go home.

      “You behave yourself and you might get all those presents you asked for,” Santa told him.

      Jagger turned and told his mother: “I promised Santa I'd behave.”

      n The Salem County Autism Support Group meets the second Wednesday of every month at the Small Wonders Preschool on 3 Ferry Road, Pennsville. For more information about the group, contact Diane Hitchner at 351-6666.

 

 

 

 

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* * *

 

EDUCATION

 

Schools Experiment To Maintain Order

Based on the theory that positive behavior has to be mastered before reading and math, elementary schools focus on disruptive students.

 

      [By Barbara Behrendt for the St. Petersburg Times.] http://www.sptimes.com/2003/12/21/Citrus/Schools_experiment_to.shtml

 

      Inverness, Fla. - The 5-year-old boy had only been in Alissa Grace's class for a couple of weeks, but already he had made a big impression.

      He was adept at escape, a skill he could practice easily since her classroom has three exit doors. Then there was the compliance issue.

      One day last week Grace was focusing on the boy while teacher aides in her Inverness Primary School classroom worked on reading and math with her other special-needs students.

      “Snack or work?” she asked the child, whose name - like the names of other children in this story - is not being used because of his age.

      The boy was sliding around the floor on his hands and knees, appearing to pay little attention to the choice before him. “Snack or work?” the teacher asked again. “Work,” the child finally replied, then swung away from his work station for a mad scramble to the snack table.

      Grace reached down to redirect the student, shooting Ed Grein a this-is-what-I've-been-dealing-with glance. Grein nodded. Already his detective-like job had begun.

      Watching carefully how the child responded in different situations, at different times of the day and with different people, he could begin to find out what triggers good behavior and what triggers disruption. Even as the child squirmed in Grace's gentle grip, Grein was forming ways to make the school experience better - not just for the boy but for Grace, her other students and the school in general.

      That's the kind of effect the disruptive child can have. In this case, an extra aide had been added to the class to help Grace deal with this one child's adjustments.

      “That impacts every other kid in the school,” Grein said later.

      Actually, the growing problem of disruptive and dangerous students at Citrus elementary schools is affecting the entire district. School officials have responded in recent years by adding more support from the district office. That includes Grein as a district-level behavior specialist, greater law enforcement presence and more programs geared at changing behavior.

      While the district can't easily provide statistics that demonstrate the growing problem, anecdotal evidence has been mounting. Every year recently, elementary school children end up arrested or involuntarily committed for mental health evaluation. The number of suspensions has increased.

      The School Board has discussed the problem as it considers the state of existing alternative programs and future needs. The discussion is timely, since the district is preparing to build a new and permanent Renaissance Center.

      Prompted by board questions about the needs at the elementary schools, district officials have said repeatedly that the kind of alternative setting the Renaissance Center provides for disruptive middle and high school students won't work for the younger children.

      “The philosophy at this particular time is that this superintendent does not think that separating, segregating that child into an enclosed environment is in the best interests of that child,” superintendent David Hickey said. “Children learn from other children” and need the presence of other well-behaved children who can demonstrate for them the proper behavior.

      But tell that to a classroom teacher pressured to teach a challenging curriculum in a stress-filled accountability era. That teacher must reach each child in the room while also managing one student who is ruining the lesson for all. “It is a severe problem, and it really is tying up a lot of personnel,” said Marlise Bushman, Inverness Primary School principal.

      “You've got this every year. You're supposed to be teaching, but this one child, he does not want to learn it and he does not want his classmates to learn it, so your goals are diametrically opposed,” said School Board member and 30-year teacher Ginger Bryant. “Something has got to give for my grandchildren and all those who sit in classrooms who deserve to learn.”

* *

      The fifth-grade student was about to cock and fire his imaginary gun for the sixth or seventh time, aiming it at random points around the classroom that only he could see needed shooting.

      Now and then the boy, who is autistic, would intone some sound or other, drumming fingers on his desk or his head when he wasn't busy with the invisible weapon.

      Inverness Primary teacher Noreen Clark was walking other students in her class through their science fair demonstrations, but her eyes never wandered too far from the boy. Now and again she would gently ask the class to quiet down and be more attentive to whomever was up front, but it was clear the admonition was geared for one student in particular.

      Time and again in a nearly unnoticeable way, she would offer special instruction or reinforcement for the boy while not skipping a beat with the rest of the students.

      Despite the boy's apparent lack of attention, he did raise his hand to participate. Clark's skillful ability to gently offer extra help for the child and the boy's willingness to participate were critical clues to Grein, who was strategically observing from the back of the room.

      Earlier that morning, Grein met with Clark and exceptional student education specialist Bonnie Wise to talk about the child's recent behavior problems, including an incident where he struck another student because she irritated him.

      The discussion was not unlike many that happen around the district. It revolved around medication changes for the boy, who is a special-needs child. The team touched on the need for more involvement by the boy's mother. They talked about his academic progress and how he has faced consequences, such as a change in schedule removing recess time, because he is falling behind.

      “He does want to be treated like a fifth-grader,” Clark said.

      “He is speaking that he wants regular consequences, but he is 11 years old,” Grein said. “He doesn't realize how some of what he does can come back and bite him.”

      While the child is classified as an “exceptional student” because of his special needs, he still travels through his school day in regular classrooms with other non-exceptional students. The approach is called mainstreaming, and it is the goal for as many students as possible.

      “Many of them are very successful,” Wise said. “We do everything we can to keep the child in the regular environment, the regular setting.”

      Sometimes mainstreaming means a teacher must deal with an exceptional student's special needs while still serving all their other students. Grein sees a number of exceptional students acting out and causing problems, but he provides services to any school or teacher who needs his help to solve a behavior issue.

      When it gets really bad in the classroom, he is the one they call.

      But Grein does not do this work alone. He enlists whole teams of teachers, guidance counselors, administrators, resource officers and even support staff in the schools to build a profile of a student's misbehavior. Then as a team, once they determine what sets off a problem, he helps identify a solution.

      Sometimes students misbehave because it gets them out of an academic subject that challenges them. Sometimes they're hungry or their parents were having an argument before they left for school. Sometimes new medications or a changed dosage can affect behavior.

      The team charts all those variables and then begins to try new approaches to see what works. Parental involvement is a critical piece in many cases. Sometimes a simple schedule change can be the answer. And sometimes the final outcome is that the child needs to be placed in a different setting such as CREST, the district's school for mentally, physically and emotionally disabled children.

      “Our role as educators is to teach them appropriate behavior,” Grein said. “This gets us to the why of what they're doing.”

+ Article continues:

http://www.sptimes.com/2003/12/21/Citrus/Schools_experiment_to.shtml

* * *

 

PUBLIC HEALTH

 

The Great Vaccination Debate Reaches Canada

With polio vanquished and other deadly diseases in decline, many parents are saying no to the needle. But as more children go unprotected, could some lethal illnesses be poised for a comeback? PAUL TAYLOR reports

 

      [By Paul Taylor.] http://www.globeandmail.com/servlet/ArticleNews/TPStory/LAC/20031220/VACCINE

20/TPHealth/

 

      Vaccines have become modern-day suits of armour, protecting humanity from deadly pathogens that used to cut us down in great numbers. But with many common illnesses now apparently vanquished, some parents question the need for vaccinating their children, fearing the potential side effects of the shots more than the diseases themselves.

      In part, the anti-vaccination movement has been fuelled by a growing tendency to question traditional medicine and embrace alternative therapies.

      For Alison Gowan, it was an “easy choice” not to vaccinate. The 33-year-old music teacher, who lives with her husband in Kingston, Ont., had given birth to both her boys at home and wanted to raise them in a “natural” manner. “Vaccination was not the way we wanted to go,” she says.

      Conversations with the midwives who helped to deliver her babies raised concerns about the long-term health implications of vaccinations, she says. “I worry about how it is going to affect our bodies later in life.”

      Ms. Gowan is bright, articulate and well educated. Her husband is a university sociology professor. Her own mother was a nurse. She feels she knows enough to make the right decision for her boys, who are now 8 and 10.

      “Measles and mumps are pretty minor diseases when you are in a developed country with good, clean water, decent food and that sort of thing,” she says. The risk of side effects from the vaccinations just didn't seem worth it, given “the very, very rare possibility” of her boys acquiring the diseases.

      Such talk strikes fear into the hearts of public-health officials, who say a vigilant guard against the microbial world must be maintained.

      Dr. Peter Nieman, a Calgary pediatrician, is critical of parents who forgo vaccinating their children. “I think it's quite selfish of them to come along for a free ride,” he says. “They benefit from the fact that the majority of other people got their kids immunized.”

      Unvaccinated children are partly protected by what is known as “herd immunity.” Diseases can't easily spread through a community when most members act as poor hosts for the pathogens.

      But Dr. Nieman warns that deadly diseases can make a quick comeback whenever vaccinations dip below a critical level.

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DISCLAIMER:    All information, data, and material contained, presented, or provided here is for general information purposes only and is not to be construed as reflecting the knowledge or opinions of the publisher, and is not to be construed or intended as providing medical or legal advice.  The decision whether or not to vaccinate is an important and complex issue and should be made by you, and you alone, in consultation with your health care provider.