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Lack of autism funding called
discriminatory
Parents hope civil suit leads to full
funding for intensive therapy
COLIN PERKEL
CANADIAN
PRESS
The Ontario government's failure to properly fund an intensive
therapy for all children with autism is discriminatory and violates
the principles of medicare, a civil trial heard today.
Parents from 28 families
whose children have the brain disorder are suing the province to
force it to pay for the treatment after the child reaches the age of
six.
"It is a neurological
defect," lawyer Paul Mann said in opening statements to the Superior
Court of Justice. "It is a disease."
Mann, who represents one
family fighting a separate suit that is being heard along with the
others, began his case by outlining the gut-wrenching story of a
Toronto couple, Dr. Steven Deskin and his wife Brend.
Mann recounted how the
Deskins' joy at the birth of their healthy seven-pound, 11-ounce boy
Michael in 1995 slowly turned to anguish and despair as they
gradually realized something was wrong with him.
For more than two years,
doctors and others reassured them that Michael was simply a bit
slow, that he was "a late talker" as boys often are.
Finally, at age three, he
was diagnosed with autism, a poorly understood disorder
characterized by a failure to communicate, difficulty in learning
and self-stimulating or aggressive behaviour.
To date, the Deskins
estimate they have spent more than $600,000 trying to keep Michael,
now eight, in therapy.
Other parents recounted
similar stories of extreme financial and emotional hardship for
themselves and their families.
Many experts believe the
intensive and exhausting one-on-one therapy, which can cost as much
as $75,000 a year, is the best method of ensuring a reasonable
degree of normal functioning for autistic children.
They also argue it is
more cost-effective than institutionalizing children for life.
The therapy, variously
known as applied behavioural analysis or intensive behaviour
intervention, is deemed most effective between the ages of two and
five.
While the provincial
government began a funding program in 2000, it does not pay beyond
age six. Hundreds of children are also on lengthy waiting lists for
assessments.
"The whole program was
negligently conceived and carried out," Mann said outside court,
comparing it to cutting off chemotherapy for a cancer patient. "What
do you do? Dig yourself a grave?"
Suzanne Wetszel, who came
from Sault Ste. Marie, Ont., for the opening of what is expected to
be a four-month trial, said her nine-year-old autistic son Sebastien
is in therapy.
"My husband and I both
have decent jobs but we are considerably in debt," she said. "The
child turned six years and as a birthday present, they cut him off
(from funding)."
Robert Charney, the lead
lawyer for the province, refused to discuss the case. However, the
government has previously insisted its funding for autism therapy is
unsurpassed in North America.
The government says it
will provide up to $100 million a year by 2006-07 for autism, which
amounts to "an unprecedented funding commitment."
The trial before Justice
Frances Kiteley continues.
Last month, the New
Brunswick Autism Society protested what it called a lack of funding
from the province for people with the affliction.
Last year, a court ordered the British Columbia government to
fund intensive behavioural intervention for all children who need
it, regardless of age. |