Daily Camera
Autism cure remains elusive, parents find own solutions
By SUSAN GLAIRON
LONGMONT, Colo. (AP) - Simple words from 4-year-old Ashe Vogan may be
unimpressive to a casual listener, but his typical preschool babble is
nothing short of a miracle to his family.
Ashe has autism, a baffling neurological condition that, according to a
Centers for Disease Control and Prevention study released in January, is as
much as 10 times more common than it was a decade ago. It is estimated to
affect between two and six of every 1,000 children.
The syndrome impairs language and social skills and is characterized by
poor eye contact, difficulty making friends, abnormal interests and
repetitive body movements such as hand flapping. It affects boys four times
more often than girls.
There is no cure and the cause or causes remain elusive. Some blame
genetic abnormalities, while others point to diet and environmental toxins.
Read the article at the
Casper Star Tribune.
Ashe's mother, Heather Vogan, says time with a therapist and a special
diet have really helped her son.
''He's so with us now,'' she says. ''When we started he had to learn to
sit in the chair. Now he just works for the sheer pleasure of doing it and
learning. He loves to read books. That's his thing.''
Ashe's disorder began to show at age 2 1/2. He stopped talking, began
throwing tantrums and seemed to grow increasingly disconnected from his
family. His face became expressionless, and he started peering out of the
corner of his eyes. In August 2001, he was diagnosed with autism.
A little more than a year after starting therapy, Ashe speaks in six- to
seven-word sentences and connects with his family. He also reads and does
simple addition.
Since some believe heavy metals in the body cause autism, the Vogans
bring Ashe to Frontier Medical Institute in Denver for chelation therapy, a
process that uses amino acids to remove mercury and other metals from his
system.
Ashe is also on a gluten and dairy-free diet and takes dietary
supplements such as Vitamin B6. He spends 35 hours a week doing Applied
Behavior Analysis therapy, where children are rewarded with food, toys and
praise for learning skills, and he interacts with peers at preschool.
Heather says the special diet has improved his digestive problems, common
among autistic children. She has noticed more focused behavior, better eye
contact, more meaningful conversations and a decrease in self-stimulatory
behaviors such as flapping hands after chelation therapy.
But she says the biggest changes have come from one-on-one time with his
therapist, who quickly paces skill lessons with rewards such as reading a
few lines from his favorite books or playing with a favorite toy.
''He's emerged,'' says Ashe's therapist, Angele Tatem-Juth. ''He's a
social guy. He was always curious, and now he can express his curiosity.''
Autism's rapid spread has spawned impressive new research centers in
Denver and Boulder, built with both federal and private funding sources.
Nationwide, $90 billion will be spent on autism treatment, education and
services this year, a figure projected to grow to $300 billion over the next
decade, according to the Autism Society of America.
The Vogans spend roughly $30,000 annually for therapy, but Heather
stresses that there are alternatives that are not as expensive, such as
teaching family members to do the therapy.
''This isn't going to go away,'' says Theresa Wrangham, president of the
100-member Autism Society of Boulder County and mother of an autistic child.
''The numbers are rising. In your lifetime, you are going to know someone
with it.''
Wrangham's daughter, Rachel, 12, takes a multivitamin, including
high-potency B with magnesium, specifically designed for kids with autism.
It has improved her daughter's talkativeness, Wrangham says.
But Wrangham is currently not doing any specific therapy, instead using
opportunities in everyday life to teach her daughter. Rachel plays on a city
of Boulder basketball team to learn how to follow rules and interact with
her peers. Board games and card games encourage the rhythm of taking turns
during conversation, she says.
''It took us years to build up a conversation to where it goes back and
forth several times and she stays on topic,'' Wrangham says.
While treatments vary, experts agree on one thing: Early intervention is
key, particularly before age 3 when the brain is growing quickly and
behaviors haven't yet become ingrained.
But whether children can be cured by early intervention remains
controversial, says Judy Reaven, director of the Autism and Developmental
Disorders Clinic at CU Health Sciences Center in Denver.
''Treatment helps people become much more independently functioning and
contributing members of society,'' Reaven says. ''We absolutely believe we
can help kids get there.''
Read the article on
Casper's Star Tribune site |